Discussion
Living with myasthenia gravis (MG) means spending a lot of time advocating for ourselves. Most of the time, that advocacy happens in exam rooms, emergency departments, and hospital beds. What surprised me was learning…
News & Perspectives
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Two interconnected themes — community and hope — dominated the conversations at a recent gathering of people living with neuromuscular diseases. Lily Sander, MDA National Ambassador, speaking at MDA Engage: Dallas. (Photo by Tara…
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Myasthenia gravis (MG) was the first major challenge my husband and I faced within our marriage. Before Ty received his diagnosis, life was smooth. I wouldn’t say things were perfect, but there was very…
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“You can’t do anything about the length of your life, but you can do something about its width and depth.” — Anonymous These are wise words from an anonymous writer. Following these words and disregarding…
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Depression and fatigue significantly lower the quality of life for people with myasthenia gravis (MG), even when their muscle weakness appears medically stable and well controlled, a study has found. The findings highlight that…
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After living with myasthenia gravis (MG) for 18 years, everything about it seems intuitive and simple to me. I know how my body reacts, and I’ve learned how to live with it. Yet, when…
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As Halloween grows closer, I’ve been taking another of my trips down memory lane. These trips are becoming more frequent as I get older, and the emotions they stir are bittersweet. I think about my…
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The financial burden of myasthenia gravis (MG) extends well beyond medication, hospital stays, and doctor visits, with reduced ability to work, lost income, and a poorer quality of life accounting for a substantial share…
Community Videos
Artist and muralist Sophie Groenstein shares how living with MG reshaped her relationship with art, movement, self-expression, and personal identity. Print This…
At the 2026 MGFA National Patient Conference, patient advocate Melissa Wohlust shares her experience navigating the years without a diagnosis and the importance of advocating for expert…
At the 2026 MGFA National Patient Conference, caregiver Myron Truex shares why having a bug-out bag and being prepared can support care for myasthenia gravis. He highlights…
At the 2026 MGFA National Patient Conference, Anna Richards, head of commercial at Vitaccess, discusses how the Vitaccess Real MG Registry brings together patient experiences and clinical data to better reflect real world…
Marissa Humayun shares how she adjusted her favorite hobbies, including walking and gold, after an MG diagnosis, finding new ways to stay active while honoring her limits.
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
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Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
Treatment
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.