Columns

My Transsternal Thymectomy Was a Positive Experience

Shortly after I was diagnosed with myasthenia gravis (MG), the neurologist suggested I have a contrast CT scan of my chest. This would determine whether or not a thymectomy was necessary. My only memory of the CT scan was that the contrast made me feel like I’d peed my…

Releasing Harsh Self-judgment and Embracing My Scars

It’s a lot more difficult agreeing to a scar than receiving one by accident. We often become comfortable with ourselves over time, and not knowing what we will look like post-surgery can be scary. We may worry how the physical changes will impact our lives and our interactions with…

Laughter Helps Me Cope With Myasthenia Gravis

I tend to laugh a lot, which can serve many different functions. A nervous giggle can indicate anxiety, a belly laugh may follow a moment of hilarity, and sometimes laughing is the only way to deal with an overwhelming or uncomfortable situation. My name, Retha, is derived from Margaretha, which…

How MG Taught Me to Put Kindness Before Judgment

Myasthenia gravis (MG) really enjoys hiding from other people. While a droopy eyelid is easy to observe, most of the other symptoms are not noticeable to outsiders. Weakness in the arms, legs, face, and other areas may only be detectable after someone with MG attempts to complete certain tasks.

Simple Ways I Make My Life Easier at Home

My boyfriend, Tom, and I are finally moving back in together after 15 months of being in a long-distance relationship. While that in itself is amazing, it involves one terrible part: the physical act of moving. Although moving is a myasthenic’s nightmare, packing up my whole life again has…

If You Are Scared but Act Anyway, You Are Courageous

I am currently composing this column six hours out from my transsternal thymectomy. Five mishaps leading up to the surgery have gone wrong on the scheduling side, and then the COVID-19 office lost my test. I have been relatively happy leading up to this, but it seems everything…

2021 Myasthenia Gravis Survey Results

BioNews Survey Infographic

Myasthenia Gravis News conducted a survey from Feb. 11-March 28 to gain greater insight into the characteristics of the MG community and disease management. Results of the survey have now been published. Click on the image to view the infographic, and click here to read the story.