Updates

January 15, 2019January 15, 2019
MG-ADL Symptom Scale Would Benefit from Questions on Generalized Weakness, Study Says

MG-ADL, a patient-reported scale commonly used to address symptom severity in myasthenia gravis (MG), has a poor sensitivity for measuring generalized muscle weakness. Researchers ... Read more
January 11, 2019January 9, 2019
A Day in the Life of a Person with MG

What is the first thing you do when you wake up? You might have answered, “I take a shower” or “I drink coffee.” However, the ... Read more
January 10, 2019January 10, 2019
Phase 2b Trial Finds Firdapse Effective, Safe in Adults with MuSK-MG

Treatment of adult MuSK-antibody positive myasthenia gravis (MuSK-MG) patients with the investigational therapy Firdapse (amifampridine phosphate) improved muscle strength, eased fatigue, and was safe, according to full ... Read more
January 9, 2019January 9, 2019
Catching Up as Stem Cell Transplant Becomes a Reality

It has been a while since I have written a column. So much has been happening, but at long last, I am able to ... Read more
January 8, 2019January 8, 2019
Researchers Develop New Test for Rapid, Less-costly Test to Detect Anti-AChR Antibodies in Myasthenia Gravis Patients

A new test offers a rapid, sensitive and inexpensive way to detect anti-acetylcholine receptor (AChR) antibodies in patients with myasthenia gravis (MG). The study ... Read more

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News

MG-ADL Symptom Scale Would Benefit from Questions on Generalized Weakness, Study Says
January 15, 2019January 15, 2019
MG-ADL, a patient-reported scale commonly used to address symptom severity in myasthenia gravis (MG), ...
A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

A Day in the Life of a Person with MG
January 11, 2019January 9, 2019
What is the first thing you do when you wake up? You might have ...
News

Phase 2b Trial Finds Firdapse Effective, Safe in Adults with MuSK-MG
January 10, 2019January 10, 2019
Treatment of adult MuSK-antibody positive myasthenia gravis (MuSK-MG) patients with the investigational therapy Firdapse (amifampridine phosphate) improved ...
Columns, Positively MG - a Column by Megan Hunter

Catching Up as Stem Cell Transplant Becomes a Reality
January 9, 2019January 9, 2019
It has been a while since I have written a column. So much has ...
News

Researchers Develop New Test for Rapid, Less-costly Test to Detect Anti-AChR Antibodies in Myasthenia Gravis Patients
January 8, 2019January 8, 2019
A new test offers a rapid, sensitive and inexpensive way to detect anti-acetylcholine receptor ...
A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

Why I Am Not ‘Just Tired’
January 4, 2019January 3, 2019
Sleeping is necessary to keep your body functional. Once deprived of it, you learn ...

Ra Pharma’s Zilucoplan Shows Promise as Self-administered Myasthenia Gravis Therapy
December 13, 2018December 13, 2018
Topline results from a Phase 2 trial of Ra Pharma’s zilucoplan (previously known as RA101495), a ...
Myasthenia Gravis Taught Me Not to Judge So Harshly
December 7, 2018December 6, 2018
If I have learned one thing from life, it is that people always pass ...
Myasthenia Gravis Patients’ Gut Microbiome Less Diverse, More Pro-Inflammatory, Study Shows
December 7, 2018December 11, 2018
Prograf Has Potential to Ease Inflammatory Immune Response in MuSK MG Patients, Study Finds
December 4, 2018December 4, 2018
Managing University Life with MG
November 30, 2018November 28, 2018
Gender Differences in MG Onset Shift After Age 40, Study Reports
November 27, 2018November 27, 2018

Shedding Expectations While Living with Myasthenia Gravis
November 26, 2018November 20, 2018
In the years since my diagnosis of a rare, incurable disease, I have learned ...
Why I Am Not ‘Better’
November 21, 2018November 19, 2018
Rituximab Seen to Stop Myasthenia Gravis-like Symptoms Linked to Immune Therapies in Cancer Patient
November 20, 2018November 20, 2018
Finding Grace When MG Changes Our Plans
November 19, 2018November 16, 2018

Exercise with Myasthenia Gravis Is a True Test of Character
November 16, 2018November 15, 2018
Few activities send endorphins rushing through my body like jogging. Exercise has many benefits, ...
MicroRNA May Be New Therapeutic Target for Myasthenia Gravis, Mouse Study Shows
November 13, 2018November 13, 2018
Answering the Invitation to Simply ‘Be’
November 12, 2018November 9, 2018

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

Conquering Anxiety and Myasthenia Gravis Together
November 9, 2018November 7, 2018
Struggling with physical and mental health is challenging. In my case, myasthenia gravis shined ...
News

Variations in Dendritic Cell Subtypes Could Predict Treatment Response in MG Patients, Study Suggests
November 8, 2018November 8, 2018
Changes in the ratio of dendritic cells (DCs), a subtype of immune cells, may ...
Columns, Positively MG - a Column by Megan Hunter

An Embarrassing Moment Reminds Me How Lucky I Am
November 7, 2018November 6, 2018
Lately, I have been pushing myself beyond my limits. While I’m aware of this, ...
News

Women with MG Report More Frequent Intolerable Adverse Events on Prednisone, Study Finds
November 6, 2018November 6, 2018
Intolerable adverse events related to the use of prednisone, typically used to treat myasthenia ...
Columns, Unmasking Myasthenia Gravis - a Column by Rebekah Dorr

When Myasthenia Gravis Changes Your Sense of Purpose
November 5, 2018November 5, 2018
Having a sense of purpose is innate to the human experience. It gives us ...
A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

Emergency Room Experiences with Myasthenia Gravis are Traumatic
November 2, 2018November 1, 2018
The emergency room has never been a particularly amicable place. It is an assembly ...
Columns, Positively MG - a Column by Megan Hunter

I’m Living My Best Life
October 31, 2018October 29, 2018
When you live each day unsure if it will be your last. If you ...
News

#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach
October 30, 2018
With the U.S. midterm elections now less than two weeks away, patient advocacy groups ...
News

Long-term RMET Found to Improve Patients’ Respiratory Endurance, Overall Health
October 30, 2018October 30, 2018
Long-term respiratory muscle endurance training (RMET) is a safe, feasible therapy that, in combination ...

September 28, 2017September 28, 2017

Women with Myasthenia Gravis Report Lower Quality of Life than Male MG Patients, Study Finds

News

Women with myasthenia gravis (MG) have a poorer quality of life than male patients. That’s the conclusion of a study named “Best Abstract Award” winner at the 2017 American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) Annual Meeting in Phoenix. Specifically, ... Read more

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