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ANITA A. TARLTON changed their profile picture 1 month, 2 weeks ago
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ANITA A. TARLTON replied to the topic Does Temperature or Weather Trigger Your Symptoms? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 month, 3 weeks ago
You are fortunate!
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ANITA A. TARLTON replied to the topic Does Temperature or Weather Trigger Your Symptoms? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 1 month, 3 weeks ago
It absolutely does. A low pressure system (think: thunderstorms, hurricanes) makes me feel like my arms and legs are as heavy as telephone poles. I can barely open my eyes.
Heat is another trigger. I have a cooling vest that helps.
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ANITA A. TARLTON replied to the topic Working with MG diagnosed as a senior in the forum Working/Careers and Myasthenia Gravis 3 months, 1 week ago
The overwhelming fatigue that comes out of nowhere is the most difficult thing for me to come to grips with. Today, for example….beautiful weather, I haven’t done anything physically exerting. Yet, I have moved from bed to recliner, all the energy of a sedated sloth. If I’d had plans, I couldn’t have done them. It’s really frustrating.
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ANITA A. TARLTON replied to the topic Working with MG diagnosed as a senior in the forum Working/Careers and Myasthenia Gravis 3 months, 1 week ago
Yes!! Great guinea pig analogy!! We are all diagnosed with a variation of the same disease. Yet how we present it, how we respond to different treatments, and how we come to manage our lives may be completely different!
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ANITA A. TARLTON replied to the topic Working with MG diagnosed as a senior in the forum Working/Careers and Myasthenia Gravis 3 months, 1 week ago
I think we each learn our own limitations. There are days when I can go go go, just like before. But by mid afternoon, I feel “tired in my back”. That’s my signal of enough.
Funny, I was a teacher for 30 years. The last 15 years I worked, when I got home, I would have to lie down 20-30 minutes. I remember telling g my kids that my back…[Read more]
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ANITA A. TARLTON replied to the topic Working with MG diagnosed as a senior in the forum Working/Careers and Myasthenia Gravis 3 months, 1 week ago
I understand the worry. I was diagnosed 4 years ago at age 61. On oxygen 24/, unable to do the things i was accustomed to doing easily. Now at 65, I am better than I was. I’ve learned to adapt a lot. I’m still able to drive, though I didn’t drive for a year because I couldn’t trust my vision.
I am concerned about what I may saddle my husb…[Read more]
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ANITA A. TARLTON replied to the topic Hobbies Since Myasthenia Gravis: Let go, Modified, Discovered in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 3 months, 2 weeks ago
I’ve always had lots of projects going on. I like to sew, cross stitch, cane chair seats…. the list goes on! I am still doing most of those things, though for a good 18 months I couldn’t. I was shaky (didn’t work to “embrace the shake” too well. But mainly I was too weak to do much. Slowly, I began to pick back up my projects. I had to…[Read more]
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ANITA A. TARLTON replied to the topic Hobbies Since Myasthenia Gravis: Let go, Modified, Discovered in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 3 months, 2 weeks ago
I’ve always had lots of projects going on. I like to sew, cross stitch, cane chair seats…. the list goes on! I am still doing most of those things, though for a good 18 months I couldn’t. I was shaky (didn’t work to “embrace the shake” too well. But mainly I was too weak to do much. Slowly, I began to pick back up my projects. I had to…[Read more]
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ANITA A. TARLTON replied to the topic Hobbies Since Myasthenia Gravis: Let go, Modified, Discovered in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 3 months, 2 weeks ago
I’ve always had lots of projects going on. I like to sew, cross stitch, cane chair seats…. the list goes on! I am still doing most of those things, though for a good 18 months I couldn’t. I was shaky (didn’t work to “embrace the shake” too well. But mainly I was too weak to do much. Slowly, I began to pick back up my projects. I had to…[Read more]
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ANITA A. TARLTON replied to the topic Imagining a Life Without MG in the forum Mental Health, Self-Care, and Support 3 months, 3 weeks ago
I remember my life before MG. I mourned the loss for a long time. Then, I decided slowing down some wasn’t such a bad thing. Life’s easier when you accept yourself.
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ANITA A. TARLTON replied to the topic End of Year Reflection in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 4 months, 2 weeks ago
1. I finally weaned off prednisone!
2. Began a more sensible diet plan and have lost 20 lbs so far.
3. Discovered water aerobics, and I try to work in 4 hours a week.
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ANITA A. TARLTON replied to the topic How to Get Out of Your Own Head in the forum Mental Health, Self-Care, and Support 5 months, 2 weeks ago
I keep a journal. For about a year, I kept a list of “To Do” and “Ta Da!”
Things I needed/wanted to do were listed for each day under “To Do”.
As I completed them, I could put a check in the “Ta Da!” Column. If I tried and couldn’t complete something, I gave myself credit for the attempt, or extended time to complete it. If I just couldn’t do…[Read more]
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ANITA A. TARLTON replied to the topic Chemical exposures and MG in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 6 months, 1 week ago
Maria…. wow. Just wow.
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ANITA A. TARLTON replied to the topic National Family Caregivers Month in the forum Mental Health, Self-Care, and Support 6 months, 1 week ago
My husband is an amazing caregiver. When I was first diagnosed, he studied everything he could find about MG. I was unable to ask questions, but he certainly did!! I need some fresh ideas for Caregiver Month.
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ANITA A. TARLTON replied to the topic Advice for Hospital Stays in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 6 months, 2 weeks ago
I keep my go bag packed and in the closet. I have pajamas, cell charger, notebook, pens, toiletries, etc.
I’m getting ideas here to add to my bag.
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ANITA A. TARLTON replied to the topic Chemical exposures and MG in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 6 months, 2 weeks ago
As a child, I also was exposed to chlordane. I was diagnosed with MG at age 65. However, I can look back and see many red flags that could be MG.
I think there might be a connection, at least to autoimmune issues in general.
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ANITA A. TARLTON replied to the topic Experience With CellCept in the forum Healthcare and Myasthenia Gravis 6 months, 2 weeks ago
I’ve been on Cellcept since 2018. I take 1500mg twice a day. At first I was on 60mg prednisone along with it but I was able to wean off of it this year.
Cellcept took about 9 months to really kick in for me. I had some hair loss but nothing drastic.
For me, it’s been a game changer. I am pretty much able to do everything I did pre-…[Read more]
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ANITA A. TARLTON became a registered member 7 months, 2 weeks ago
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Hello, Anita! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with our forum rules in…[Read more]
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