News #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns The Reasons Behind Falling Ill

News Thymus Tumor Elevates Risk of Ocular MG Becoming Generalized, Case Series Finds

Columns, Positively MG - a Column by Megan Hunter Take Time to Appreciate and Thank Those Who Provide Care

News Patients with FSHD Can Develop Myasthenia Gravis, Report Indicates

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns Looking After the Mind and the Body

News Robot-assisted Thymectomy Considered Safe for MG Patients, Singapore Study Says

Columns, Positively MG - a Column by Megan Hunter The ‘Weight’ of Being Sick

News MG Patients Are at Greater Risk for Other Autoimmune Diseases, Study Suggests

Columns, Unmasking Myasthenia Gravis - a Column by Rebekah Dorr The Gift of Empathy

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns A Letter to the Newly Diagnosed Myasthenic

News Early Signs of Myasthenia Gravis May Include Swallowing, Speaking Difficulties, Case Report Shows

Columns, Positively MG - a Column by Megan Hunter Reaching Milestones While Living with Myasthenia Gravis

News Adipokines Could Help Assess Course of Myasthenia Gravis, Study Suggests

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns 3 Ways that Living with Myasthenia Gravis Has Made Me a Better Person

News Japanese Regulatory Agency Weighs in on Upcoming Phase 3 MG Trial for Efgartigimod

News MS Therapy Lemtrada Possibly Linked to Development of Myasthenia Gravis, Case Report Suggests

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns How My Port Empowered Me

Columns, Positively MG - a Column by Megan Hunter How to Help Your Myasthenia Gravis Friend During His or Her Hospital Stay

News Case Report Details Rapid Development of MG After Stem Cell Transplant

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns The Joy of Being Alive

News Abnormal Electrical Activity of Neurons May Be Biomarker of Juvenile Myasthenia Gravis

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns The Gift of Literacy as a Patient with Myasthenia Gravis

News Th22/Tc22 Cells May Be Involved in Development of Myasthenia Gravis

News Modified Method for Thymus Removal Can Offer MG Patients Less Scarring, Case Report Shows

Columns, Unmasking Myasthenia Gravis - a Column by Rebekah Dorr It’s OK to Grieve What Myasthenia Gravis Has Stolen

News Three IL4R Gene Mutations Identified as Risk Factors for MG Among Chinese Han

Columns, Unmasking Myasthenia Gravis - a Column by Rebekah Dorr Why Don’t We Get to ‘Ring the Bell’?

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns How Growing Up with Disability in the Family Helped Me Accept My Diagnosis

News Argenx’s ARGX-113 Shows Promise for Reducing Autoantibodies in MG Patients, Study Shows

Columns, Positively MG - a Column by Megan Hunter The Importance of Finding Your Tribe

Columns, Unmasking Myasthenia Gravis - a Column by Rebekah Dorr Being a Patient Is Hard Work

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns The Value of the Good Doctor

News Thymus May Play Key Role in Myasthenia Gravis and Lupus Overlap, Case Series Suggests

News Multidisciplinary Support Is Key to Managing Pregnancy in Myasthenia Gravis, Case Report Highlights

Columns, Unmasking Myasthenia Gravis - a Column by Rebekah Dorr The Cost of Uneducated Care

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns How a Puppy Helps Me to Live a Better Life with Myasthenia Gravis

News Removal of Thymus Better Than Medications for Treating MG Patients Without Thymoma, Review Shows

Columns, Positively MG - a Column by Megan Hunter Make Yourself Priority No. 1

News Rituxan’s Effectiveness in MuSK MG Patients Varies with Different Regimens, Study Suggests

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns Three Lessons I’ve Learned From Living with Myasthenia Gravis

News Proteins Linked to Neuromyelitis Optica Increase MG Disease Severity, Mouse Model Shows

News MG Is Plagued by Unanswered Questions, Clinician Writes in Editorial

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns I Used to Be Ashamed to Use Medical Marijuana to Fight Myasthenia Gravis

News Treatment with Artificial IL-9 Shows Potential to Manage Myasthenia Gravis, Rat Study Reports

Columns, Positively MG - a Column by Megan Hunter You Can Be Happy for Others While Still Mourning

News Aerobic Exercise, Psychological Support May Lead to Small Improvements in Fatigue, Small Study Says

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns The Guilt of Being Ill

News Refractory Myasthenia Gravis Patients Need More Attention, Care, Expert Says

