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Every eight weeks, when I sit in an infusion chair, I can’t help but think of the small, patient labor that had to happen before the medication Ultomiris (ravulizumab-cwvz) ever found my veins. Myasthenia…
News & Perspectives
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Different forms of myasthenia gravis (MG) may have distinct patterns of immune system activity, with MG that appears before age 50 and MG driven by antibodies against the muscle-specific kinase (MuSK) protein showing stronger…
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Long-term rituximab treatment safely and effectively eased symptoms and reduced the need for anti-inflammatory corticosteroids in adults with hard-to-treat generalized myasthenia gravis (gMG), according to a small, real-world study in Italy. The benefits…
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Being told “no” never gets easier. Even though I’m an adult, that two-letter word has the ability to bring out my inner tantrum-throwing toddler in their “terrible twos.” My husband, Justin, has …
Discussion
Navigating chronic illness often means balancing conventional medicine, complementary care, and well-meaning advice. One columnist reflects on finding a thoughtful, whole-person approach without losing sight of safety.
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Note: This column describes the author’s own experiences with various pain management techniques. Not everyone will have the same response to these modalities. Consult your doctor before starting or stopping a therapy. Living with a…
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Adding Imaavy (nipocalimab-aahu) to standard treatment reduces hospital days by as much as 68% and lowers estimated annual hospital costs by $11,000 to $13,000 per patient for adults with generalized myasthenia gravis (gMG).
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I have an unusual and slightly weird affection for old-time hymns. Something in me responds to the great hymns that have endured for thousands of years, such as “Sub Tuum Praesidium,” one of…
Community Videos
Artist and muralist Sophie Groenstein shares how living with MG reshaped her relationship with art, movement, self-expression, and personal identity. Print This…
At the 2026 MGFA National Patient Conference, patient advocate Melissa Wohlust shares her experience navigating the years without a diagnosis and the importance of advocating for expert…
At the 2026 MGFA National Patient Conference, caregiver Myron Truex shares why having a bug-out bag and being prepared can support care for myasthenia gravis. He highlights…
At the 2026 MGFA National Patient Conference, Anna Richards, head of commercial at Vitaccess, discusses how the Vitaccess Real MG Registry brings together patient experiences and clinical data to better reflect real world…
Marissa Humayun shares how she adjusted her favorite hobbies, including walking and gold, after an MG diagnosis, finding new ways to stay active while honoring her limits.
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
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Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
Treatment
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.