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Beginning early next year, certain adults in the U.S. with generalized myasthenia gravis (gMG) will have a new option for receiving the approved gMG treatment Zilbrysq (zilucoplan): self-administering the drug with an autoinjector…
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Let me paint the picture of what our world looked like three years ago. My husband, Ty, and I had been married for about eight years at the time. We were living what I would…
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People with myasthenia gravis (MG) often experience mental health struggles, but their lives are also full of gratitude and hope — and these positive and negative emotions don’t cancel each other out, but rather…
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Lily Sander will never forget what it was like to meet other people with neuromuscular diseases the first time she attended Muscular Dystrophy Association (MDA) Summer Camp. Living with Charcot-Marie-Tooth disease, Sander had…
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Approved and experimental targeted treatments for generalized myasthenia gravis (gMG) show different patterns of benefit across measures of treatment response, according to an indirect comparison analysis of clinical trial data. Using mathematical models to…
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On Oct. 4, I turned 66. The 4th is also the feast day of St. Francis of Assisi. For most of my life, I also shared it with my Aunt Kay. As a boy…
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A new study comparing outcomes of two different strategies for treating generalized myasthenia gravis (gMG) found that both the approved med Vyvgart (efgartigimod alfa) and a blood-cleaning procedure called double-filtration plasmapheresis (DFPP) were…
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Breathing is supposed to be automatic. Invisible. Effortless. Most people never think about the mechanics behind it — the diaphragm pulling down, the rib cage expanding, the air moving in and out like a tide.
Artist and muralist Sophie Groenstein shares how living with MG reshaped her relationship with art, movement, self-expression, and personal identity. Print This…
At the 2026 MGFA National Patient Conference, patient advocate Melissa Wohlust shares her experience navigating the years without a diagnosis and the importance of advocating for expert…
At the 2026 MGFA National Patient Conference, caregiver Myron Truex shares why having a bug-out bag and being prepared can support care for myasthenia gravis. He highlights…
At the 2026 MGFA National Patient Conference, Anna Richards, head of commercial at Vitaccess, discusses how the Vitaccess Real MG Registry brings together patient experiences and clinical data to better reflect real world…
Marissa Humayun shares how she adjusted her favorite hobbies, including walking and gold, after an MG diagnosis, finding new ways to stay active while honoring her limits.
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
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Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.
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