European Initiative Targets Diagnosis, Treatment of Rare Diseases
A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the diagnosis of rare diseases, while ... Read more
Updates
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Ra Pharma and Camurus Agree to Develop Extended-release Formulation of Zilucoplan
Camurus AB and Ra Pharmaceuticals have signed an agreement to develop and manufacture a long-acting injectable formulation of zilucoplan for patients with complement-mediated disorders, such ... Read more -
Refractory MG Poses Burden to U.S. Healthcare System, Needs Better Treatments, Study Finds
People with myastenia gravis (MG) whose disease is refractory, or resistant, to conventional therapies, are more likely to have disease flare-ups, visit an emergency ... Read more -
High PD-L1 Production in Muscle Cells of MG Patients May Play Role in Autoimmunity, Study Says
Muscle cells of myasthenia gravis patients produce large amounts of the programmed cell death ligand 1 (PD-L1) — a substance produced by different types ... Read more -
Myasthenia Gravis, MS May Share Common Autoimmune Responses, Case Report Suggests
Myasthenia gravis and multiple sclerosis (MS) may share immunological features, according to researchers who studied the rare case of a man who developed both ... Read more
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European Initiative Targets Diagnosis, Treatment of Rare Diseases
A new international consortium based in Paris, and funded largely by the 28-member European ... -
Ra Pharma and Camurus Agree to Develop Extended-release Formulation of Zilucoplan
Camurus AB and Ra Pharmaceuticals have signed an agreement to develop and manufacture a ... -
Refractory MG Poses Burden to U.S. Healthcare System, Needs Better Treatments, Study Finds
People with myastenia gravis (MG) whose disease is refractory, or resistant, to conventional therapies, ... -
High PD-L1 Production in Muscle Cells of MG Patients May Play Role in Autoimmunity, Study Says
Muscle cells of myasthenia gravis patients produce large amounts of the programmed cell death ... -
Myasthenia Gravis, MS May Share Common Autoimmune Responses, Case Report Suggests
Myasthenia gravis and multiple sclerosis (MS) may share immunological features, according to researchers who ... -
World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients
It wasn’t until Gordana Loleska’s son David was 14 years old that doctors in ...
Women with Myasthenia Gravis Report Lower Quality of Life than Male MG Patients, Study Finds
News
Women with myasthenia gravis (MG) have a poorer quality of life than male patients. That’s the conclusion of a study named “Best Abstract Award” winner at the 2017 American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) Annual Meeting in Phoenix. Specifically, ... Read more