Activity

Hi Clair

Here in South Africa and especially the Bushveld areas like Limpopo province, where I live, the heat really gets to you. It is only 2 weeks into Spring and I get so weak and sweaty. So I decided to brave the cold pool now.  I usually only start swimming in October. Well, I braved the 19° cold pool and as I did 20 lenghts last year, b…[Read more]

I’ve not gotten any of the vaccines and have no intention of getting them.. there’s just too many unknowns for me. I am three years post thymectomy and six years living with MG. I’m generally healthy and on 40 mg dose of prednisone and or a Mestinon.  I work out every day and eat well.  I think the risk outweighs the benefit for me:)) wishing…[Read more]

I have 2 Golden Retrievers currently and am planning on getting a puppy next year. My husband’s Golden boy is 11 1/2 years old and my boy is 6. I train and show him in both obedience and rally. Show weekends are tough because they start early and run late, which is very tiring, as I need more sleep now that I used to with my MG.  I go to bed ea…[Read more]

When I turned 78, I received my first diagnosis of MG in August 2017.  It took several years to settle down to three Mestinon per day with a 10 mg dose of prednisone every other day. In December 2019 my wife came down with a serious case of C-Diff and was quite ill myself going into the new year. I came down with something that was never…[Read more]

Thank you Leora – Very helpful and appreciated.

My story is completely different than most, I had COVID before it was officially named in JANUARY 2020. I experienced my first symptoms of MG during the final days of my recovery from COVID. I was diagnosed with MG 6 months later after my symptoms had become much more severe. I have not and will not take the vaccine. I have been exposed the the…[Read more]

Hi Amy 🙂

Yes indeed, gut and gut health is so important and sadly so many people are deficient in gut health all because of a high carbohydrate, sugar laden and highly processed food intake sadly recommended as the standard western diet. It is also sad to say that so many doctors have little or no interest in nutrition and in fact receive…[Read more]

I wanted to reply and say how sorry I am that some of you are having many more severe symptoms  than I am. I was diagnosed quite quickly at a Medical University here in my state. I will share the regime my Neurologist has had  me on after I had an MG crisis 2 weeks after being diagnosed, and it seems to be working fairly well. I get IVIg for 2 d…[Read more]

live in sunny South Africa in a little province called Limpopo. Winter is over now and the heat is terrible. I now experience that the heat and humidity is having a huge impact on my life. I am weaker and sleepy vety early in the day.
<div dir=”auto”>Our cold swimming pool will be usable now and that will definately help. Last year before my MG…[Read more]

I had an MG flare after 2nd Moderna shot.   General weakness and difficulty breathing, swallowing, talking, droopy eye.   All the original pre Dx symptoms and pre thymectomy.  It all returned.   But, I kept thinking what if I had Covid and had a flare?    That outcome would likely have been worse.

Ny neurologist started me on IVIG home infus…[Read more]