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Intimacy becomes a different kind of conversation when a chronic illness like myasthenia gravis (MG) enters a relationship. Before my diagnosis, I believed closeness was mostly about desire, timing, and connection. I didn’t realize…
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We exist in a perpetual journey of personal development, always trying to become the best version of ourselves, or at least the most stable one. Yet even people who are not actively seeking happiness may…
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Robotic thymectomy — a surgical removal of the thymus gland using robotic systems — is an effective and safe treatment for people with late-onset myasthenia gravis (MG), including those who develop the rare…
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Some days it feels as if the world has slipped its moorings. Around the globe, the news is grim and relentless, and living with myasthenia gravis (MG) can intensify that sense of instability. When…
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A single course of six once-weekly infusions of Descartes-08, an investigational CAR T-cell therapy, was well tolerated and resulted in sustained clinically meaningful responses in people with generalized myasthenia gravis (gMG). That’s according…
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People with myasthenia gravis (MG) who take corticosteroids, especially at higher cumulative doses, face an increased risk of developing other health conditions, according to a study in the U.S. Patients are at risk for…
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“You will never amount to anything” and “useless” are words that were etched into my mind since I was very young. Difficulty breathing, chewing, swallowing, and speaking are just some of the symptoms I…
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Loving your body is easy advice to give when your body behaves. When it wakes up when you do, moves when you ask, and carries you through the day without protest. But when you live…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
Mark Harrington talks about the frustration of MG fatigue and the freedom that came when he learned to slow down. With support from friends and mindful routines, he discovered how rest could become a form…
Joe Enders reflects on his daughter Jodi’s MG diagnosis, her independence, and the challenges of balancing support with giving space. He discusses the role of family and support groups in navigating remission, anxiety, and the…
Chloe Wigg shares her experience living with myasthenia gravis (MG), from facing isolation and setbacks in her art to creating the exhibition OMG! She reflects on resilience, the power of community, and how storytelling through…
Charlotte, a cardiology nurse living with myasthenia gravis (MG), shares how her diagnosis shaped her career and perspective on care. She reflects on the slow onset of symptoms, the challenges of nursing school, and the…
Yvette Bernal shares her journey with myasthenia gravis (MG), from the fear of early symptoms and ICU stays to navigating the realities of motherhood while managing a chronic illness. She reflects on honesty, connection, and…
Kristina Kelly shares her journey with seronegative myasthenia gravis, from years of medical gaslighting to becoming a certified patient advocate. She reflects on self-trust, persistence, and the strength it takes to speak up and be…
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Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.
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