News Rituxan Lessens Disease Severity in Myasthenia Gravis Irrespective of Type of Autoantibodies, Study Reports

Columns, Positively MG - a Column by Megan Hunter My Body and Mind Are Exhausted Following Chemotherapy

News FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar

News Fewer Plasma Exchange Treatments, Poorer Kidney Health Increase Risk for MG Relapses, Study Suggests

News With Post-Brexit Move to Amsterdam Complete, EMA Renews Rare Disease Focus

News Antibody Status Predicts Remission in Juvenile Myasthenia Gravis, Study Suggests

Columns, Positively MG - a Column by Megan Hunter Hospital Smells Trigger Deep Memories of Past Treatments

News MG Treatments Should Consider Patients’ Elevated Risk Of Serious Infections, Study Suggests

News Rare Lymphoma Found in Man with Myasthenia Gravis, Case Study Reports

Columns, Positively MG - a Column by Megan Hunter Looking Back at My Metaphorical Mountain

News Anticholinergic Drugs Could Be Safely Used for ‘Death Rattle’ Breathing in MG, Case Report Suggests

News Probiotics May Have Therapeutic Effect on Myasthenia Gravis Symptoms, Rat Study Suggests

Columns, Positively MG - a Column by Megan Hunter Understanding Our MG Challenges: What We Want You to Know

News Scientists Create 3-D Model to Study Neuromuscular Disorders, Including Myasthenia Gravis

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns A Small Thing that Brings Me Joy

News Variations in Immune System Gene Linked to Late-onset MG Risk, Meta-analysis Suggests

Columns, Positively MG - a Column by Megan Hunter You’ve Received a Myasthenia Gravis Diagnosis — Now What?

News Meta-Analysis Identifies Risk Factors for Post-Thymectomy Myasthenia Crisis

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns Myasthenia Gravis Helped Me to Become a Better Healthcare Professional

Columns, Positively MG - a Column by Megan Hunter Medical PTSD Is a Reality for Many of Us Living with a Rare Disease

News Activation of Natural Killer Cells May Help Control MG, Rat Study Suggests

News Side Effects of MG Medications Highlight Need for More Tolerable Treatment Options, Study Suggests

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns I Found a Neurologist Who Gives Me Hope

News Treatments Promoting AChR Clusters May Be New Therapeutic Approach in MuSK-MG

News Vaccine-preventable Infections, Certain Medications Linked to MG Crises

News Certain Antibodies Increase Risk of Ocular MG Progressing to Generalized Disease, Study Finds

News Late-onset MG Found Primarily in Men, Responds Well to Prednisone With Azathioprine, Study Finds

News HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases

News MG Complicated by Thymus Tumor and Immunodeficiency Should be Treated with Caution, Case Report Warns

News Cyclophosphamide May Be Low-cost Option for Refractory Patients, Study Says

News Difficult-to-treat MG Affects Working Hours and Employment Status, Study Finds

Columns, Positively MG - a Column by Megan Hunter We May Have the Same Diagnosis, but We Are Vastly Different

News MS Medication Shows Promise in Treating Refractory Myasthenia Gravis, Small Study Says

News Rare Disease Film Festival Highlights Patient and Researcher Unity

News Amneal Partners with Kashiv BioSciences to Develop Extended-Release Pyridostigmine for MG Treatment

News First Clinical Trial of CAR-T Therapy for Myasthenia Gravis, Descartes-08, Enrolling at Miami Site

News Certain Risk Factors May Make Patients with Thymomas More Susceptible to MG, Study Reports

News Children with Ocular MG Younger Than Those with Generalized MG and Respond Well to Treatment, Study Says

Columns, Positively MG - a Column by Megan Hunter A Recent Medication Lapse Has Refocused My Attention on Self-care

News Ocular MG Patients More Likely to Experience Remission if They Undergo Thymectomy Before Their Disease Generalizes, Study Says

News NIH Awards $7.8M for Rare Disease Network to Advance Clinical Research in MG

News MG Outcome Measures Effectively Reflect Rapid Improvements After Plasma Exchange, Study Shows

Columns, Positively MG - a Column by Megan Hunter I Was Honored to Receive an Award for My Rare Disease Advocacy

News UCB Buys Ra Pharma, Adding Zilucoplan to Its MG Pipeline

News NIH Grants $7.8M to Support Launch of Rare Disease Network for Myasthenia Gravis

