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Antibodies against the muscle-specific kinase (MuSK) protein may help identify a generally more severe form of myasthenia gravis (MG), one often marked by problems with speech and swallowing and a need for more intensive…
In recognition of Myasthenia Gravis Awareness Month in June, the MG Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by MG, written in their own words. Follow us on Facebook, Instagram, or X for more stories like this, using the hashtag #MGAwarenessMonth, or…
News & Perspectives
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Before I was diagnosed with myasthenia gravis (MG) and neurologists started timing how long I could hold my arms in the air, I had another name altogether. To my family, I was never really…
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UCB’s Rystiggo (rozanolixizumab-noli) and Zilbrysq (zilucoplan) have gained public reimbursement coverage across multiple Canadian provinces for adults with generalized myasthenia gravis (gMG). Product listing agreements are now in place in British Columbia,…
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There’s a phrase I hear more often than I’d like: “Must be nice.” Must be nice to sleep that long, to nap whenever I want, to not have to get up for work. Yeah, it’s…
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“You cannot find peace by avoiding life.” — From the 2002 film “The Hours” Peace of mind is a choice one makes to deal with life’s adversities. It’s a lesson I’m still learning myself. Over…
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I think that one of the hardest parts of living with an invisible disability is having to reconsider one’s career. From 2017 to 2026, I explored almost every work model imaginable: freelance, remote, hybrid, and…
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Vyvgart (efgartigimod alfa-fcab) improves muscle strength and daily functioning in adults with generalized myasthenia gravis (gMG) who are positive for self-reactive antibodies against the acetylcholine receptor (AChR) protein, regardless of patient and disease…
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“And not only so, but we glory in tribulations also: knowing that tribulation worketh patience; And patience, experience; and experience, hope.” The apostle Paul was not writing about myasthenia gravis (MG) with…
Community Videos
Artist and muralist Sophie Groenstein shares how living with MG reshaped her relationship with art, movement, self-expression, and personal identity. Print This…
At the 2026 MGFA National Patient Conference, patient advocate Melissa Wohlust shares her experience navigating the years without a diagnosis and the importance of advocating for expert…
At the 2026 MGFA National Patient Conference, caregiver Myron Truex shares why having a bug-out bag and being prepared can support care for myasthenia gravis. He highlights…
At the 2026 MGFA National Patient Conference, Anna Richards, head of commercial at Vitaccess, discusses how the Vitaccess Real MG Registry brings together patient experiences and clinical data to better reflect real world…
Marissa Humayun shares how she adjusted her favorite hobbies, including walking and gold, after an MG diagnosis, finding new ways to stay active while honoring her limits.
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
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Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
Treatment
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.