Tiredness and exhaustion can often be solved with rest, but constant pain and discomfort steal sleep from my eyes. Doctors keep telling me that myasthenia gravis (MG) doesn’t cause pain, yet my body suggests the opposite. So I keep asking myself: Is MG really painless? I have been…
Discussion
Adding a single infusion of Vyvgart (efgartigimod alfa-fcab) to treatment typically given before a thymectomy, or the surgical removal of the thymus gland, results in greater clinical and laboratory improvements in people with myasthenia gravis (MG). That’s according to a small, single-center study in China, which showed that…
Discussion
I haven’t written in a few weeks due to problems with my legs and knees. This has been the most pain I’ve endured since developing avascular necrosis in both hips. The bone destruction was caused by high doses of prednisone prescribed to treat my myasthenia gravis (MG). It led…
Discussion
Tears gathered in my eyes as I read the disappointing visit summary from a neurology appointment. Being a seronegative myasthenia gravis (MG) patient, I’m leery about seeing neurologists for fear they will dismiss the diagnosis that took years for me to get, but I left the appointment pleasantly…
Discussion
A study of myasthenia gravis (MG) patients lends support to “ongoing efforts to develop efficacious MG-specific treatments with minimal short- and long-term adverse effects,” researchers said. The U.S.-based study found that MG patients aged 65 and older have higher rates of death than those without the disease, mainly due to…
Discussion
Living with myasthenia gravis (MG) is already a full-time job, and not the cushy work-from-home kind with pajama pants and flexible hours. MG is the kind of job that keeps changing your schedule without warning, hands you tasks you didn’t train for, and occasionally leaves you flat on your…
Discussion
The U.S. Food and Drug Administration (FDA) has approved inebilizumab as a treatment for generalized myasthenia gravis (gMG). The newly approved therapy, which developer Amgen will market under the brand name Uplizna, is specifically indicated for adults with gMG who are positive for antibodies targeting the acetylcholine…
Discussion
For people with generalized myasthenia gravis (MG) in the U.S., getting a correct diagnosis is often a difficult and stressful process that can take more than two years from the time of symptom onset, a study showed. Findings suggest that people with MG often feel dismissed by doctors when…
Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.
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