Discussion
I was shocked when I learned recently that my twin brother, Aaron, had suddenly become lactose intolerant at age 50. He was diagnosed after becoming violently ill from adding cheese to a beef empanada. It…
News & Perspectives
Discussion
Discussion
People have always searched for explanations when confronted with suffering that feels arbitrary or unjust. Before modern medicine, illness was blamed on gods, fate, moral failure, or contagion of the soul. In “The Plague,”…
Discussion
I was recently asked if I choose to protect my loved ones from the reality of my myasthenia gravis (MG) by hiding certain parts of the disease so they won’t worry. The question made…
Discussion
About half of people with myasthenia gravis (MG) experience symptoms of urinary incontinence, while about one-third have signs of an overactive bladder, with an urgent need to urinate. That’s according to a recent study…
Discussion
Some people with well-controlled myasthenia gravis (MG) may be able to stop azathioprine or mycophenolate mofetil after a prolonged period of stable disease, though relapse remains possible, a small single-center real-world study suggests.
Discussion
Thymectomy, the surgical removal of the thymus, may be an effective therapeutic option for people with late-onset myasthenia gravis (LOMG) without increasing the risk of surgical complications. That’s according to a study in…
Discussion
This week was jam-packed with appointments. When it came time to sit down and write or edit something worthy of y’all, my brain gave me the big ol’ middle finger for multiple days in a…
Discussion
As I chatted recently with my twin brother, Aaron, on a video call, I noticed he was sipping a smoothie. This was very odd to me. Aaron is a serious fitness nut,…
Community Videos
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
Mark Harrington talks about the frustration of MG fatigue and the freedom that came when he learned to slow down. With support from friends and mindful routines, he discovered how rest could become a form…
Joe Enders reflects on his daughter Jodi’s MG diagnosis, her independence, and the challenges of balancing support with giving space. He discusses the role of family and support groups in navigating remission, anxiety, and the…
Chloe Wigg shares her experience living with myasthenia gravis (MG), from facing isolation and setbacks in her art to creating the exhibition OMG! She reflects on resilience, the power of community, and how storytelling through…
Charlotte, a cardiology nurse living with myasthenia gravis (MG), shares how her diagnosis shaped her career and perspective on care. She reflects on the slow onset of symptoms, the challenges of nursing school, and the…
Yvette Bernal shares her journey with myasthenia gravis (MG), from the fear of early symptoms and ICU stays to navigating the realities of motherhood while managing a chronic illness. She reflects on honesty, connection, and…
Kristina Kelly shares her journey with seronegative myasthenia gravis, from years of medical gaslighting to becoming a certified patient advocate. She reflects on self-trust, persistence, and the strength it takes to speak up and be…
Perspectives
-
Discussion
-
Discussion
-
Discussion
-
Discussion
-
Discussion
-
Discussion
Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
Treatment
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.