News Amneal Partners with Kashiv BioSciences to Develop Extended-Release Pyridostigmine for MG Treatment

News First Clinical Trial of CAR-T Therapy for Myasthenia Gravis, Descartes-08, Enrolling at Miami Site

News Certain Risk Factors May Make Patients with Thymomas More Susceptible to MG, Study Reports

News Children with Ocular MG Younger Than Those with Generalized MG and Respond Well to Treatment, Study Says

Columns, Positively MG - a Column by Megan Hunter A Recent Medication Lapse Has Refocused My Attention on Self-care

News Ocular MG Patients More Likely to Experience Remission if They Undergo Thymectomy Before Their Disease Generalizes, Study Says

News NIH Awards $7.8M for Rare Disease Network to Advance Clinical Research in MG

News MG Outcome Measures Effectively Reflect Rapid Improvements After Plasma Exchange, Study Shows

Columns, Positively MG - a Column by Megan Hunter I Was Honored to Receive an Award for My Rare Disease Advocacy

News UCB Buys Ra Pharma, Adding Zilucoplan to Its MG Pipeline

News NIH Grants $7.8M to Support Launch of Rare Disease Network for Myasthenia Gravis

News First Patient Dosed in Phase 3 Trial of Zilucoplan, Ra Pharma Announces

News Certain Medications and Smoking Cessation Can Protect Ocular MG From Becoming Generalized, Study Says

News NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC

News DAS Therapeutics Acquires Full Rights to GT Biopharma’s Oral Therapy GTP-004

Columns, Positively MG - a Column by Megan Hunter Reassessing What’s Important After Relapse

News Long-Term Use of Gabapentin May Trigger MG Exacerbations, Case Report Says

News Diabetes Drug Metformin Reduces Clinical Severity of Myasthenia Gravis in Animal Study

News Recording Eye Movements May Help Diagnose MG Earlier, Study Suggests

News FDA Grants Orphan Drug Status to Ra Pharma’s Zilucoplan as Potential MG Treatment

News MG Metabolic Profile May be Used as Diagnostic, Prognostic Biomarker, Study Says

News ‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases

News At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing

News Juvenile MG Should be Considered When Diagnosing Children with Ocular Abnormalities, Case Report Says

News In China, Patients with Rare Diseases Struggle for Affordable Therapies, Study Says

News Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

News Patterns of Muscle Weakness in MG Patients Tend to Shift, Study Finds

News Similar Clinical Characteristics With MG Onset Before or After Thymectomy, Study Shows

News Soliris Has Durable Efficacy in Japanese, Caucasian gMG Patients Alike, Extension Data Show

News Gut Microbes, Metabolic Changes May Provide Accurate MG Biomarker

News Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

News Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

News Nerve Response Tests May Drive Therapies Given to People with Milder Disease, Study Suggests

News Prompt MG Treatment May Help Restore Reproductive Health After Premature Ovarian Failure, Case Report Suggests

News High Carbon Dioxide Levels in Blood at Myasthenic Crisis Onset Linked to Increased Mortality Risk, Study Suggests

Columns, Positively MG - a Column by Megan Hunter Exhaustion Means Being More Than Just a Little Bit Tired

News Certain Cholesterol-Lowering Statins May Increase Risk of MG, WHO-based Study Suggests

News European Initiative Targets Diagnosis, Treatment of Rare Diseases

News Ra Pharma and Camurus Agree to Develop Extended-release Formulation of Zilucoplan

News Refractory MG Poses Burden to U.S. Healthcare System, Needs Better Treatments, Study Finds

News High PD-L1 Production in Muscle Cells of MG Patients May Play Role in Autoimmunity, Study Says

News Myasthenia Gravis, MS May Share Common Autoimmune Responses, Case Report Suggests

News World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

News Opdivo Seen to Help Woman Struggling with Cancer, Whose Myasthenia Gravis Stayed in Remission for Decades

Columns, Positively MG - a Column by Megan Hunter After Seven Years of Marriage, We’re Finding Our Groove

News NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala

News RNA Molecules Targeting C5 Complement Protein May Be Effective in MG

News Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

News ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

News Early Extubation After Thymectomy Improves Outcomes, Study Suggests

News Alpha-Blockers May Help Relieve Insomnia, Anxiety in MG Patients, Case Study Suggests

