@dartmama
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Jaimie posted an update 1 day, 14 hours ago
I just had my first IVIG infusion. I was in the hospital for 4 days. My first treatment did not go well. I am a very hard stick. So finding a vein was hard. I took three people to find one. After flushing the port, they started the IVIg. less the 1 second it started to burn. Like HOLY F#ck this hurts. My arm felt like it was on fire. They…[Read more]
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Jaimie and
David Seibert are now friends 3 weeks, 3 days ago
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Jaimie changed their profile picture 3 weeks, 3 days ago
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Jaimie replied to the topic Pain and Myasthenia Gravis in the forum Healthcare and Myasthenia Gravis 4 weeks, 1 day ago
Lisa,
Yes I do have that kind of pain. Most day when people ask “How bad is the pain?”. I say, “only thing that doesn’t hurt is my hair.”
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Jaimie replied to the topic Reaction to Myasthenia Gravis Diagnosis in the forum Healthcare and Myasthenia Gravis 1 month ago
We all thought it was my Thyroid causing all of the problems. My eye doctor did the cold pack. Then sent me to have a blood test. Yep it came back positive. I have Myasthenia Gravis. So I call the Neurologist. The could see me in 6 weeks. I screamed into the phone “I won’t make it that long”. What do you know I got an appointment the next d…[Read more]
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Jaimie became a registered member 1 month, 2 weeks ago
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Hello, Jaimie! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, families, and medical professionals! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
I recommend scheduling with…[Read more]
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