Columns

Living with myasthenia gravis (MG) can feel like riding an unpredictable roller coaster. Some days, we coast along smoothly, while on others, it’s like the track was built by a mischievous toddler with a love for loops. With fluctuating muscle strength and fatigue, learning to love and care for…

You’ve probably heard of the saying, “The eyes are the window to your soul.” Yet how do we judge people when their eyes are misaligned through no fault of their own? Do we still want to know what’s in their soul? My twin brother, Aaron, successfully had strabismus surgery…

For the longest time, I thought the biggest obstacle to driving would be my foot pain. I never considered that myasthenia gravis (MG) would affect my ability to drive. My foot pain — unrelated to MG — would come and go, so for a while, I avoided driving because…

Julian of Norwich’s “Revelations of Divine Love” — which she’d originally recorded in 1373 — was first published in 1670. Still in print, this classic of Christian mysticism has influenced unknowable numbers of readers, myself included. I’d like to share how this book has affected my personal philosophy and…

Mornings and I have an understanding: If I allow myself the time I need to ease into the day, things go relatively smoothly. If I don’t? Let’s just say it’s a recipe for disaster. I know myself well enough to acknowledge that because of my myasthenia gravis (MG), I…

This column describes the experiences of the author’s brother with side effects to several MG medications. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Comedian Chris Rock was at the peak of his creative powers in 1999, when he…

Like many others, being diagnosed with myasthenia gravis was a turning point in my life. Before my diagnosis, school sports were a nightmare. Running, basketball, and other physical activities left me exhausted and discouraged while everyone else seemed to thrive. After my diagnosis,…

This week, I turn 41. Some days, I’ll catch my reflection in the mirror and feel a deep sense of pride in the person looking back at me. I’ll see the strength I’ve built, the lessons I’ve learned, and the resilience that has carried me through these 41 years. Then…

Dr. Seuss once said, “Sometimes you will never know the value of a moment until it becomes a memory.” That’s another way of saying you never know what you have until it’s gone, whether it’s a relationship, a material item, or a mindset (such as innocence). It’s nice to remember…

I often talk about strength and resilience because I feel a deep need to share these traits with others who are navigating chronic illnesses or invisible disabilities. Motivating and inspiring others is a blessing that gives my own struggles with myasthenia gravis (MG) a purpose. But let’s turn the…