• Jaimie posted an update 1 month, 3 weeks ago

    I just had my first IVIG infusion. I was in the hospital for 4 days. My first treatment did not go well. I am a very hard stick. So finding a vein was hard. I took three people to find one. After flushing the port, they started the IVIg. less the 1 second it started to burn. Like HOLY F#ck this hurts. My arm felt like it was on fire. They…[Read more]

    • Hey Jaimie! How have you been doing? My heart sinks reading your experience. I’m so sorry you had to go through that. I would love to know what your current MG status is! – Jodi, Team Member

  • Jaimie and Profile picture of David SDavid S are now friends 2 months, 2 weeks ago

  • Jaimie changed their profile picture 2 months, 2 weeks ago

  • Lisa,

    Yes I do have that kind of pain.  Most day when people ask “How  bad is the pain?”. I say, “only thing that doesn’t hurt is my hair.”

  • We all thought it was my Thyroid causing all of the problems. My eye doctor did the cold pack. Then sent me to have a blood test. Yep it came back positive. I have Myasthenia Gravis. So I call the Neurologist. The could see me in 6 weeks. I screamed into the phone “I won’t make it that long”.   What do you know I got an appointment the next d…[Read more]

  • Jaimie became a registered member 3 months ago

    • Hello, Jaimie! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.

      I recommend scheduling with…[Read more]

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