News First Patient Dosed in Phase 3 Trial of Zilucoplan, Ra Pharma Announces

News Certain Medications and Smoking Cessation Can Protect Ocular MG From Becoming Generalized, Study Says

News NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC

News DAS Therapeutics Acquires Full Rights to GT Biopharma’s Oral Therapy GTP-004

Columns, Positively MG - a Column by Megan Hunter Reassessing What’s Important After Relapse

News Long-Term Use of Gabapentin May Trigger MG Exacerbations, Case Report Says

News Diabetes Drug Metformin Reduces Clinical Severity of Myasthenia Gravis in Animal Study

News Recording Eye Movements May Help Diagnose MG Earlier, Study Suggests

News FDA Grants Orphan Drug Status to Ra Pharma’s Zilucoplan as Potential MG Treatment

News MG Metabolic Profile May be Used as Diagnostic, Prognostic Biomarker, Study Says

News ‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases

News At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing

News Juvenile MG Should be Considered When Diagnosing Children with Ocular Abnormalities, Case Report Says

News In China, Patients with Rare Diseases Struggle for Affordable Therapies, Study Says

News Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

News Patterns of Muscle Weakness in MG Patients Tend to Shift, Study Finds

News Similar Clinical Characteristics With MG Onset Before or After Thymectomy, Study Shows

News Soliris Has Durable Efficacy in Japanese, Caucasian gMG Patients Alike, Extension Data Show

News Gut Microbes, Metabolic Changes May Provide Accurate MG Biomarker

News Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

News Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

News Nerve Response Tests May Drive Therapies Given to People with Milder Disease, Study Suggests

News Prompt MG Treatment May Help Restore Reproductive Health After Premature Ovarian Failure, Case Report Suggests

News High Carbon Dioxide Levels in Blood at Myasthenic Crisis Onset Linked to Increased Mortality Risk, Study Suggests

Columns, Positively MG - a Column by Megan Hunter Exhaustion Means Being More Than Just a Little Bit Tired

News Certain Cholesterol-Lowering Statins May Increase Risk of MG, WHO-based Study Suggests

News European Initiative Targets Diagnosis, Treatment of Rare Diseases

News Ra Pharma and Camurus Agree to Develop Extended-release Formulation of Zilucoplan

News Refractory MG Poses Burden to U.S. Healthcare System, Needs Better Treatments, Study Finds

News High PD-L1 Production in Muscle Cells of MG Patients May Play Role in Autoimmunity, Study Says

News Myasthenia Gravis, MS May Share Common Autoimmune Responses, Case Report Suggests

News World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

News Opdivo Seen to Help Woman Struggling with Cancer, Whose Myasthenia Gravis Stayed in Remission for Decades

Columns, Positively MG - a Column by Megan Hunter After Seven Years of Marriage, We’re Finding Our Groove

News NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala

News RNA Molecules Targeting C5 Complement Protein May Be Effective in MG

News Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

News ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

News Early Extubation After Thymectomy Improves Outcomes, Study Suggests

News Alpha-Blockers May Help Relieve Insomnia, Anxiety in MG Patients, Case Study Suggests

Columns, Positively MG - a Column by Megan Hunter The Importance of Looking After Your Gut Health

News Differences in Gene Activity May Explain Why Some Patients Have Difficult-to-treat Eye Disease, Study Shows

News Dropouts in Placebo Groups Due to Adverse Events Are Low in MG Clinical Trials, Study Shows

Columns, Positively MG - a Column by Megan Hunter Supporting a Friend with a Rare Disease

News MG Patients Can Be Considered for Use of Immunotherapies in Cancer Cases, Study Contends

News Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

News MG Patients with Other Autoimmune Diseases Don’t Have Higher Disease Burden, Study Says

News Rituxan Leads to High Rates of Clinical Remission in MG Patients, Study Reports

News #AANAM — Soliris May Help MG Patients Lower Immunosuppressive Therapy Use, Phase 3 Data Show

News Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

Columns, Positively MG - a Column by Megan Hunter Following Stem Cell Transplant, I’m Living My Best Life

News #AANAM – Under-the-Skin Immunoglobulin Treatment Maintains Stable Disease Activity, Study Reports

Columns, Positively MG - a Column by Megan Hunter Why This Year’s Birthday Is Extra Special

News Weekly Dosing with Extended Release Zilucoplan Shows Similar Activity as Daily Dose

Columns, Positively MG - a Column by Megan Hunter Why Ask, ‘Why Me?’ Don’t Play The Blame Game with Yourself