MG won’t wait:
Acting early and urgently

Training family to show up when MG flares strike

Vanetta Fenton shares how open family conversations can help loved ones recognize symptoms and respond during flares or crises.

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About the series

We listened to the conversations happening across the myasthenia gravis community to uncover the questions and challenges that matter most. In this video series, community members share their personal journeys, hard-won wisdom, and advice for navigating life with this condition. These are voices of experience from real people who truly understand.

Episodes

Investing hard work into MG care today for easier days ahead

Richard Lewis, MD, shares how taking MG seriously while maintaining balance may help patients live more fully day to day.

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How to tune your communication to speed up MG care

Kristina Kelly shares how using clear, fact-based communication may help patients express urgent symptoms and get the care they need sooner.

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Training family to show up when MG flares strike

Vanetta Fenton shares how open family conversations can help loved ones recognize symptoms and respond during flares or crises.

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In MG treatment discussions, speak doctors’ language

Kristina Kelly shares how understanding doctors' communication preferences help her to self-advocate.

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Be the early bird in catching MG symptoms

MG patient advocate Vanetta Fenton shares why recognizing symptoms early and speaking up can help prevent disease progression.

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The most urgent red flags in MG symptoms

Neurologist Richard Lewis, MD, describes the symptoms that may signal a potential MG crisis.

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Red flags that may point to an imminent MG crisis

Richard Lewis, a neurologist, explains symptom patterns that may signal an imminent, urgent MG crisis.

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Early MG treatment can be the key to future control

Jasmine Nathan describes how starting treatment early can help preserve control and slow symptom progression.

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Putting on the brakes with MG weakness

Jasmine Nathan shares how recognizing early warning signs like weakness and vision changes helps her take action and stay safe.

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Scouting the very best MG neurologists

Kristina Kelly explains how MG patients can use community insight and research to find the right neurologist.

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Calling in backup during MG ER visits

Vanetta Fenton shares why speaking up about medication interactions is critical when seeking urgent care.

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