Updates

April 8, 2021April 8, 2021
Single, Low-dose Course of Rituximab Treats MuSK-MG, Pilot Study Suggests

A single, two-day and low-dose course of rituximab can effectively treat patients with muscle-specific tyrosine kinase myasthenia gravis (MuSK-MG) over at least six months, according ... Read more
April 7, 2021April 5, 2021
Checking for MG Symptoms Is Part of My Daily Routine

I consider myself incredibly lucky. While I’ve had a couple small flare-ups from myasthenia gravis (MG), I’ve been mostly symptom-free for the past five years. ... Read more
April 6, 2021April 6, 2021
MG Often More Severe and Generalized in Patients With Thymoma, Study Finds

Myasthenia gravis (MG) tends to be more severe and generalized at diagnosis, and myasthenic crises more frequent in patients whose disease is associated with thymoma, ... Read more
April 1, 2021March 31, 2021
Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

As anyone affected by a rare disease knows, treating the illness while trying to go about everyday life is an expensive undertaking. But exactly how ... Read more
April 1, 2021April 1, 2021
Too Much Pyridostigmine May Increase Overactive Bladder Issues

High pyridostigmine doses cause overactive bladder issues in people with myasthenia gravis (MG), according to a recent study. Because of this, doctors should take patients’ ... Read more

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September 28, 2017September 28, 2017

Women with Myasthenia Gravis Report Lower Quality of Life than Male MG Patients, Study Finds

News

Women with myasthenia gravis (MG) have a poorer quality of life than male patients. That’s the conclusion of a study named “Best Abstract Award” winner at the 2017 American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) Annual Meeting in Phoenix. Specifically, the ... Read more

Updates

Single, Low-dose Course of Rituximab Treats MuSK-MG, Pilot Study Suggests

Checking for MG Symptoms Is Part of My Daily Routine

MG Often More Severe and Generalized in Patients With Thymoma, Study Finds

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

Too Much Pyridostigmine May Increase Overactive Bladder Issues

Subscribe to our mailing list

Single, Low-dose Course of Rituximab Treats MuSK-MG, Pilot Study Suggests

Checking for MG Symptoms Is Part of My Daily Routine

MG Often More Severe and Generalized in Patients With Thymoma, Study Finds

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

Too Much Pyridostigmine May Increase Overactive Bladder Issues

Random Reminders of Old Memories Can Trigger Powerful Emotions

Letting Go of the Anger, Many Years After Diagnosis

Disease Crisis Linked to Distinct Pro-inflammatory Immune Changes

Rapid Tapering of Prednisone Safe and Effective for Generalized MG, Trial Finds

Pink, Green, Blue and Purple Lights Illuminated World for Rare Disease Day

Phase 3 Trial of Zilucoplan Enrolling Adults with Generalized MG

FDA Reviewing Efgartigimod as Possible Treatment for Generalized MG

MG Patients Should Be Priority for COVID-19 Vaccine, Report Says, Citing Risks

Generalized MG Patients Needed for UCB’s Global Rozanolixizumab Trial

Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Study Identifies Genetic Risk, Protective Factors for Late-onset MG in Italy

Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Certain Immune Cells May Be Biomarker for MG Severity

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

Gene Variation Linked to Immunotherapy Response

Researchers Caution Against Early Immunosuppressant Reduction After Starting Soliris

Pandemic Won’t Stop Rare Disease Day on Feb. 28

Double-Seropositive MG May Be Subtype of MuSK-MG, Study Suggests

MG Patients Have Greater Risk of Other Cancers, Registry Analysis Finds

NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

Horizon Acquires Viela, Will Develop Inebilizumab for MG Symptoms

High AChR Autoantibodies Linked to MG Risk After Thymectomy

MG Study: Total Joint Surgery Increases Risk of Complications

Women with Myasthenia Gravis Report Lower Quality of Life than Male MG Patients, Study Finds