Tagged: Chemical exposure
October 23, 2021 at 3:51 am #17487Amy CessinaParticipant
Several of us had noted we got MG after a chemical exposure. Varying lengths of time between the exposure and symptoms. I had commented in another thread because another member mentioned he was a Vietnam vet and I had heard agent orange could be a trigger for MG. I Was wondering if anyone else had experienced a chemical exposure and went on to develop MG.
October 27, 2021 at 7:12 pm #17510John StormerParticipant
I am a Vietnam veteran and was diagnosed with MG in 2007. I know of two other Vietnam Veterans with MG.
April 21, 2022 at 3:00 pm #18948
I am a Vietnam Veteran ’67. I have all the symptoms of MG but no diagnosis of it. I’ve fallen many times, 2 broken ribs, stitches in my head. Finally my son bought me a cane which helps a lot but I’ve fallen anyway. Double vision is bad especially when I’m tired, so are the weak legs. No help from my civilian Doctors but the VA Doctors are still looking into it.
October 27, 2021 at 7:47 pm #17511
Good day all –
Thank you for this post.
I am a VietNam vet and filed for additional disability for MG based on Agent Orange exposure. I currently have 20% disability for hearing loss.
My claim was denied.
I did quite a bit of research into veteran’s claims and found a number of settled suits that included the claim that Agent Orange caused their MG but were denied because objective evidence as to causality was not linked to MG, so the claims were denied.
During my review of this potential problem, I was unable to find out how many VietNam vets made this claim and how many were denied. The records are not available for review.
Regarding those that think a chemical exposure caused their MG, has any chemical company acknowledged that their chemical caused this disease? Has any government body acknowledged that chemical exposure caused MG? If so, what chemical company and which govt. body?
I would be most interested in any data that shows that MG can be caused by Agent Orange.
Again, thank you for your post.
April 21, 2022 at 3:02 pm #18949
For your hearing loss, go see a VSO.
October 27, 2021 at 7:50 pm #17512
BTW – I also contacted a couple of Law Firms that specialize in VA medical claims and was advised that there is no precedent stating that Agent Orange caused or can cause MG.
- This reply was modified 6 months, 3 weeks ago by David Seibert.
February 18, 2022 at 8:36 pm #18416
The VA is helping with my MG, but only helping not admitting anything, thats better than nothing, I go see my Neurologist in March 2022.
October 29, 2021 at 3:51 pm #17523Shane TarrParticipant
I noticed some of you are asking whether there is a causal link between Agent Orange and MG? I work on-and-off in Vietnam and have spent some time in places like A Luoi in Thua Thien Hue – A Luoi is a border district with the Lao PDR – and Agent Orange was used very widely in this district. I assume if there is a causal link Vietnamese affected by Agent Orange (some of them are still alive) must have some idea as to whether there is or not. Although I am not sure much is known about MG in Vietnam.
I myself was diagnosed with MG in August 2018 but the Thai specialists said my MG might have been caused by being envenomated (bitten) by a beautiful but quite toxic Banded Krait – its venom is reputed to be 10 times more lethal than a cobra while working in the forests along the Mekong River in Cambodia close to the border with the Lao PDR. The pathologists in New Zealand where I was born claimed the Thai claim was nonsense but they were proved quite wrong because several of the world’s leading experts including one from India said it was possible,
I bring this up to illustrate that medical experts are not always correct with their assessments and this might apply to those affected by Agent Orange. Please direct message me and I will do some checking around for you in Vietnam when lockdowns are more relaxed.
October 29, 2021 at 7:13 pm #17525DavidParticipant
When I was younger was exposed to Chlordane (which was removed from the market because of its danger). My exposure was enough to cause hospitalization for a week. Later on in life was diagnosed with MG. Wonder if there is a correlation?
October 29, 2021 at 8:29 pm #17528Rick BParticipant
I too was exposed to chlordane, a pesticide, many years ago. I had no symptoms at that time but now wonder if it is related to my recent diagnosis of mg.
October 29, 2021 at 10:16 pm #17530Sandra DavisParticipant
Yes, my exposure was to drugs injected into my body. Don’t forget that these are Chemicals, too.
My double vision and spasms in my 4th and 6th cranial nerves started the day after I had a complicated root canal. I was given extra doses of lidocaine during the dental procedure, because it took longer than expected. After 10 days of double vision, I saw an opthomologist who suggested I see a neurologist. The only way I could see one was through the Emergency Room. They admitted me for what they thought was a stroke, and that night gave me both types of dye, meglumine and radioactive Iodine for two different scans. Fortunately it wasn’te a stroke, but then had full blown generalized MG, caused by dyes. I could open only 1 eye, had difficulty talking, eating swallowing, and walking due to loss of balance. These were not corrected with 100 mg of mestinon 3x/day plus 240 mg Imurane/day, plus IVIG for 5 days a week, every 4th week for 4 months.
