For as long as he can remember, Sunday mornings meant standing before his congregation and delivering two sermons. But, following years of dealing with worsening symptoms of muscle weakness and shortness of breath, one Sunday marked a turning point for Rande: He had lost his voice. At first, Rande’s symptoms…
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Advocate For Yourself, Then Go Live: Jayna’s gMG Story
After long days working for the state of Oklahoma, Jayna would often wind down by reading before bed – until one night, when she found her right eye closing on its own. She chalked it up to tiredness, assuming it was nothing serious and not raising it with her doctor…
Living With gMG: Greg’s Treatment Journey
Greg, a patient living with AChR (acetylcholine receptor) antibody-positive generalized myasthenia gravis (gMG), believes his journey with gMG began as early as adolescence, but he was not formally diagnosed until his early 40s after months of progressive symptoms, including slurred speech and muscle weakness. For many gMG patients like Greg,…
From the Dealership to Diagnosis: One Man’s Journey with gMG
After 45 years in the automotive business, Barry was finally ready to retire. But just before signing the papers to sell his dealership, he began experiencing troubling symptoms, including issues swallowing, drooping eyelids, and difficulty speaking. He assumed stress was to blame and continued to push through. “I’m stubborn and…
A Traveler’s Journey with Generalized Myasthenia Gravis
Shanaz’s friends and family know her as an adventurer, someone who books a flight across the world for the weekend and is right back to work on Monday. “My entire life, I had always been go, go, go,” Shanaz shares. “Even in the face of challenges, nothing stopped me from…
A Farmer’s Journey with Generalized Myasthenia Gravis
For Albert, life has always been a balancing act. Managing his family farm and a portfolio of real estate investments—often with his five grandchildren by his side—not only requires the right strategy but also a deep understanding of the value of hard work and family. Whether managing a herd of…
A Nurse’s Journey with generalized Myasthenia Gravis
Living with gMG As a nurse supervisor and father with a passion for building furniture, William was used to being on his feet for hours on end. But after years of long hospital shifts assisting patients, time dedicated to his woodworking craft and chasing after an active 12-year-old, he began…
The Importance of Self Advocacy: A Delayed Diagnosis Leads to Years of Uncertainty
A few years into medical school, Ronak was experiencing severe fatigue. He could barely keep his eyes open as he studied for his board exams. At first, he assumed that he was just tired and stressed from his long days of tests, lectures, rotations, and labs. Medical school was known…
“There is Life After This Disease” – One Woman Navigating Myasthenia Gravis
Tina Bruning was looking forward to retiring after 30 years of working at her local school district in Ellsworth, Kansas. She had plans to travel with her husband, spend time with her five grandkids, and continue her healthy lifestyle of exercise and clean eating. Shortly after she celebrated her retirement,…
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