- Last Post
Coronavirus (COVID-19) and Myasthenia Gravis
This forum is for discussing the Coronavirus pandemic, and how it coincides with Myasthenia Gravis. Ask questions, share tips for self-isolation, etc. Please note that Myasthenia Gravis News is not a resource for medical advice. However, we can share news and patient and caregiver perspectives.
- 1 month ago
Hacks, Suggestions, and Tips for Living with Myasthenia Gravis
This is where people with Myasthenia Gravis can discuss general things in their life and their goals. Topics may include discussion of any physical exercise, any tips or tricks you’ve found in keeping up with your personal hygiene, stories of success and trials if you are a parent diagnosed with Myasthenia Gravis, questions about maintaining a career or jobs, and more. This is also a place for those recently diagnosed to get advice from others.
- 7 hours, 30 minutes ago
About Our Forum/Welcome Lounge
(New to the forum? Please familiarize yourself with our site rules found within this sub-forum before posting within topics. Be sure to introduce yourself as well! We are ecstatic to meet you and welcome you into this community of patient support. Tell us anything you feel comfortable sharing about yourself and your MG journey. How does MG affect and have altered your life? We are an inclusive, nonjudgemental MG support community. This sub-forum is also for all questions and answers regarding the use of our forum, which our MG patient admins will promptly answer. Keep your eye out for our quarterly newsletters!)
- 1 month, 2 weeks ago
Mental Health, Self-Care, and Support
So many of us have already been on a mental health journey throughout our lives. Living with a rare disease only drives increased stress. MG patients need to have this space to share, vent, listen, and validate each other’s challenges. We are a community, a family, and a support system extending compassion and encouragement to all patients to stay grounded and hopeful during our unique paths.
- 1 day, 3 hours ago
Myasthenia Gravis Research, Scientific News, & Clinical Trials
This forum serves as a platform for MG patients, caregivers, researchers, and medical professionals to share and discuss the most advanced scientific studies and information aiming to improve the quality of life for MG patients. Myasthenia Gravis News is not a resource for medical advice. However, we can present and consider amongst each other relevant and current scientific MG resources. If you have a question about something you read, please ask the community here. We will be glad to help clarify or partake in sharing opinions. Additionally, we use this space to be open about experiences with and address MG Clinical Trials.
- 1 month, 1 week ago
Caregivers, Family Members, and Partners of Those with Myasthenia Gravis
This forum is for those who themselves aren't diagnosed with MG but are the family member, partner, or caregiver of someone who is. Tell your stories, provide suggestions, propose questions, and find a community of support here.
- 3 weeks, 6 days ago
Relationships & Social Life with Myasthenia Gravis
We as humans are constantly navigating relationships, whether that be with friends, family, or romantic partners. As tricky as this arena can be on its own, adding MG may only seem to complicate relationships further and become overwhelming. We encourage you to use this sub-forum to authentically share your stories, struggles, growth, new perspectives, and support on dating, relationships , and marriage. Other MG patients have a unique understanding of what each other are dealing with; let us rely on one another for assistance.
- 1 week, 1 day ago
Working/Careers and Myasthenia Gravis
Although it is not feasible for all, some MG patients can manage a job with modifications. However, navigating a career with MG is often not a walk in the park. Whether you are experiencing discrimination, ignorance, misunderstanding, or miscommunication, we hear you and support you. Feel free to participate in the discussion about the positives and negatives of workplace experiences, as well as any knowledge and guidance you have regarding workplace accommodations.
- 3 weeks, 1 day ago
Nutrition, Supplements, and Exercise
Please note that Myasthenia Gravis News is not a resource for medical advice. Please consult your medical team before pursuing any diets or activity. Nevertheless, we can partake in the conversation of information and patient and caregiver experiences, perspectives, goals, and challenges. All tips, recipes, and exercise regimen examples are welcome! Myasthenia Gravis News is a judgment-free zone. Ask questions and empower other patients striving to exercise with MG.
- 1 day, 3 hours ago
This forum is designed for patients, caregivers, family and friends who would like more information on different Myasthenia Gravis resources. These resources can include support groups, press releases, events and more!
- 2 weeks, 3 days ago
Healthcare and Myasthenia Gravis
Please note that Myasthenia Gravis News is not a resource for medical advice. Present personal experiences with symptoms, treatments, and procedures. If you feel comfortable, notify us concerning your upcoming procedures and surgeries, so members have the opportunity to send messages of support. Join the conversation about treatment options available, find other patients and caregivers using the same medications, and share stories about side effects and symptoms and ways to alleviate them.
- 1 week, 2 days ago
- Coronavirus (COVID-19) and Myasthenia Gravis