Updates

July 22, 2019July 22, 2019
Certain Cholesterol-Lowering Statins May Increase Risk of MG, WHO-based Study Suggests

The use of blood cholesterol-lowering medications called statins is linked to a small risk of myasthenia gravis (MG), according to a large World Health ... Read more
July 18, 2019July 18, 2019
European Initiative Targets Diagnosis, Treatment of Rare Diseases

A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the diagnosis of rare diseases, while ... Read more
July 18, 2019July 18, 2019
Ra Pharma and Camurus Agree to Develop Extended-release Formulation of Zilucoplan

Camurus AB and Ra Pharmaceuticals have signed an agreement to develop and manufacture a long-acting injectable formulation of zilucoplan for patients with complement-mediated disorders, such ... Read more
July 16, 2019July 16, 2019
Refractory MG Poses Burden to U.S. Healthcare System, Needs Better Treatments, Study Finds

People with myastenia gravis (MG) whose disease is refractory, or resistant, to conventional therapies, are more likely to have disease flare-ups, visit an emergency ... Read more
July 11, 2019July 11, 2019
High PD-L1 Production in Muscle Cells of MG Patients May Play Role in Autoimmunity, Study Says

Muscle cells of myasthenia gravis patients produce large amounts of the programmed cell death ligand 1 (PD-L1) — a substance produced by different types ... Read more

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News

Certain Cholesterol-Lowering Statins May Increase Risk of MG, WHO-based Study Suggests
July 22, 2019July 22, 2019
The use of blood cholesterol-lowering medications called statins is linked to a small risk ...
News

European Initiative Targets Diagnosis, Treatment of Rare Diseases
July 18, 2019July 18, 2019
A new international consortium based in Paris, and funded largely by the 28-member European ...
News

Ra Pharma and Camurus Agree to Develop Extended-release Formulation of Zilucoplan
July 18, 2019July 18, 2019
Camurus AB and Ra Pharmaceuticals have signed an agreement to develop and manufacture a ...
News

Refractory MG Poses Burden to U.S. Healthcare System, Needs Better Treatments, Study Finds
July 16, 2019July 16, 2019
People with myastenia gravis (MG) whose disease is refractory, or resistant, to conventional therapies, ...
News

High PD-L1 Production in Muscle Cells of MG Patients May Play Role in Autoimmunity, Study Says
July 11, 2019July 11, 2019
Muscle cells of myasthenia gravis patients produce large amounts of the programmed cell death ...
News

Myasthenia Gravis, MS May Share Common Autoimmune Responses, Case Report Suggests
July 9, 2019July 9, 2019
Myasthenia gravis and multiple sclerosis (MS) may share immunological features, according to researchers who ...

Eurordis Unveils Integrated-care Initiative for Rare Disease Patients
June 20, 2019
Europe’s umbrella organization for 800 rare disease associations has developed a sweeping initiative to ...
‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy
June 18, 2019
People with rare diseases know that the right government policies can make a big ...
Early Extubation After Thymectomy Improves Outcomes, Study Suggests
June 18, 2019June 18, 2019
Alpha-Blockers May Help Relieve Insomnia, Anxiety in MG Patients, Case Study Suggests
June 13, 2019June 13, 2019
The Importance of Looking After Your Gut Health
June 12, 2019June 11, 2019
Differences in Gene Activity May Explain Why Some Patients Have Difficult-to-treat Eye Disease, Study Shows
June 11, 2019June 11, 2019

Dropouts in Placebo Groups Due to Adverse Events Are Low in MG Clinical Trials, Study Shows
June 6, 2019June 6, 2019
Placebo-treated myasthenia gravis (MG) patients experience as many adverse events as those receiving an ...
Supporting a Friend with a Rare Disease
June 5, 2019May 31, 2019
MG Patients Can Be Considered for Use of Immunotherapies in Cancer Cases, Study Contends
June 4, 2019June 4, 2019
Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries
May 28, 2019May 28, 2019

MG Patients with Other Autoimmune Diseases Don’t Have Higher Disease Burden, Study Says
May 28, 2019May 28, 2019
Patients with myasthenia gravis (MG) who also have other autoimmune diseases do not have ...
Rituxan Leads to High Rates of Clinical Remission in MG Patients, Study Reports
May 23, 2019May 23, 2019
#AANAM — Soliris May Help MG Patients Lower Immunosuppressive Therapy Use, Phase 3 Data Show
May 21, 2019May 21, 2019

News

Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns
May 16, 2019May 16, 2019
With 250 rare diseases newly identified every year, scientists can barely keep up — ...
Columns, Positively MG - a Column by Megan Hunter

Following Stem Cell Transplant, I’m Living My Best Life
May 15, 2019May 13, 2019
When I underwent a stem cell transplant at the beginning of the year, I ...
News

#AANAM – Under-the-Skin Immunoglobulin Treatment Maintains Stable Disease Activity, Study Reports
May 9, 2019May 9, 2019
Treatment with subcutaneous immunoglobulin (SCIg) — a new formulation given as an under-the-skin injection ...
Columns, Positively MG - a Column by Megan Hunter

Why This Year’s Birthday Is Extra Special
May 8, 2019May 6, 2019
It is my birthday this month, and I could not be more excited. I ...
News

Weekly Dosing with Extended Release Zilucoplan Shows Similar Activity as Daily Dose
May 7, 2019May 7, 2019
A new extended release formulation of zilucoplan, a potential self-administered therapy for patients with generalized ...
Columns, Positively MG - a Column by Megan Hunter

Why Ask, ‘Why Me?’ Don’t Play The Blame Game with Yourself
May 1, 2019April 30, 2019
I don’t know about you, but whenever something bad happens in my life, I ...
A Good Life with Bad Muscles - a Column by Retha De Wet, Columns

Life with Myasthenia Gravis Has Taught Me to Find Joy in the Little Things
April 26, 2019April 24, 2019
Many things change when the symptoms of myasthenia gravis (MG) start piling onto each other. I ...
News

Nonprofit Group Works to Raise Rare Disease Awareness in India
April 25, 2019April 25, 2019
With an estimated 1.37 billion inhabitants, India will likely surpass China in five years ...
News

Other Diseases and Treatment Reactions Common in Myasthenia Gravis Patients, Study in India Finds
April 23, 2019April 23, 2019
Almost 90% of patients diagnosed with myasthenia gravis develop other diseases, or comorbidities, while about ...

September 28, 2017September 28, 2017

Women with Myasthenia Gravis Report Lower Quality of Life than Male MG Patients, Study Finds

News

Women with myasthenia gravis (MG) have a poorer quality of life than male patients. That’s the conclusion of a study named “Best Abstract Award” winner at the 2017 American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) Annual Meeting in Phoenix. Specifically, ... Read more

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