Columns

January 17, 2020January 15, 2020

A Small Thing that Brings Me Joy

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

I drink a lot of Coke. People have strong opinions about that. For example, “But do you know how bad it is for your health?” Or, “You should cut ... Read more

January 15, 2020January 13, 2020

You’ve Received a Myasthenia Gravis Diagnosis — Now What?

Columns, Positively MG - a Column by Megan Hunter

When you finally receive your diagnosis of myasthenia gravis, it will probably come as a huge relief. You have likely been sent from doctor to doctor as they try ... Read more

January 10, 2020January 8, 2020

Myasthenia Gravis Helped Me to Become a Better Healthcare Professional

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

I recently completed my university degree and became a speech-language pathologist. I’ve spent several years studying to become a healthcare professional because I want to help people. But little ... Read more

January 8, 2020January 6, 2020

Medical PTSD Is a Reality for Many of Us Living with a Rare Disease

Columns, Positively MG - a Column by Megan Hunter

I wake up sweating. I feel tears pouring down my cheeks, and my throat is sore from screaming. Where am I? Why is it so quiet? I get out ... Read more

December 20, 2019December 18, 2019

I Found a Neurologist Who Gives Me Hope

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

A broken promise can often lead to immense disappointment. For someone with myasthenia gravis (MG), a failing immunosuppressive medication can easily lead to a broken heart. Immunosuppressive medications combat ... Read more

November 20, 2019November 18, 2019

We May Have the Same Diagnosis, but We Are Vastly Different

Columns, Positively MG - a Column by Megan Hunter

When people are diagnosed with a specific condition, they might be able to read about it on the internet or from information provided by a doctor. For the most ... Read more

October 30, 2019October 28, 2019

A Recent Medication Lapse Has Refocused My Attention on Self-care

Columns, Positively MG - a Column by Megan Hunter

On a recent day, I popped out to the shops to pick up a few items when I realized I had left my Mestinon (pyridostigmine) medication at home. It ... Read more

October 16, 2019October 15, 2019

I Was Honored to Receive an Award for My Rare Disease Advocacy

Columns, Positively MG - a Column by Megan Hunter

I recently attended the South Africa’s Women Givers Awards. I had been invited to the awards ceremony as a nominee for my work with the Rare Bear Project. Bontlebame, ... Read more

September 25, 2019September 23, 2019

Reassessing What’s Important After Relapse

Columns, Positively MG - a Column by Megan Hunter

I have started this column many times, but I have had trouble putting my emotions into words. I am trying to digest and cope with how my body is ... Read more

July 24, 2019July 22, 2019

Exhaustion Means Being More Than Just a Little Bit Tired

Columns, Positively MG - a Column by Megan Hunter

When you are diagnosed with a rare disease, you may think that your life is over. You read all of the different outcomes on the internet and begin to ... Read more

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