Updates

March 2, 2021March 2, 2021
MG Patients Should Be Priority for COVID-19 Vaccine, Report Says, Citing Risks

People with myasthenia gravis (MG) are at greater risk of being hospitalized or dying from COVID-19 than the general public, and should be prioritized for vaccination, ... Read more
February 26, 2021February 26, 2021
Generalized MG Patients Needed for UCB’s Global Rozanolixizumab Trial

An international Phase 3 clinical trial assessing the efficacy, safety, and tolerability of rozanolixizumab as a treatment for generalized myasthenia gravis (MG) is currently recruiting ... Read more
February 25, 2021February 25, 2021
Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Diagnosed with sickle cell disease as a 6-month-old, Tristan Lee has faced a lot of challenges over his 37 years of life. But from a ... Read more
February 23, 2021February 23, 2021
Study Identifies Genetic Risk, Protective Factors for Late-onset MG in Italy

A specific haplotype — or genetic signature inherited from one parent — was identified as a risk factor for the development of generalized late-onset myasthenia ... Read more
February 22, 2021February 22, 2021
Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1, will feature panel discussions, patient stories, research ... Read more

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September 28, 2017September 28, 2017

Women with Myasthenia Gravis Report Lower Quality of Life than Male MG Patients, Study Finds

News

Women with myasthenia gravis (MG) have a poorer quality of life than male patients. That’s the conclusion of a study named “Best Abstract Award” winner at the 2017 American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) Annual Meeting in Phoenix. Specifically, the ... Read more

Updates

MG Patients Should Be Priority for COVID-19 Vaccine, Report Says, Citing Risks

Generalized MG Patients Needed for UCB’s Global Rozanolixizumab Trial

Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Study Identifies Genetic Risk, Protective Factors for Late-onset MG in Italy

Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Subscribe to our mailing list

MG Patients Should Be Priority for COVID-19 Vaccine, Report Says, Citing Risks

Generalized MG Patients Needed for UCB’s Global Rozanolixizumab Trial

Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Study Identifies Genetic Risk, Protective Factors for Late-onset MG in Italy

Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Certain Immune Cells May Be Biomarker for MG Severity

MG Patients Have Greater Risk of Other Cancers, Registry Analysis Finds

NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

Horizon Acquires Viela, Will Develop Inebilizumab for MG Symptoms

High AChR Autoantibodies Linked to MG Risk After Thymectomy

MG Study: Total Joint Surgery Increases Risk of Complications

COVID-19 Vaccines Pose Little Risk to Rare Disease Patients, FDA, CDC Say

NORD Launches Financial Assistance Programs for MG Patients in US

NORD’s Caregiver Respite Program Continues Through Pandemic

Highly Sensitive Test Detects MG in Patient After COVID-19 Diagnosis

Low Frequency of Certain Immune Cells May Help Identify MG

Argenx Files for FDA Approval of Efgartigimod for Generalized MG

NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

Rituximab-Plasma Exchange Combo Reduced MG Severity

Less Need Found for Immunosuppressants in gMG After Soliris

MG Can Develop in Certain Blood Cancer Patients, Study Suggests

Thymus-related Cells Persist After Thymectomy in MG, Study Finds

AstraZeneca Set to Acquire Alexion Pharmaceuticals in 2021

Trusted Sources May Help Ease COVID-19-related Anxiety in MG Patients, Survey Reveals

Ice Pack Test Helps Diagnose Ocular MG, Case Report Finds

MDA Wants Neuromuscular Disease Patients to Have Early Access to COVID-19 Vaccine

International Experts Update, Expand MG Management Guidelines

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

Women with Myasthenia Gravis Report Lower Quality of Life than Male MG Patients, Study Finds