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The National Institute for Health and Care Excellence (NICE) has recommended that Rystiggo (rozanolixizumab-noli) be covered by England’s National Health Service (NHS) and provided at low or no cost to certain adults with hard-to-treat…
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There’s a version of chronic illness people imagine: the one where you get a diagnosis, adjust a few routines, take your medications, and eventually settle into something manageable. And then there’s the real version, the…
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Chronic illness rarely announces itself with clarity. Instead, it unfolds quietly, often disguised as fatigue, stress, or temporary discomfort. My experience with myasthenia gravis (MG) began in October 2020, shortly after giving birth.
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I can proudly say I have never given up because of my condition. As a child, I kept running everywhere, despite the bruises that never seemed to disappear, and I never stopped exploring, even if…
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A thymectomy, the surgical removal of the thymus gland, was projected to improve health outcomes and lower lifetime care costs when added to prednisolone-based care for eligible adults with myasthenia gravis (MG) in…
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The Tensilon test, though no longer used in the U.S., is generally safe and can accurately identify people with myasthenia gravis (MG) versus those without the autoimmune disease, according to a large study…
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Nearly one in three people with generalized myasthenia gravis (gMG) experienced prolonged periods of few or no symptoms while on treatment with Imaavy (nipocalimab-aahu), according to more…
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There’s a part of myasthenia gravis (MG) that people rarely talk about, and it’s not the symptoms, the appointments, or the medications. It’s the sheer weight of having to advocate for yourself over and…
At the 2026 MGFA National Patient Conference, patient advocate Melissa Wohlust shares her experience navigating the years without a diagnosis and the importance of advocating for expert…
At the 2026 MGFA National Patient Conference, caregiver Myron Truex shares why having a bug-out bag and being prepared can support care for myasthenia gravis. He highlights…
At the 2026 MGFA National Patient Conference, Anna Richards, head of commercial at Vitaccess, discusses how the Vitaccess Real MG Registry brings together patient experiences and clinical data to better reflect real world…
Marissa Humayun shares how she adjusted her favorite hobbies, including walking and gold, after an MG diagnosis, finding new ways to stay active while honoring her limits.
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
Mark Harrington talks about the frustration of MG fatigue and the freedom that came when he learned to slow down. With support from friends and mindful routines, he discovered how rest could become a form…
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Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.
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