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I met someone who looked ravishing and well put together, with great posture, beautiful hair, and impeccable makeup, and I had my usual thought: “That’s what I would’ve looked like if I didn’t have…
News & Perspectives
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A new U.S.-based patient registry is enrolling people with myasthenia gravis (MG) to help researchers better understand how the disease progresses, how treatments are used in the real world, and how MG affects patients’ daily…
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Myasthenia gravis (MG) patients who lack the three most common disease-causing antibodies often respond poorly to standard immunosuppressive medications, with many — especially those with hard-to-treat disease — failing to see their symptoms fully…
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Physical activity and respiratory (breathing) muscle training may help people with myasthenia gravis (MG) reduce symptoms and improve daily functioning, especially when programs are adapted to their needs, according to a review study. “Individualized…
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Asking for help has never come naturally to me. I’ve always been the person who is the helper or the one who pushes through and figures it out. Living with myasthenia gravis (MG) has…
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My worst fear happened this week. The antibodies whose presence often helps diagnose myasthenia gravis (MG) disappeared in my latest blood test. My heart felt like it had stopped. Not because I felt better.
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Zilbrysq (zilucoplan) helped ease disease symptoms and improve quality of life for most people with generalized myasthenia gravis (gMG) in an expanded access program (EAP) in France, a study showed. EAPs provide access…
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Vyvgart (efgartigimod alfa-fcab) may be a safe and effective treatment for children and adolescents with juvenile myasthenia gravis (JMG), according to new real-world data from China. The study found that the therapy,…
Community Videos
Marissa Humayun shares how she adjusted her favorite hobbies, including walking and gold, after an MG diagnosis, finding new ways to stay active while honoring her limits.
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
Mark Harrington talks about the frustration of MG fatigue and the freedom that came when he learned to slow down. With support from friends and mindful routines, he discovered how rest could become a form…
Joe Enders reflects on his daughter Jodi’s MG diagnosis, her independence, and the challenges of balancing support with giving space. He discusses the role of family and support groups in navigating remission, anxiety, and the…
Chloe Wigg shares her experience living with myasthenia gravis (MG), from facing isolation and setbacks in her art to creating the exhibition OMG! She reflects on resilience, the power of community, and how storytelling through…
Charlotte, a cardiology nurse living with myasthenia gravis (MG), shares how her diagnosis shaped her career and perspective on care. She reflects on the slow onset of symptoms, the challenges of nursing school, and the…
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Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
Treatment
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.