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I lived for 19 years before I ever heard the words “myasthenia gravis” (MG). For the next seven years after that, I learned how to live with it, advocate for patients like me, and…
In recognition of Myasthenia Gravis Awareness Month in June, the Myasthenia Gravis Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by myasthenia gravis, written in their own words. Follow us on Facebook, Instagram, or X for more stories like this, using the hashtag #MGAwarenessMonth,…
News & Perspectives
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A free webinar on June 30 will bring members of the myasthenia gravis (MG) community together to discuss the daily realities of life with the chronic condition, from managing unpredictable workplace symptoms to recognizing…
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Here’s a riddle: What has more compartments than a tackle box, more variety than a buffet, and takes longer to sort than a load of laundry you’ve ignored until you ran out of clean underwear?…
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A simple model that uses five clinical factors could help doctors predict which people with ocular myasthenia gravis (OMG) are most likely to achieve minimal symptoms or better within one year, according to a…
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Ublituximab-xiiy, an approved medication for certain types of multiple sclerosis (MS), was shown to safely and effectively reduce disease severity in people with myasthenia gravis (MG) who have self-reactive antibodies against the acetylcholine receptor…
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Living with myasthenia gravis (MG) means constantly adjusting to a body that doesn’t always cooperate, and the people around me often want to help but don’t know how. Sometimes it turns into hovering, second‑guessing,…
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For years, I had a big goal: to run a race, a trail, or maybe even a marathon someday. It wasn’t because I particularly love running, but because I wanted to prove to myself that,…
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The infusion therapy Imaavy (nipocalimab) is now approved in the U.K. for treating people ages 12 and older with generalized myasthenia gravis (MG). The new authorization by the Medicines and Healthcare Products Regulatory…
Community Videos
Artist and muralist Sophie Groenstein shares how living with MG reshaped her relationship with art, movement, self-expression, and personal identity. Print This…
At the 2026 MGFA National Patient Conference, patient advocate Melissa Wohlust shares her experience navigating the years without a diagnosis and the importance of advocating for expert…
At the 2026 MGFA National Patient Conference, caregiver Myron Truex shares why having a bug-out bag and being prepared can support care for myasthenia gravis. He highlights…
At the 2026 MGFA National Patient Conference, Anna Richards, head of commercial at Vitaccess, discusses how the Vitaccess Real MG Registry brings together patient experiences and clinical data to better reflect real world…
Marissa Humayun shares how she adjusted her favorite hobbies, including walking and gold, after an MG diagnosis, finding new ways to stay active while honoring her limits.
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
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Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
Treatment
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.