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The recent Muscular Dystrophy Association (MDA) Engage Community Seminar with Stanford Medicine was packed with educational sessions, but some of the most meaningful takeaways for participants were about connection and community. “That’s what makes…
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VRDN-008, Viridian Therapeutics’ investigational under-the-skin treatment for myasthenia gravis (MG), sustainably reduces levels of a class of antibodies that includes those driving MG and has…
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There are hidden surprises that come with chronic illness, things nobody warns you about and that certainly don’t come with a guidebook. They affect the simplest aspects of our lives, such as looking “normal” —…
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It’s 2 a.m., and the building is quiet. The only light in my apartment comes from the refrigerator, and I am standing in front of it in my bathrobe, like a man waiting for a…
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Results from a global clinical trial testing the experimental CAR T-cell therapy Descartes-08 in people with generalized myasthenia gravis (gMG) are expected in the first few months of next year, according to its…
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Receiving a myasthenia gravis (MG) diagnosis can bring a strange mix of emotions. For some people, it’s a relief to finally have an explanation for symptoms that have been disrupting their lives. For…
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Since its approval in the U.S. in 2023 for people with generalized myasthenia gravis (gMG), Rystiggo (rozanolixizumab-noli) has been prescribed to a wide range of adults with the autoimmune disease — but, according…
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Caregiving was a vocation I always thought I was made for. But I never imagined that one day I would be the person needing care. Throughout this unexpected journey…
Artist and muralist Sophie Groenstein shares how living with MG reshaped her relationship with art, movement, self-expression, and personal identity. Print This…
At the 2026 MGFA National Patient Conference, patient advocate Melissa Wohlust shares her experience navigating the years without a diagnosis and the importance of advocating for expert…
At the 2026 MGFA National Patient Conference, caregiver Myron Truex shares why having a bug-out bag and being prepared can support care for myasthenia gravis. He highlights…
At the 2026 MGFA National Patient Conference, Anna Richards, head of commercial at Vitaccess, discusses how the Vitaccess Real MG Registry brings together patient experiences and clinical data to better reflect real world…
Marissa Humayun shares how she adjusted her favorite hobbies, including walking and gold, after an MG diagnosis, finding new ways to stay active while honoring her limits.
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
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Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.
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