David S

I fear you have not connected with the right Doc yet.  When is your nexp appointment?  Is the new Neuro performing the tests her self?

The EMG test, I believe, is the determining factor, to many Neuros in diagnosing MG.  My Neuro put me on Prednisdone and Mestinon before I had my EMG.  Prednisdone, 20 mg/day solved my double vision for the mos…[Read more]

Had cataract surgery in my right eye last Thursday.   What a difference.  After just a few days my right eye vision is much clearer and brighter than the left.  Most of the bluriness and what I called double vision, is clearly from cataracts.

Left eye in two weeks.

Scott

Signed with an attorney today.

Denial below –

1-The available scientific and medical evidence does not support the conclusion that the condition is associated with herbicide exposure. (38 CFR 3.303, 38 CFR 3.307, 38 CFR 3.309)
2-The evidence also does not show that your disease developed to a compeusable degree within the specified time period…[Read more]

Thank you Karen for your response.

Scott

“Nexus Letters are letters written by medical professionals detailing the connections … List (exposure to radiation, Agent Orange, Camp Lejeune water, etc.) …”

These letters are somewhat hard to come by.  They can be purchased on line from $400.00 to $2000+.  Most Medical Doctors do not want to write them as they have to say…the person “mo…[Read more]

Talked with a Law Firm today.  One of two that I have contacted.

The Lawyer that we spoke with will take our case and feels confident that we will win.  They will appeal the previous decision and file for 100% service connected disability.  If we don’t get 100% they will file again based on TDIU for 100%.

He understands the situation and says he…[Read more]

Since I was referenced above, I thought I would chime in…..

I do not see myself as brave.

I consider myself stable.

One of the first spots we visit on the cruise ship is the Medical Office to introduce ourselves with the Dr. and make sure they have a ventilator and that they know how to use it.  The ventilator should keep me alive  until t…[Read more]

Hi John –

Thanks for your input –

I read that section as well.

I hope with a Nexus letter, and numerous VA precedents that have acknowledged service connection, will prevail.

I’m sure I don’t know.  We shall see what the Lawyers say.

Scott

Update –

Got my 2nd Denial Letter yesterday.

My VSO said that it was denied because I do not have  a letter from a Medical Doctor saying that ” it was more likely that not”  that I got this disease due to my Vietnam exposure to herbicides.

It is interesting that the VA shows that MG is on the presumptive list  but still requires a doctor’s le…[Read more]

Old, Bald, Fat with gMG.  🙂

We have found a great way to spend time together and also plan for the future –  traveling.  Cruising.

We have been on 2 cruises since I got this thing and are signed up for 3 more.  We will cruise the Inside Passage – Alaska, the Eastern Caribbean and a big one, 28 nights in Sept ’25 to Egypt, Greece and other pla…[Read more]

My DW and I travelled Full-Time in our 42′ Diesel pusher pulling our towed all over the US visiting everything we could.  Museums, battle fields, mountains and deserts.  We enjoyed this life-style for about 8 years.

We broke down camp and hit the road to our next destination, which was Cottonwood, AZ, to Work Camp for 3 months in a beautiful d…[Read more]

I did not know there is such a day.  In this case Ignorance is Not Bliss.

I’ll look into it.

Thank you,

Scott

I always take my DW, Carol, with me to all appts.  I am fortunate that she reads most of the stuff and helps me ask questions.  We always have lots of questions.  She also has a better memory than I.

I suppose if I did not have Carol, I would ask them to read for me.  So much printed text is too small.  Mainly due to my DV I think.

Scott

Update –

Since my post above, I have had one root canal with a crown and 2 extractions.  Fear kept me from going since I got gMG.

My dentist has one other MG patient.  I brought in some educational documents prior to procedures anyway. for the office to review  Every time I come in the office I’m referred to as the MG guy.  My wife, Carol als…[Read more]

10mg/day of Prednisdone.

Tried a number of eating plans over the last few years and have decided to do Nutrisystem.

We are doing the partner plan and hope to lose 30/40 lbs.  All gained since having gMG.

I think the biggest problem is lack of calorie burning exercise.  We were fairly active b/4 the disease hit.

Scott

Had my C&P Mental Health Exam today.

Evidently my first C&P examiner listed some mental stuff in his report so had my 2nd today.

Exam went well.

We shall see.

Scott

Hi Martin –

Wonderful post – greater issue.

So sorry about what happened to you and your family.

I honestly had a hard time believing that US Soldiers were given:

Pyridostigmine bromide (PB)

Anti-nerve agent pill used during the Gulf War as a pretreatment to protect military personnel from death in an attack with the nerve agent…[Read more]

I was hoping for some responses.

Does that mean that no one has a port?

Thank you in advance for posting.

Scott

Got notification today that I have another C&P exam appt. on Jan 20th.  This one is with a Psychologist.

S

Hi Martin –

Have you filed for VA disability compensation for gMG service connection?

“38 CFR 3.309 (up to date as of 11/22/2022)
Disease subject to presumptive service connection”

https://www.govinfo.gov/content/pkg/CFR-2011-title38-vol1/pdf/CFR-2011-title38-vol1-sec3-309.pdf

MG is now accepted as a presumptive service connected…[Read more]