Columns, Positively MG - a Column by Megan Hunter The Importance of Looking After Your Gut Health

News Differences in Gene Activity May Explain Why Some Patients Have Difficult-to-treat Eye Disease, Study Shows

News Dropouts in Placebo Groups Due to Adverse Events Are Low in MG Clinical Trials, Study Shows

Columns, Positively MG - a Column by Megan Hunter Supporting a Friend with a Rare Disease

News MG Patients Can Be Considered for Use of Immunotherapies in Cancer Cases, Study Contends

News Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

News MG Patients with Other Autoimmune Diseases Don’t Have Higher Disease Burden, Study Says

News Rituxan Leads to High Rates of Clinical Remission in MG Patients, Study Reports

News #AANAM — Soliris May Help MG Patients Lower Immunosuppressive Therapy Use, Phase 3 Data Show

News Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

Columns, Positively MG - a Column by Megan Hunter Following Stem Cell Transplant, I’m Living My Best Life

News #AANAM – Under-the-Skin Immunoglobulin Treatment Maintains Stable Disease Activity, Study Reports

Columns, Positively MG - a Column by Megan Hunter Why This Year’s Birthday Is Extra Special

News Weekly Dosing with Extended Release Zilucoplan Shows Similar Activity as Daily Dose

Columns, Positively MG - a Column by Megan Hunter Why Ask, ‘Why Me?’ Don’t Play The Blame Game with Yourself

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns Life with Myasthenia Gravis Has Taught Me to Find Joy in the Little Things

News Nonprofit Group Works to Raise Rare Disease Awareness in India

News Other Diseases and Treatment Reactions Common in Myasthenia Gravis Patients, Study in India Finds

Columns, Positively MG - a Column by Megan Hunter Tell Me Why We Need to Talk About Organ Donation

News Certain High-Dose Combination Therapies May Increase Chance of Muscle Cramps in MG Patients, Study Suggests

News Computational Model Identifies Candidate Therapies Based on MG Risk Genes

News Ra Pharma Set to Launch Phase 3 Trial Testing Zilucoplan on Patients with Generalized Myasthenia Gravis

Columns, Positively MG - a Column by Megan Hunter With Rare Disease, You Must Be Your Own Advocate

News Robotic Thymectomy May Decrease Need for Steroid Therapy in Older MG Patients

News Soliris Significantly Reduces Fatigue Perceived by MG Patients, Study Finds

Columns, Positively MG - a Column by Megan Hunter We Have More Similarities Than Differences

News MDA Conference Bringing Neuromuscular Disease Experts to Orlando to Share ‘New Era’ in Treatment, Research

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns I Shouldn’t Doubt the Validity of My Illness, But I Still Do

News MG Should Be Suspected in Patients with Voice Alterations, Case Report Says

Columns, Positively MG - a Column by Megan Hunter Essential Items I Pack for a Night Out

News Soliris May Be Best Immunotherapy for MG Patients, Study Suggests

News Prograf May Be Effective Medication for Myasthenia Gravis, Analysis Shows

Columns, Positively MG - a Column by Megan Hunter Chewing My Way Through the Tough Times

News Myasthenia Gravis Can Develop in Patients with Systemic Lupus Erythematosus, Case Study Says

News Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

Columns, Positively MG - a Column by Megan Hunter I’m Incredibly Thankful for My Support System

News Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns The Dark Horse of Depression that Followed My MG Diagnosis

News Women With MG Can Safely Undergo Vaginal Delivery With Use of Epidural Analgesia, Study Says

Columns, Positively MG - a Column by Megan Hunter Bullet Journaling and Chronic Illness Go Hand in Hand

News NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

News Most MG Patients, Especially Men and Patients With Late-onset Disease, Respond to Plasma Exchange

Columns, Positively MG - a Column by Megan Hunter My Favorite Film Teaches Me to Choose Kindness

News WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns Finding Peace in My Friendship with Linda, Who Has Cystic Fibrosis

News Vienna to Host RARE2019 Meeting on Rare Diseases

Columns, Positively MG - a Column by Megan Hunter ‘Tired’ Is an Understatement for People with Chronic Illness

News Soliris Shows Sustained Efficacy and Safety for gMG in Extension Study

Columns, Positively MG - a Column by Megan Hunter Chemotherapy Is Not Just for Cancer