I then had a thymectomy. Following that I was intubated about for about 18 hours, and given 5 plasma exchanges. After that I had my swallow study, and was permitted solid foods. Some of the symptoms cleared up. I could talk and move somewhat more easily. The double vision never cleared on those drugs. I finally stopped Imurane after I found my platelets were down to 37! That took 15-16 months to develop. I have not had that drug and for over 2 years, and I am still troubled by it . Twice I’ve had GI bleeds, and also last year I had surgery for cancer. The neurologists was been willing to check my liver enzymes to see if they indicate damage. In fact, they did not even check my CBC’s again after I had been on the drug for 6 months. Fortunately my PCP did. I had begun to have physical signs of thromocytopenea 9 months before it was confirmed by a lab! Each time I saw my neuro. Dr.’s I complained about the Purpura (these were huge purple and black spots on my arms and legs), and they never addressed it. That is one of the early warning signs that your liver and/or bone marrow are being damaged.
The MG Foundation gave me a list of drugs to avoid, of course Lidocaine and Megalumin as well as the Iodine (iothalamate) are on the list of drugs that exacerbate MG. Keep us posted on the VA and Agent Orange. I am also a Vietnam era vet. While I didn’t go there, almost all of my patients had been evacuated from there within 48 hours of their injuries.
October 30, 2021 at 8:28 am #17538CynthiaParticipant
I work in a factory for seven years and was exposed to toluene. A government agency come in an did an air quality test. Funny those test were buried and we never saw the results
October 30, 2021 at 2:51 pm #17539Sheila TroianoParticipant
I also was exposed to chlordane as a child, my parents used it to keep the bugs and ants out of the house. Also, I was exposed to asbestos, our pipes in the basement, when I was a kid, were wrapped in asbestos insulation. In the winter, my sister’s and I played in the basement. When the balls bounced and hit the ceiling, asbestos dust fell into our hair and we shook it out. I was exposed to a flea preparation as an adult, a few years before being diagnosed with MG. After giving cats a flea bath, the next day I was disoriented, felt like the world was tipping and I couldn’t walk. That was the first time I experienced double vision. I went to the hospital and as usual, they don’t look for the zebras in a pack of horses. A few years after, I was using a weed preparation. The same thing happened. In hindsight, I connected the two, looked at the ingredients and found both contained similar organophosphates. I’m 99% sure that all this had something to do with it. So, the answer is ” yes” I do believe chemical exposure can precipitate MG.
November 1, 2021 at 1:47 pm #17537
Looks like just about everyone has been exposed to this stuff. 🙂
Nasty, nasty stuff.
I was in Phu bai and Danang. Agent Orange was heavily used in those areas. I remember a truck spraying that stuff around our Perimeter and knew the guys spraying it.
November 1, 2021 at 11:04 pm #17547Robert RichardsonParticipant
Desert Shield/Storm veteran, and I recall “P tabs” distributed twice prior to deployment… is this incidental or coincidental that the same tabs are necessary now for my MG…?
November 2, 2021 at 1:16 pm #17548Robert RichardsonParticipant
…and my VA disability claim is denied.
November 3, 2021 at 7:16 pm #17560MariaParticipant
I lived not far from a tannery for 18+ years. The building was later demolished but nothing could be built on the land because of the contamination. There was also a gasoline refinery that produced a huge orange glow nightly. I was told it was very possible that it caused my myasthenia.
November 3, 2021 at 7:59 pm #17566ANITA A. TARLTONParticipant
Maria…. wow. Just wow.
November 29, 2021 at 10:24 pm #17733Norman RossParticipant
In 1984 I accidently treated myself with chlordane by brief gusty winds that caused the chemical to contact my skin. I soon realized that the chemical was damaging my nervous system, and took an extensive cool shower to alleviate the pain, but to no avail. A trip to the emergency room was necessary. The treatment was cool compresses over the affected area and codeine to relieve the pain. After two days of treatment with the codeine, I seemed to be OK. Years passed. In 2016 I was diagnosed with Bell’s Palsy. That was treated with prednisone, and lasted about two weeks. In late 2017, I was diagnosed with Myasthenia Gravis (gMG). Could the chlordane be the cause of an imbalance in my antibodies to manifest such maladies as the Bell’s Palsy and Myasthenia Gravis? Highly suspect!!
On the theme of “research” regarding MG, I want to note two more issues.
