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How I Learned to Avoid Letting My Emotions Affect My Health

Doctors’ appointments aren’t among my favorite activities, but they are necessary when weird symptoms occur. Before I had myasthenia gravis (MG), doctors’ appointments were rare for me. Except for physicals for school, I didn’t go that often. I could claim this was because of my sterling health record before MG,…

Resting and Resetting With Positive Intention

There is no shame in spending time on something that didn’t work out the way we had planned, regardless of how long we spent on it. At some point, those of us with myasthenia gravis (MG) will probably endure periods of forced rest, our plans won’t play out as…

My Pain Is Just as Real as My Myasthenia Gravis

Pain is a big part of my life. I have been in daily pain for the last 10 years. The only medical reason I have for it is myasthenia gravis (MG). I highly value science. When I was diagnosed in 2013, there was still little evidence online that pain was…

Healthy Caregiver Relationships Can Be Imperfect

Throughout my thymectomy recovery, I am learning that we need to accept help when we need it, even if our lives aren’t precisely what we’d imagined. Consider that we want to keep growing into the most whole version of our potential selves. In that case, we have to…

How I Discovered My Inner Superhero

I started working as a speech therapist at a large academic hospital in January 2020. I was excited to start, and my passion for the job was coming out of my ears. But lurking behind the joy of getting such a thrilling job was a buildup of anxiety, shame, guilt,…

How Meditation Helped Me Manage Anxiety

For most of my life, I’ve been wary of meditation, which involves various mind exercises that help to build happiness and shrink stress. Perhaps I could blame my negative attitude about meditation on other factors, such as how it’s portrayed on TV. In reality, I never took the time…

My Transsternal Thymectomy Was a Positive Experience

Shortly after I was diagnosed with myasthenia gravis (MG), the neurologist suggested I have a contrast CT scan of my chest. This would determine whether or not a thymectomy was necessary. My only memory of the CT scan was that the contrast made me feel like I’d peed my…

Releasing Harsh Self-judgment and Embracing My Scars

It’s a lot more difficult agreeing to a scar than receiving one by accident. We often become comfortable with ourselves over time, and not knowing what we will look like post-surgery can be scary. We may worry how the physical changes will impact our lives and our interactions with…

2021 Myasthenia Gravis Survey Results

BioNews Survey Infographic

Myasthenia Gravis News conducted a survey from Feb. 11-March 28 to gain greater insight into the characteristics of the MG community and disease management. Results of the survey have now been published. Click on the image to view the infographic, and click here to read the story.