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Once upon a time, I was constantly on the go. From the moment my feet hit the ground each morning, I never stopped. Then myasthenia gravis (MG) entered my life and work became impossible,…
News & Perspectives
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Rystiggo (rozanolixizumab-noli) provides consistent symptom relief for people with generalized myasthenia gravis (gMG) across more than a dozen treatment cycles, according to a new analysis of clinical trial data. The approved UCB…
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At this year’s Muscular Dystrophy Association (MDA) Clinical & Scientific Conference, researchers and clinicians are talking about the central role of patients, families, and caregivers in driving change for people living with neuromuscular diseases.
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Johnson & Johnson (J&J) has launched a Phase 3b clinical trial to compare the efficacy of two approved treatments for generalized myasthenia gravis (gMG). The trial, dubbed EPIC (NCT07217587), is specifically testing…
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Living with myasthenia gravis (MG) means learning that some of the most powerful triggers aren’t the ones anyone warns you about. They’re not always heat, or illness, or overexertion (though those matter,…
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My twin brother’s eyes have begun to droop again. It happened during a period recently when I got locked out of my main social media account, and I was busy with work, so I wasn’t…
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Over the years, I’ve developed an annoying habit of blaming everything on myasthenia gravis (MG). Being aware of it sometimes makes it worse, because I catch myself doing it and still feel unable to…
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Recovery after a myasthenia gravis (MG) exacerbation — a flare up or sudden worsening of disease symptoms — may take many months, even with the newer treatment options now available to MG patients. That’s…
Community Videos
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
Mark Harrington talks about the frustration of MG fatigue and the freedom that came when he learned to slow down. With support from friends and mindful routines, he discovered how rest could become a form…
Joe Enders reflects on his daughter Jodi’s MG diagnosis, her independence, and the challenges of balancing support with giving space. He discusses the role of family and support groups in navigating remission, anxiety, and the…
Chloe Wigg shares her experience living with myasthenia gravis (MG), from facing isolation and setbacks in her art to creating the exhibition OMG! She reflects on resilience, the power of community, and how storytelling through…
Charlotte, a cardiology nurse living with myasthenia gravis (MG), shares how her diagnosis shaped her career and perspective on care. She reflects on the slow onset of symptoms, the challenges of nursing school, and the…
Yvette Bernal shares her journey with myasthenia gravis (MG), from the fear of early symptoms and ICU stays to navigating the realities of motherhood while managing a chronic illness. She reflects on honesty, connection, and…
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Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
Treatment
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.