Updates

May 23, 2019May 23, 2019
Rituxan Leads to High Rates of Clinical Remission in MG Patients, Study Reports

Treatment with Rituxan (rituximab) led to high rates of clinical remission without posing significant side effects in a group of patients with myasthenia gravis (MG), ... Read more
May 21, 2019May 21, 2019
#AANAM — Soliris May Help MG Patients Lower Immunosuppressive Therapy Use, Phase 3 Data Show

A significant proportion of patients with generalized myasthenia gravis (MG) treated with Alexion’s Soliris (eculizumab) were able to either stop or reduce ... Read more
May 16, 2019May 16, 2019
Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

With 250 rare diseases newly identified every year, scientists can barely keep up — even as the healthcare system fails millions of Americans whose ... Read more
May 15, 2019May 13, 2019
Following Stem Cell Transplant, I’m Living My Best Life

When I underwent a stem cell transplant at the beginning of the year, I was given a 40 percent chance of survival — not ... Read more
May 9, 2019May 9, 2019
#AANAM – Under-the-Skin Immunoglobulin Treatment Maintains Stable Disease Activity, Study Reports

Treatment with subcutaneous immunoglobulin (SCIg) — a new formulation given as an under-the-skin injection — enabled people with myasthenia gravis (MG) to maintain stable ... Read more

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News

Rituxan Leads to High Rates of Clinical Remission in MG Patients, Study Reports
May 23, 2019May 23, 2019
Treatment with Rituxan (rituximab) led to high rates of clinical remission without posing significant ...
News

#AANAM — Soliris May Help MG Patients Lower Immunosuppressive Therapy Use, Phase 3 Data Show
May 21, 2019May 21, 2019
A significant proportion of patients with generalized myasthenia gravis (MG) treated with Alexion’s Soliris ...
News

Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns
May 16, 2019May 16, 2019
With 250 rare diseases newly identified every year, scientists can barely keep up — ...
Columns, Positively MG - a Column by Megan Hunter

Following Stem Cell Transplant, I’m Living My Best Life
May 15, 2019May 13, 2019
When I underwent a stem cell transplant at the beginning of the year, I ...
News

#AANAM – Under-the-Skin Immunoglobulin Treatment Maintains Stable Disease Activity, Study Reports
May 9, 2019May 9, 2019
Treatment with subcutaneous immunoglobulin (SCIg) — a new formulation given as an under-the-skin injection ...
Columns, Positively MG - a Column by Megan Hunter

Why This Year’s Birthday Is Extra Special
May 8, 2019May 6, 2019
It is my birthday this month, and I could not be more excited. I ...

Tell Me Why We Need to Talk About Organ Donation
April 17, 2019April 16, 2019
Recently, I attended an event that reminded me of the importance of speaking up, ...
Certain High-Dose Combination Therapies May Increase Chance of Muscle Cramps in MG Patients, Study Suggests
April 17, 2019April 18, 2019
A combination therapy of high-dose cholinesterase inhibitors, such as Mestinon, with calcineurin inhibitors, such ...
Computational Model Identifies Candidate Therapies Based on MG Risk Genes
April 16, 2019April 16, 2019
Ra Pharma Set to Launch Phase 3 Trial Testing Zilucoplan on Patients with Generalized Myasthenia Gravis
April 11, 2019April 11, 2019
With Rare Disease, You Must Be Your Own Advocate
April 10, 2019April 9, 2019
Robotic Thymectomy May Decrease Need for Steroid Therapy in Older MG Patients
April 9, 2019April 9, 2019

Soliris Significantly Reduces Fatigue Perceived by MG Patients, Study Finds
April 4, 2019April 4, 2019
Alexion Pharmaceuticals‘ Soliris (eculizumab) significantly reduces fatigue perceived by patients with generalized myasthenia gravis, a ...
We Have More Similarities Than Differences
April 3, 2019April 2, 2019
MDA Conference Bringing Neuromuscular Disease Experts to Orlando to Share ‘New Era’ in Treatment, Research
April 2, 2019April 2, 2019
I Shouldn’t Doubt the Validity of My Illness, But I Still Do
March 29, 2019March 28, 2019

MG Should Be Suspected in Patients with Voice Alterations, Case Report Says
March 28, 2019March 28, 2019
A recent report described a rare case of a woman presenting with a sudden ...
Essential Items I Pack for a Night Out
March 27, 2019March 25, 2019
Soliris May Be Best Immunotherapy for MG Patients, Study Suggests
March 26, 2019March 26, 2019

News

Prograf May Be Effective Medication for Myasthenia Gravis, Analysis Shows
March 21, 2019March 21, 2019
Prograf (Tacrolimus) may be a beneficial treatment for people with myasthenia gravis (MG), helping reduce ...
Columns, Positively MG - a Column by Megan Hunter

Chewing My Way Through the Tough Times
March 20, 2019March 19, 2019
When I was first diagnosed with myasthenia gravis, I already was headed for a ...
News

Myasthenia Gravis Can Develop in Patients with Systemic Lupus Erythematosus, Case Study Says
March 19, 2019March 19, 2019
Although rare, myasthenia gravis can develop in patients with systemic lupus erythematosus, according to a ...
News

Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn
March 14, 2019March 14, 2019
Madeline Collin, a 24-year-old activist with Gaucher disease, worries that patients like her will ...
Columns, Positively MG - a Column by Megan Hunter

I’m Incredibly Thankful for My Support System
March 13, 2019March 12, 2019
When I received my rare chronic illness diagnosis, I felt like I was all ...
News

Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist
March 12, 2019March 12, 2019
With each new advance in medicine comes ethical dilemmas, from fertility treatments and newborn ...
A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

The Dark Horse of Depression that Followed My MG Diagnosis
March 8, 2019March 7, 2019
Editor’s Note: This column discusses the sensitive topic of suicidal ideation. The moment doctors ...
News

Women With MG Can Safely Undergo Vaginal Delivery With Use of Epidural Analgesia, Study Says
March 7, 2019March 7, 2019
Women with myasthenia gravis can safely undergo normal vaginal delivery and avoid a cesarean ...
Columns, Positively MG - a Column by Megan Hunter

Bullet Journaling and Chronic Illness Go Hand in Hand
March 6, 2019March 6, 2019
I have been housebound since my stem cell transplant and was starting to get ...

September 28, 2017September 28, 2017

Women with Myasthenia Gravis Report Lower Quality of Life than Male MG Patients, Study Finds

News

Women with myasthenia gravis (MG) have a poorer quality of life than male patients. That’s the conclusion of a study named “Best Abstract Award” winner at the 2017 American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) Annual Meeting in Phoenix. Specifically, ... Read more

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