1.) Today, I read an article on Yahoo regarding the retraining of our immune system to not destroy certain cells that are beneficial to us. Is this a key to a novel way to cure MG? A link to this news article is here: https://www.yahoo.com/news/reverse-vaccination-technique-mice-suggests-133457275.html
2.) I have searched for, but not found a meaningful database that can be searched for clues for the causes and possible prevention, causes, treatments, and possible cures for MG. I have seen many “pockets” of information regarding MG, mostly “feel good” stuff, but no comprehensive investigation and publication that will lead to a definite cure for MG. If anyone at Myasthenia Gravis News is aware of a serious collaboration regarding MG research, I would like to know.
November 30, 2021 at 4:03 pm #17740Martin KristoParticipant
I was an infantry grunt in the field for 11 months (1969-70) before being wounded in 70. The Agent Orange News letter article written by Michelle Taylor army nurse (1968-69) didn’t give the specific autoimmune disease from which she suffers. MG ??. Having been diagnosed with MG in May of 2020 I like so many of us wonder what could have brought on this disease. In addition to the MG I’ve had metastatic melonoma of my lymphatic system.
Mestinon & Imuran have been my go to drugs and seem to be keeping things (crisis) in check.
April 22, 2022 at 8:51 pm #18956Barbara E.Participant
Thank you, Norman. That was an extremely interesting article.
There may not be a single database with absolutely everything, but there are many that can be very useful. I’ve looked at several, depending on what I’m interested in locating. For example, the U.S. National Library of Medicine has https://clinicaltrials.gov where you can search by topic or medical condition, along with options like location and many other criteria (recruiting, completed, etc.).
Other resources include PubMed Central, NIH and many, many more. If you search online for database medical studies or trials, you’ll see lots of option that are either open for use to all or requires a free registration.
December 1, 2021 at 9:20 pm #17744Kirstin BornParticipant
I am the daughter of a veteran who had multiple Agent Orange exposures prior to my conception. He passed due to his AO-related illnesses a few years prior to my MG diagnosis.
There is mounting evidence showing that AO causes a number of medical conditions in the offspring of those exposed. And based upon information shared on several AO FB groups, many of us have auto-immune disorders.
The Toxic Exposures Act of 2015 directed the VA to collect data about health conditions of the offspring of servicemembers exposed to AO in order to find commonalities and eventually provide support. To add to the list if you are the child or grandchild of a servicemember exposed to Agent Orange, please contact the VA.
In the meantime, I would love to see the MGFA conduct research into a connection between MG and chemical exposure from farms, industrial use, and Agent Orange.
December 1, 2021 at 9:52 pm #17747Robert PowersParticipant
I am not certain about some go the “chemical” exposures stated here can relate to causing MG. Possible sure…but I believe that anything is possible. Usually, exposure and effected of some of the chemicals mentioned would have a closer time correlation.
HOWEVER, I do believe that severe, long term, emotional and physical stresses can trigger MG and other autoimmune diseases like MG! I have discussed these possibilities with psychologists, Psychiatrists, and Neurologists and there is some agreement that these factors must be considered! There is much variation in MG, symptoms, severity, etc.
Some of the chemicals mentioned in this forum can be associated with activities that also have chronic pain and psychological stresses! I have some pre-med background and experiences with people, etc…and it makes much sense…but agencies and many doctors will not even discuss it!
April 25, 2022 at 12:33 pm #18973Lou VenemaParticipant
I was in VietNam 67-68. I was in the Central Highlands from the coast to Cambodia. The majority of my time was spent with the forward battalion headquarters. We travelled a lot via ground or air. We did a lot and saw a lot. I saw a lot of white stuff being sprayed by fixed wing aircraft and helicopter. I don’t know if I was exposed or not. I went to the VA for my agent orange medical examination and was found to be clear of anything at that time. I have been treated by VA since 2008 for a number of conditions and have multiple blond tests each year.
Vets should go to https://www.publichealth.va.gov/exposures/agentorange/locations/vietnam.asp for more information. There are also many sites with maps that show where and when agent orange was used. The VA test is the first place to start if you are seeking compensation. There are a number of conditions that have been attributed to agent orange. If you have one of those illnesses and were in VietNam or other associated area you will automatically be considered as service related. If you have not been diagnosed with the assumed diseases you will not service related. It is that simple.
If you suspect that you have MG have your doctor order a blood test for AChR antibodies. 80 to 85 percent of MG patients test positive for AChR antibodies. I was diagnosed with MG in 2013. Once I learned what the symptoms were, I realized I had been having issues with MG probably at least for 10 years prior.
I hope this helps some people trying to get compensation from the VA.
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