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I wanted to live life to the fullest this year. I wanted to act as if I had no chronic disease, to try every activity that crossed my mind, to be more social, more active, and, in the end, simply happier. After years of feeling trapped inside an invisible cage…

Before I was diagnosed with myasthenia gravis (MG) and neurologists started timing how long I could hold my arms in the air, I had another name altogether. To my family, I was never really Mark. I was Boo, a shortened form of Booza. Usually, we don’t choose our nicknames.

There’s a phrase I hear more often than I’d like: “Must be nice.” Must be nice to sleep that long, to nap whenever I want, to not have to get up for work. Yeah, it’s real “nice” having a body that forces rest whether I want it or not. Here’s…

“You cannot find peace by avoiding life.” — From the 2002 film “The Hours” Peace of mind is a choice one makes to deal with life’s adversities. It’s a lesson I’m still learning myself. Over the years, I’ve made many assumptions about how my twin brother, Aaron, deals with…

I think that one of the hardest parts of living with an invisible disability is having to reconsider one’s career. From 2017 to 2026, I explored almost every work model imaginable: freelance, remote, hybrid, and full-time. Each came with its own advantages and challenges, and, surprisingly, this is one of…

“And not only so, but we glory in tribulations also: knowing that tribulation worketh patience; And patience, experience; and experience, hope.” The apostle Paul was not writing about myasthenia gravis (MG) with those words. He was speaking instead about the whole human condition, the arc of a…

One of the hardest parts of living with myasthenia gravis (MG) is how fast things can change. I can wake up feeling decent and start my day like anyone else, and then hit a wall so hard it feels like my body pulled the emergency brake without warning. People…

I lived for 19 years before I ever heard the words “myasthenia gravis” (MG). For the next seven years after that, I learned how to live with it, advocate for patients like me, and eventually accept it. Now, I find myself back in a place of uncertainty. During a…

Here’s a riddle: What has more compartments than a tackle box, more variety than a buffet, and takes longer to sort than a load of laundry you’ve ignored until you ran out of clean underwear? If you said my weekly pill organizer, congratulations! You clearly know me or someone like…

Living with myasthenia gravis (MG) means constantly adjusting to a body that doesn’t always cooperate, and the people around me often want to help but don’t know how. Sometimes it turns into hovering, second‑guessing, or trying to fix things that aren’t fixable. Other times, people stay silent because they…