NORD Partners with ‘Sing Me a Story’ for July 18-20 Living Rare Forum
The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 in Cleveland, Ohio, has been postponed until July 18–20 because ... Read more
Updates
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Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19
Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate Lucia Monaco, PhD, of Italy remains confident that the Paris-based ... Read more -
I Got Tested for COVID-19 — Here’s What It Was Like
I started coughing last week. Really coughing. The kind that hurts your ribs after a while, and wakes you up during the night. It’s ... Read more -
Immunoglobulin Helps by How It Acts on Regulatory T-Cells, Study Finds
Intravenous immunoglobulin (IVIg) works to treat people with myasthenia gravis (MG) by increasing the numbers of regulatory immune cells that help to control autoimmune reactions in ... Read more -
Dual Immunoglobulin, Aimovig Therapies Safe for MG, Migraines, Report Says
Aimovig (erenumab) and the investigational immune therapy subcutaneous immunoglobulin (SCIg) can safely be used simultaneously to treat migraines and myasthenia gravis, according to a recent ... Read more
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NORD Partners with ‘Sing Me a Story’ for July 18-20 Living Rare Forum
The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 ... -
Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19
Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate ... -
I Got Tested for COVID-19 — Here’s What It Was Like
I started coughing last week. Really coughing. The kind that hurts your ribs after ... -
Immunoglobulin Helps by How It Acts on Regulatory T-Cells, Study Finds
Intravenous immunoglobulin (IVIg) works to treat people with myasthenia gravis (MG) by increasing the numbers of ... -
Dual Immunoglobulin, Aimovig Therapies Safe for MG, Migraines, Report Says
Aimovig (erenumab) and the investigational immune therapy subcutaneous immunoglobulin (SCIg) can safely be used ... -
Fighting to Live During a Nationwide COVID-19 Lockdown
On March 15, South Africa waited with bated breath for its president to address ...
Women with Myasthenia Gravis Report Lower Quality of Life than Male MG Patients, Study Finds
News
Women with myasthenia gravis (MG) have a poorer quality of life than male patients. That’s the conclusion of a study named “Best Abstract Award” winner at the 2017 American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) Annual Meeting in Phoenix. Specifically, ... Read more