After Seven Years of Marriage, We’re Finding Our Groove
This year, my husband and I will have been married for seven years. They say there is a thing called the “seven-year-itch,” and that ... Read more
Updates
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NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala
A violinist with vasculitis, two Texas politicians and a pharmaceutical company whose marijuana-derived therapy helps kids with Dravet syndrome were among winners of the ... Read more -
RNA Molecules Targeting C5 Complement Protein May Be Effective in MG
Treatment with synthetic RNA molecules targeting the C5 complement system protein in the liver may be effective in people with myasthenia gravis (MG), according ... Read more -
Eurordis Unveils Integrated-care Initiative for Rare Disease Patients
Europe’s umbrella organization for 800 rare disease associations has developed a sweeping initiative to help the continent’s 30 million rare disease patients and their ... Read more
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After Seven Years of Marriage, We’re Finding Our Groove
This year, my husband and I will have been married for seven years. They ... -
NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala
A violinist with vasculitis, two Texas politicians and a pharmaceutical company whose marijuana-derived therapy ... -
RNA Molecules Targeting C5 Complement Protein May Be Effective in MG
Treatment with synthetic RNA molecules targeting the C5 complement system protein in the liver ... -
Eurordis Unveils Integrated-care Initiative for Rare Disease Patients
Europe’s umbrella organization for 800 rare disease associations has developed a sweeping initiative to ... -
Early Extubation After Thymectomy Improves Outcomes, Study Suggests
Myasthenia gravis (MG) patients who undergo thymectomy — surgery to remove the thymus gland ...
Women with Myasthenia Gravis Report Lower Quality of Life than Male MG Patients, Study Finds
News
Women with myasthenia gravis (MG) have a poorer quality of life than male patients. That’s the conclusion of a study named “Best Abstract Award” winner at the 2017 American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) Annual Meeting in Phoenix. Specifically, ... Read more