In recognition of Myasthenia Gravis Awareness Month in June, the Myasthenia Gravis Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by myasthenia gravis, written in their own words. Follow us on Facebook, Instagram, or X for more stories like this, using the hashtag #MGAwarenessMonth,…
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The Muscular Dystrophy Association (MDA) is hosting a series of four free, in-person educational events across the U.S. to support families affected by neuromuscular diseases, including myasthenia gravis (MG). Part of the 2026…
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On Memorial Day, my sister posted a photograph on Facebook that made me stop and think. There was my father, a World War II Navy veteran, standing in front of our town’s monument to all…
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Treatments that suppress or alter immune system activity may help some children and adolescents with juvenile myasthenia gravis (JMG), but more studies are needed to help define the potential benefits and determine best practices.
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June is Myasthenia Gravis Awareness Month, and advocates around the world are planning a range of events to raise awareness of myasthenia gravis (MG). “MG community members, including patients, care partners, and healthcare providers,…
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When I was diagnosed with myasthenia gravis (MG), I believed I understood it. My father had lived with it, and from a distance, his struggle seemed manageable. But MG has a way of exposing…
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I didn’t become an advocate because I wanted to. I became one because the alternative was letting other people decide what happened to my body, my career, and my future. The first time I realized…
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I think I’ve been looking for ways to save or help my twin brother, Aaron, for years now. I’ve come to this realization before, when someone mentioned to me that I might have survivor’s guilt because…
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Writing this column is the best job I’ve ever had. It gives me the chance to cry my heart out every week about a situation that nobody around me truly understands. I can have a…
Artist and muralist Sophie Groenstein shares how living with MG reshaped her relationship with art, movement, self-expression, and personal identity. Print This…
At the 2026 MGFA National Patient Conference, patient advocate Melissa Wohlust shares her experience navigating the years without a diagnosis and the importance of advocating for expert…
At the 2026 MGFA National Patient Conference, caregiver Myron Truex shares why having a bug-out bag and being prepared can support care for myasthenia gravis. He highlights…
At the 2026 MGFA National Patient Conference, Anna Richards, head of commercial at Vitaccess, discusses how the Vitaccess Real MG Registry brings together patient experiences and clinical data to better reflect real world…
Marissa Humayun shares how she adjusted her favorite hobbies, including walking and gold, after an MG diagnosis, finding new ways to stay active while honoring her limits.
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
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Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.
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