Columns

I like to think of myself as a rational person. I try to meet each new challenge with calm and logic. But with myasthenia gravis (MG), fear has a way of quietly slipping in. For me, that fear has taken up residence at the dinner table. The MG crisis…

There’s a version of chronic illness people imagine: the one where you get a diagnosis, adjust a few routines, take your medications, and eventually settle into something manageable. And then there’s the real version, the one that unfolds slowly and quietly until one day you look around and realize your…

Chronic illness rarely announces itself with clarity. Instead, it unfolds quietly, often disguised as fatigue, stress, or temporary discomfort. My experience with myasthenia gravis (MG) began in October 2020, shortly after giving birth. It was a period I had expected to be defined by recovery and bonding. Instead,…

I can proudly say I have never given up because of my condition. As a child, I kept running everywhere, despite the bruises that never seemed to disappear, and I never stopped exploring, even if I literally collapsed from exhaustion or walked straight into a wall because of diplopia.

There’s a part of myasthenia gravis (MG) that people rarely talk about, and it’s not the symptoms, the appointments, or the medications. It’s the sheer weight of having to advocate for yourself over and over and over. Advocacy may sound noble, but from an insider perspective, it can…

One of the first things that tends to happen when you stop being physically active is you gain weight. It’s not automatic for everyone, but I know many curvy beauties will relate to this. There are some bodies that seem obsessed about storing fat, as if it would help them…

I like to think of myself as a strong individual. Even before myasthenia gravis (MG) entered my life, I had, like most people, faced my share of challenges: the usual relationship issues, loss of loved ones, and so on. Unlike most, I underwent two years of diagnosis, surgery, and…

The exhaustion that comes from not being believed about the details of my life with myasthenia gravis (MG) isn’t something that announces itself all at once. It settles in slowly, the way a long winter works its way into your bones. Before you know it, you’re carrying a weight…

I met someone who looked ravishing and well put together, with great posture, beautiful hair, and impeccable makeup, and I had my usual thought: “That’s what I would’ve looked like if I didn’t have myasthenia gravis.” But this time, something clicked, and I told myself: “This is not a…

Asking for help has never come naturally to me. I’ve always been the person who is the helper or the one who pushes through and figures it out. Living with myasthenia gravis (MG) has forced me to rethink that instinct, but it hasn’t erased it. I still hesitate. I…