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Last week, I promised a friend I’d drive her to a surgery. It wasn’t my appointment, but anyone living with myasthenia gravis (MG) knows that showing up for anything requires its own kind of…
News & Perspectives
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One year of treatment with Ultomiris (ravulizumab-cwvz) was associated with reduced fatigue and improved quality of life for three older adults with generalized myasthenia gravis (gMG), according to a small study in Italy.
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I’m writing this week’s column using voice-to-text because I simply overworked my body to the point where it doesn’t want to respond anymore, which feels like the perfect place to start. Living with myasthenia…
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Mindy Henderson has spent much of her life challenging the limits others have placed on her. When she was diagnosed with spinal muscular atrophy (SMA) — a genetic condition that causes muscles to weaken over…
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Measuring the percentage of CD3-positive T cells in the blood after thymectomy, or surgical removal of the thymus, may help identify recurrence risk in people with myasthenia gravis (MG) who do not have…
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The investigational CAR T-cell therapy KYV-101, or mivocabtagene autoleucel (miv-cel), improves muscle strength and daily functioning in people with hard-to-treat generalized myasthenia gravis (gMG), with benefits lasting for up to two years after…
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Vyvgart (efgartigimod alfa) is generally well tolerated and effective for adults with generalized myasthenia gravis (gMG), regardless of the presence and type of disease-causing antibody, according to a real-world study in Japan. The treatment, which…
Discussion
I blame a whole lot of things on myasthenia gravis (MG), even things that are not actually considered symptoms. My body says otherwise, however. Although I still believe some of the issues I experience…
Community Videos
Artist and muralist Sophie Groenstein shares how living with MG reshaped her relationship with art, movement, self-expression, and personal identity. Print This…
At the 2026 MGFA National Patient Conference, patient advocate Melissa Wohlust shares her experience navigating the years without a diagnosis and the importance of advocating for expert…
At the 2026 MGFA National Patient Conference, caregiver Myron Truex shares why having a bug-out bag and being prepared can support care for myasthenia gravis. He highlights…
At the 2026 MGFA National Patient Conference, Anna Richards, head of commercial at Vitaccess, discusses how the Vitaccess Real MG Registry brings together patient experiences and clinical data to better reflect real world…
Marissa Humayun shares how she adjusted her favorite hobbies, including walking and gold, after an MG diagnosis, finding new ways to stay active while honoring her limits.
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
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Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
Treatment
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.