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There’s a part of myasthenia gravis (MG) that people rarely talk about, and it’s not the symptoms, the appointments, or the medications. It’s the sheer weight of having to advocate for yourself over and…
News & Perspectives
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An investigational autoinjector device for administering Zilbrysq (zilucoplan), an approved therapy for generalized myasthenia gravis (gMG), is a safe and effective option for individuals now using the currently available prefilled syringe, according to…
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One of the first things that tends to happen when you stop being physically active is you gain weight. It’s not automatic for everyone, but I know many curvy beauties will relate to this. There…
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I like to think of myself as a strong individual. Even before myasthenia gravis (MG) entered my life, I had, like most people, faced my share of challenges: the usual relationship issues, loss of…
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Cemdisiran, an experimental therapy given by injection under the skin every three months, was shown to significantly and sustainably ease symptoms of generalized myasthenia gravis (gMG) in a global, late-stage clinical trial called…
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Kyverna Therapeutics’ experimental cell therapy KYV-101, now called mivocabtagene autoleucel (miv-cel), was associated with rapid, sustained symptom improvements in all seven participants with hard-to-treat generalized myasthenia gravis (gMG) in a clinical trial.
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The exhaustion that comes from not being believed about the details of my life with myasthenia gravis (MG) isn’t something that announces itself all at once. It settles in slowly, the way a long…
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I met someone who looked ravishing and well put together, with great posture, beautiful hair, and impeccable makeup, and I had my usual thought: “That’s what I would’ve looked like if I didn’t have…
Community Videos
At the 2026 MGFA National Patient Conference, patient advocate Melissa Wohlust shares her experience navigating the years without a diagnosis and the importance of advocating for expert…
At the 2026 MGFA National Patient Conference, caregiver Myron Truex shares why having a bug-out bag and being prepared can support care for myasthenia gravis. He highlights…
At the 2026 MGFA National Patient Conference, Anna Richards, head of commercial at Vitaccess, discusses how the Vitaccess Real MG Registry brings together patient experiences and clinical data to better reflect real world…
Marissa Humayun shares how she adjusted her favorite hobbies, including walking and gold, after an MG diagnosis, finding new ways to stay active while honoring her limits.
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
Mark Harrington talks about the frustration of MG fatigue and the freedom that came when he learned to slow down. With support from friends and mindful routines, he discovered how rest could become a form…
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Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
Treatment
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.