Columns

April 17, 2019April 16, 2019

Tell Me Why We Need to Talk About Organ Donation

Columns, Positively MG - a Column by Megan Hunter

Recently, I attended an event that reminded me of the importance of speaking up, letting others into your world, and starting a conversation to create awareness. The event was ... Read more

April 10, 2019April 9, 2019

With Rare Disease, You Must Be Your Own Advocate

Columns, Positively MG - a Column by Megan Hunter

Hearing the words “you have a rare disease” is not something you ever expect. Nor is it anything you could ever really prepare for. But unfortunately, it does happen ... Read more

April 3, 2019April 2, 2019

We Have More Similarities Than Differences

Columns, Positively MG - a Column by Megan Hunter

As a part of the rare disease community, I interact with many people who have unique differences to what society deems “normal.” They may have ports or permcaths, feeding ... Read more

March 29, 2019March 28, 2019

I Shouldn’t Doubt the Validity of My Illness, But I Still Do

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

Living with myasthenia gravis means living in a constant state of doubt from myself and others. Fighting an invisible illness has taken a toll on my sanity. I have both ... Read more

March 27, 2019March 25, 2019

Essential Items I Pack for a Night Out

Columns, Positively MG - a Column by Megan Hunter

Last weekend, I was lucky enough to attend an Ed Sheeran concert. Passenger opened for him, and I danced the night away, smiling so much that my cheeks got sore. I ... Read more

March 20, 2019March 19, 2019

Chewing My Way Through the Tough Times

Columns, Positively MG - a Column by Megan Hunter

When I was first diagnosed with myasthenia gravis, I already was headed for a crisis. I had been battling symptoms for a couple of months, yet all of the ... Read more

March 13, 2019March 12, 2019

I’m Incredibly Thankful for My Support System

Columns, Positively MG - a Column by Megan Hunter

When I received my rare chronic illness diagnosis, I felt like I was all alone in the world and nobody truly understood what I was going through. My friends ... Read more

March 8, 2019March 7, 2019

The Dark Horse of Depression that Followed My MG Diagnosis

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

Editor’s Note: This column discusses the sensitive topic of suicidal ideation. The moment doctors diagnosed me with myasthenia gravis (MG), they prescribed me antidepressants. It didn’t make much sense ... Read more

March 6, 2019March 6, 2019

Bullet Journaling and Chronic Illness Go Hand in Hand

Columns, Positively MG - a Column by Megan Hunter

I have been housebound since my stem cell transplant and was starting to get rather crabby about the whole situation. I am used to independence — visiting friends and ... Read more

February 27, 2019February 26, 2019

My Favorite Film Teaches Me to Choose Kindness

Columns, Positively MG - a Column by Megan Hunter

Last weekend, I watched the movie “Wonder” again — for probably about the fifth time. The first day it was released in South Africa, I sat in the cinema ... Read more

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