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns It Is Important to Learn to Listen to Your Body

News Potential Myastenia Gravis Therapy, PRTX-100, Again Seen to Reduce Disease Activity in Mouse Model

News Traditional Chinese Medicine Can Repair Mitochondria and Possibly Treat Disease, Animal Study Reports

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns Living with the Side Effects of Cyclosporine

News Global Phase 3 MG Trial of argenx’s Efgartigimod on Track Following FDA Meeting

Columns, Positively MG - a Column by Megan Hunter Just Imagine What This Disease Is Like

News Myasthenia Gravis Patient Who Develops 2 Other Rare Autoimmune Disorders Reported for First Time

News US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns How a Tattoo Inspires Me to Keep Fighting Myasthenia Gravis

News Finding of Myasthenia Gravis After Surgical Removal of Thymus May Signal Cancer’s Return, Case Study Finds

News #ERDC2018 – When Treating Rare Disease Patients, Don’t Overlook Quality of Life, Panel Urges

News Rituxan Improves Muscle Strength, Allows Refractory MG Patients to Reduce Steroids, Study Says

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns Using Humor in the Battle Against Myasthenia Gravis

News Concentric Needle-Jitter a Reliable Method for Myasthenia Gravis Diagnosis, Study Suggests

News Successful Thymus Tumor Surgery in Myasthenia Gravis Patient with Respiratory Distress Reported in Case Study

News New Way of Removing Thymus Can Improve Post-Op Outcomes, Study Shows

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns People React to the Reality You Present

News MG Patients Show High Levels of Chemical Modification on CTLA-4 Gene, Study Shows

News ‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35

News #ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say

News Genetic Variants, Other Medications Influence Optimal Dose of Prograf in MG Patients, Study Suggests

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns With Myasthenia Gravis, It’s Important to Be Aware of Your Voice

News Pharmacy Benefits Company Predicts Significant Cost Hike in MG Therapy Soliris

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns In Sickness and in Health

News #ECRD2018 – Patient Access and Collaboration Focus of Eurordis Meeting May 10-12

News #AAN2018 – Rituxan a Promising First-line Immunotherapy in Late-onset MG, Study Suggests

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns The Value of Our Time

News Catalyst Enrolls First MuSK MG Patient in Phase 3 Trial Evaluating Firdapse

News #AAN2018 – Vaccination Did Not Trigger Myasthenia Gravis in Children, Study Finds

News #AAN2018- Ra Pharma’s Myasthenia Gravis Therapy Shows Promise in Phase 1 Trial with Healthy Volunteers

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns The Side Effects of Prednisone I Was Never Told About

News NIH Agency Pioneers Collaborative Research into Rare Diseases

News Viral Infection Could Be Contributing Factor for Myasthenia Gravis, Study Says

News Treatment for LEMS Can Benefit Myasthenia Gravis Patients, Study Reports

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns Ride the Life You’re Given with Joy

News Video-Assisted Thoracic Surgery Safe and Effective Method for Thymoma Removal, Study Finds

News Cannabinoids May Improve Muscle Function in Myasthenia Gravis, Mouse Study Suggests

News Argenx’s Myasthenia Gravis Therapy Receives Orphan Drug Status in Europe

News GTP-004 Seen to Reduce Side Effects of MG Therapy Mestinon in Small Phase 1 Trial

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns Strength in a Time of Weakness

News Myasthenia Gravis Patients Appear to Have Lower Vitamin D Levels, Study Confirms

News Levels of Specific MicroRNA a Potential Biomarker for Myasthenia Gravis, Study Shows

News Genome Sequencing and Its Clinical Potential Focus of NYC Rare Disease Day Event

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns Pets as a Source of Healing

News ‘A Disease May Be Rare, Hope Should Never Be,’ Says Boy with SMARD at Connecticut Rare Disease Day Event

News Women with Myasthenia Gravis Have Poorer Quality of Life, But Thymus Removal Helps, Study Says

News Rare Disease Groups Welcome FDA’s Embrace of ‘Real World’ Data in Clinical Trials

News Robotic-assisted Thymus Surgery Outcomes Are Better Without Immunosuppressants, Study Finds

A Good Life with Bad Muscles - a Column by Retha De Wet, Columns Love Is the Best Weapon in Our Fight

News US Lawmakers Urge Bipartisan Support for Rare Disease Research, Patients’ Needs

News Ra Pharma, with Phase 2 Trial Recruiting MG Patients, Joins in Rare Disease Day