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Sixteen years ago, when I was diagnosed with myasthenia gravis (MG) at the age of 12, I was very active. I played sports, including volleyball, until I had to quit because double vision made…
In recognition of Myasthenia Gravis Awareness Month in June, the MG Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by MG, written in their own words. Follow us on Facebook, Instagram, or X for more stories like this, using the hashtag #MGAwarenessMonth, or…
News & Perspectives
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Years after being diagnosed with myasthenia gravis (MG), I still find myself navigating other people’s perceptions of my disease almost as often as I navigate my symptoms. But while my muscles are unpredictable,…
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Repeated cycles of Rystiggo (rozanolixizumab-noli) were generally well tolerated and consistently eased symptoms over a median study duration of about two years among people with generalized myasthenia gravis (gMG). That’s according to a final…
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Thymectomy, or the surgical removal of the thymus gland, may help people with myasthenia gravis (MG) achieve and maintain disease remission without the need for other treatments, according to a study in China.
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Financial strain and disruptions in planning and independence were among the most relevant burdens reported by people living with generalized myasthenia gravis (gMG) and their caregivers, according to a U.S. study. The reported burden…
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I celebrated Independence Day a little differently this year. While the rest of the country lit fireworks, grilled burgers, and gathered with friends, I quietly celebrated a different kind of freedom — the kind that…
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When I was a teenager, I thought smoking was cool. It seemed fun to try with friends, and for years, that is exactly how it stayed. I would smoke only three or four cigarettes a…
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Diabetes, a condition marked by chronically high blood sugar (glucose) levels, may worsen symptoms in people with myasthenia gravis (MG) by promoting the activation of B-cells, the immune cells that produce the disease-causing antibodies, a…
Community Videos
Artist and muralist Sophie Groenstein shares how living with MG reshaped her relationship with art, movement, self-expression, and personal identity. Print This…
At the 2026 MGFA National Patient Conference, patient advocate Melissa Wohlust shares her experience navigating the years without a diagnosis and the importance of advocating for expert…
At the 2026 MGFA National Patient Conference, caregiver Myron Truex shares why having a bug-out bag and being prepared can support care for myasthenia gravis. He highlights…
At the 2026 MGFA National Patient Conference, Anna Richards, head of commercial at Vitaccess, discusses how the Vitaccess Real MG Registry brings together patient experiences and clinical data to better reflect real world…
Marissa Humayun shares how she adjusted her favorite hobbies, including walking and gold, after an MG diagnosis, finding new ways to stay active while honoring her limits.
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
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Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
Treatment
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.