May 25, 2018May 23, 2018
Using Humor in the Battle Against Myasthenia Gravis
A Good Life with Bad Muscles - a Column by Retha De Wet, Columns
There are not many perks to living with myasthenia gravis, especially since it can be difficult for others to ... Read more
May 24, 2018May 24, 2018
Concentric Needle-Jitter a Reliable Method for Myasthenia Gravis Diagnosis, Study Suggests
News
Concentric needle-jitter is more accurate in diagnosing myasthenia gravis (MG) than repetitive nerve stimulation or acetylcholine receptor antibody positivity, ... Read more
May 22, 2018May 22, 2018
Successful Thymus Tumor Surgery in Myasthenia Gravis Patient with Respiratory Distress Reported in Case Study
News
Careful patient assessment and planning prior to surgery was needed to successfully remove a tumor from the thymus of ... Read more
May 18, 2018May 16, 2018
People React to the Reality You Present
A Good Life with Bad Muscles - a Column by Retha De Wet, Columns
There are few things as complicated and challenging as interpersonal relationships. The older I get, the more difficult it ... Read more
May 17, 2018May 17, 2018
MG Patients Show High Levels of Chemical Modification on CTLA-4 Gene, Study Shows
News
Patients with myasthenia gravis (MG) have higher levels of a chemical modification — known as DNA methylation — on ... Read more
May 17, 2018May 17, 2018
‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35
News
The National Organization for Rare Disorders (NORD) will celebrate the 35th anniversary of both the 1983 Orphan Drug Act ... Read more
May 17, 2018May 17, 2018
#ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say
News
The European Union isn’t doing enough to protect the 30 million or so people with rare diseases who live ... Read more
May 15, 2018May 15, 2018
Genetic Variants, Other Medications Influence Optimal Dose of Prograf in MG Patients, Study Suggests
News
The therapeutic effects of Prograf (tacrolimus) in myasthenia gravis (MG) patients are influenced not only by dosage, but also by patients’ genetic ... Read more
May 11, 2018May 10, 2018
With Myasthenia Gravis, It’s Important to Be Aware of Your Voice
A Good Life with Bad Muscles - a Column by Retha De Wet, Columns
We express ourselves in many ways: through our hairstyle, our clothing, our facial gestures, our voice, and how we ... Read more
May 8, 2018May 8, 2018
Pharmacy Benefits Company Predicts Significant Cost Hike in MG Therapy Soliris
News
Expanded use of the U.S. Food and Drug Administration-approved therapy Soliris (eculizumab) to treat myasthenia gravis (MG) could lead to ... Read more
May 4, 2018May 4, 2018
In Sickness and in Health
A Good Life with Bad Muscles - a Column by Retha De Wet, Columns
Falling in love is never quite as graceful as they make it out to be in the movies. In ... Read more
May 4, 2018May 4, 2018
#ECRD2018 – Patient Access and Collaboration Focus of Eurordis Meeting May 10-12
News
At least 800 people representing some 45 countries are soon expected to gather in Austria’s capital city, Vienna, for ... Read more

May 25, 2018May 23, 2018

Using Humor in the Battle Against Myasthenia Gravis

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

There are not many perks to living with myasthenia gravis, especially since it can be difficult for others to understand the fatigability and variation in our symptoms. However, there ... Read more

May 24, 2018May 24, 2018

Concentric Needle-Jitter a Reliable Method for Myasthenia Gravis Diagnosis, Study Suggests

News

Concentric needle-jitter is more accurate in diagnosing myasthenia gravis (MG) than repetitive nerve stimulation or acetylcholine receptor antibody positivity, a study reports. The study, “Repetitive nerve stimulation and jitter ... Read more

May 22, 2018May 22, 2018

Successful Thymus Tumor Surgery in Myasthenia Gravis Patient with Respiratory Distress Reported in Case Study

News

Careful patient assessment and planning prior to surgery was needed to successfully remove a tumor from the thymus of a myasthenia gravis patient with a recent history of adult respiratory ... Read more

May 18, 2018May 16, 2018

People React to the Reality You Present

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

There are few things as complicated and challenging as interpersonal relationships. The older I get, the more difficult it is to stay in touch with those I once considered ... Read more

May 17, 2018May 17, 2018

MG Patients Show High Levels of Chemical Modification on CTLA-4 Gene, Study Shows

News

Patients with myasthenia gravis (MG) have higher levels of a chemical modification — known as DNA methylation — on the CTLA-4 gene, which is linked to higher levels of ... Read more

May 17, 2018May 17, 2018

‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35

News

The National Organization for Rare Disorders (NORD) will celebrate the 35th anniversary of both the 1983 Orphan Drug Act and NORD’s founding at a dinner tonight in Washington, D.C. ... Read more

May 17, 2018May 17, 2018

#ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say

News

The European Union isn’t doing enough to protect the 30 million or so people with rare diseases who live in its 28 member countries, officials meeting last week in ... Read more

May 15, 2018May 15, 2018

Genetic Variants, Other Medications Influence Optimal Dose of Prograf in MG Patients, Study Suggests

News

The therapeutic effects of Prograf (tacrolimus) in myasthenia gravis (MG) patients are influenced not only by dosage, but also by patients’ genetic profiles and other medications they may be taking for the ... Read more

May 11, 2018May 10, 2018

With Myasthenia Gravis, It’s Important to Be Aware of Your Voice

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

We express ourselves in many ways: through our hairstyle, our clothing, our facial gestures, our voice, and how we choose to articulate our thoughts. One symptom of myasthenia gravis ... Read more

May 8, 2018May 8, 2018

Pharmacy Benefits Company Predicts Significant Cost Hike in MG Therapy Soliris

News

Expanded use of the U.S. Food and Drug Administration-approved therapy Soliris (eculizumab) to treat myasthenia gravis (MG) could lead to a significant wholesale cost increase in 2018 and beyond, according to a ... Read more