News More Severe Disease in MG Patients with LRP4 and Agrin Autoantibodies, Study Finds

News 3P Biopharmaceuticals and Toleranzia Advance Partnership to Develop TOL2 for MG

News Immunovant Prepares to Launch Phase 3 Trial of IMVT-1401 in MG Patients

News Rituximab Effective for People With Refractory MG, Study Finds

News Mitochondria Defects in Immune Cells May Cause MG, Study Says

cystic fibrosis, News, syndicated Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

News Rituximab More Beneficial if Given to gMG Patients Early, Study Finds

News Nipocalimab Does Well in Top-line Results of Phase 2 Vivacity-MG Trial

News Early Success After Thymectomy Predicts Long-term Benefits for MG Patients, Study Finds

News CAAR T-cell Therapy Shows Early Potential for MuSK-linked MG

News Coalition Will Address Racial Disparities in Rare Disease Communities

News MG Illuminate Event and MG United, by Argenx, Shine Light on Rare Disease

News Efgartigimod Ably Treats AChR-positive Patients in Phase 3 Trial, Data Show

News, syndicated COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

News MGFA Promoting Ways to Recognize June, MG Awareness Month

News, syndicated Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

News, syndicated Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns Myasthenia Gravis Has Made Planning for Motherhood Challenging

News Thymectomy Seen to Aid Remission in Ocular MG Patients Younger Than 40

News Rituximab Safe and Effective in LOMG, Study Suggests

News, syndicated Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

News Botox Injections Linked to Symptoms That Mimic Myasthenia Gravis

News, syndicated Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

News Guidelines Published for Managing MG During COVID-19 Outbreak

News, syndicated NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

News UCB Acquires Ra Pharma, Adds Zilucoplan to Its MG Pipeline

News New MG Cell Model May Best Capture How Autoantibodies Affect Muscles in MG

News Soliris Suitable for gMG Patients with Myasthenic Crisis and Thymoma-associated Disease, Study Suggests

News, syndicated NORD’s Advice on COVID-19: You’re Stronger Than You Think

News Age Among Factors Affecting Survival in MG Patients with Thymoma Surgery

News NORD Partners with ‘Sing Me a Story’ for July 18-20 Living Rare Forum

News Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

Columns, Positively MG - a Column by Megan Hunter I Got Tested for COVID-19 — Here’s What It Was Like

News Immunoglobulin Helps by How It Acts on Regulatory T-Cells, Study Finds

News Dual Immunoglobulin, Aimovig Therapies Safe for MG, Migraines, Report Says

Columns, Positively MG - a Column by Megan Hunter Fighting to Live During a Nationwide COVID-19 Lockdown

News Increasing Expenses for MG Patients In China Suggest Inadequacy of Current Medical Insurance Policies, Study Says

News Levels of Certain B- and T-cells Linked to Ocular MG Turning Generalized

Columns, Positively MG - a Column by Megan Hunter Let’s Work Together to Stay Safe During the Coronavirus Crisis

News Osteopontin Protein May Worsen MG by Affecting Immune Cells, Study Finds

News Complete MG Remission Seen as More Likely in Robot-assisted Thymectomy

News Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare

Columns, Positively MG - a Column by Megan Hunter Expressing Gratitude: Being ‘Rare’ Has Positive Attributes, Too

News HBM9161 Shows Potential to Treat Autoimmune Diseases, Early Data Suggest

News Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29

News Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar

Columns, Positively MG - a Column by Megan Hunter Being Told Your Symptoms Are ‘All in Your Head’ Has an Emotional Toll

News Mental Health Should Be Clinical Focus of MG Care, Case Report Argues

News Myasthenia Gravis-Related Sleep Issues Eased With Noninvasive Ventilation Therapy, Case Report Says

News Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

News Anti-inflammatory Molecule Safely and Quickly Treats Generalized MG, Phase 2 Trial Reports

Columns, Positively MG - a Column by Megan Hunter Rare Disease Day in South Africa Is a Chance to Promote Change

News Case Report Highlights Very Late-onset MG in Woman, 93

News Rituxan Lessens Disease Severity in Myasthenia Gravis Irrespective of Type of Autoantibodies, Study Reports

Columns, Positively MG - a Column by Megan Hunter My Body and Mind Are Exhausted Following Chemotherapy

News FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar

News Fewer Plasma Exchange Treatments, Poorer Kidney Health Increase Risk for MG Relapses, Study Suggests

News With Post-Brexit Move to Amsterdam Complete, EMA Renews Rare Disease Focus

News Antibody Status Predicts Remission in Juvenile Myasthenia Gravis, Study Suggests

Columns, Positively MG - a Column by Megan Hunter Hospital Smells Trigger Deep Memories of Past Treatments

News MG Treatments Should Consider Patients’ Elevated Risk Of Serious Infections, Study Suggests

News Rare Lymphoma Found in Man with Myasthenia Gravis, Case Study Reports

Columns, Positively MG - a Column by Megan Hunter Looking Back at My Metaphorical Mountain

News Anticholinergic Drugs Could Be Safely Used for ‘Death Rattle’ Breathing in MG, Case Report Suggests

News Probiotics May Have Therapeutic Effect on Myasthenia Gravis Symptoms, Rat Study Suggests

Columns, Positively MG - a Column by Megan Hunter Understanding Our MG Challenges: What We Want You to Know

News Scientists Create 3-D Model to Study Neuromuscular Disorders, Including Myasthenia Gravis

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns A Small Thing that Brings Me Joy

News Variations in Immune System Gene Linked to Late-onset MG Risk, Meta-analysis Suggests

Columns, Positively MG - a Column by Megan Hunter You’ve Received a Myasthenia Gravis Diagnosis — Now What?

News Meta-Analysis Identifies Risk Factors for Post-Thymectomy Myasthenia Crisis

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns Myasthenia Gravis Helped Me to Become a Better Healthcare Professional

Columns, Positively MG - a Column by Megan Hunter Medical PTSD Is a Reality for Many of Us Living with a Rare Disease

News Activation of Natural Killer Cells May Help Control MG, Rat Study Suggests

News Side Effects of MG Medications Highlight Need for More Tolerable Treatment Options, Study Suggests

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns I Found a Neurologist Who Gives Me Hope

News Treatments Promoting AChR Clusters May Be New Therapeutic Approach in MuSK-MG

News Vaccine-preventable Infections, Certain Medications Linked to MG Crises

News Certain Antibodies Increase Risk of Ocular MG Progressing to Generalized Disease, Study Finds

News Late-onset MG Found Primarily in Men, Responds Well to Prednisone With Azathioprine, Study Finds

News HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases

News MG Complicated by Thymus Tumor and Immunodeficiency Should be Treated with Caution, Case Report Warns

News Cyclophosphamide May Be Low-cost Option for Refractory Patients, Study Says

News Difficult-to-treat MG Affects Working Hours and Employment Status, Study Finds

Columns, Positively MG - a Column by Megan Hunter We May Have the Same Diagnosis, but We Are Vastly Different

News MS Medication Shows Promise in Treating Refractory Myasthenia Gravis, Small Study Says

News Rare Disease Film Festival Highlights Patient and Researcher Unity

News Amneal Partners with Kashiv BioSciences to Develop Extended-Release Pyridostigmine for MG Treatment

News First Clinical Trial of CAR-T Therapy for Myasthenia Gravis, Descartes-08, Enrolling at Miami Site

News Certain Risk Factors May Make Patients with Thymomas More Susceptible to MG, Study Reports

News Children with Ocular MG Younger Than Those with Generalized MG and Respond Well to Treatment, Study Says

Columns, Positively MG - a Column by Megan Hunter A Recent Medication Lapse Has Refocused My Attention on Self-care

News Ocular MG Patients More Likely to Experience Remission if They Undergo Thymectomy Before Their Disease Generalizes, Study Says

News NIH Awards $7.8M for Rare Disease Network to Advance Clinical Research in MG

News MG Outcome Measures Effectively Reflect Rapid Improvements After Plasma Exchange, Study Shows

Columns, Positively MG - a Column by Megan Hunter I Was Honored to Receive an Award for My Rare Disease Advocacy

News UCB Buys Ra Pharma, Adding Zilucoplan to Its MG Pipeline

News NIH Grants $7.8M to Support Launch of Rare Disease Network for Myasthenia Gravis

News First Patient Dosed in Phase 3 Trial of Zilucoplan, Ra Pharma Announces

News Certain Medications and Smoking Cessation Can Protect Ocular MG From Becoming Generalized, Study Says