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I fear you have not connected with the right Doc yet.  When is your nexp appointment?  Is the new Neuro performing the tests her self?

The EMG test, I believe, is the determining factor, to many Neuros in diagnosing MG.  My Neuro put me on Prednisdone and Mestinon before I had my EMG.  Prednisdone, 20 mg/day solved my double vision for the mos…[Read more]

Had cataract surgery in my right eye last Thursday.   What a difference.  After just a few days my right eye vision is much clearer and brighter than the left.  Most of the bluriness and what I called double vision, is clearly from cataracts.

Left eye in two weeks.

Scott

Hello, I have to agree! You have a positive antibody test for MG. Go to a different neurologist. One of them will get you started on a treatment plan.

best of luck

I am now 77 almost 78 and had my thymo operation years back, I struggle to remember age! However, I had a wonderful Neuro and she was insistent on only one surgeon to do it. He used the long hand method and went after every speck of the thymus, when I awoke, I was healed. Sight was good and my extreme weaknesses except for the surgery, which was…[Read more]

I was driving then all of a sudden my one eye was giving me a problem needed the patch  but mestion helped me and prednisone

I had my thymona removed due to cancerous  in 2008 I only had the antibodies  never had any symptoms  but then in 2022 I slipped out of bed. And couldn’t yell for help . I didn’t understand wat was going on ended in hosp  had a mg crisis. Had 10 treatments of plasma aphersis  was good for 1 yr!  Had another plasma aphersis didn’t help now I’m hav…[Read more]

So, it’s March 30th finally and I had my appointment with another Neuro today. I certainly left with mixed feelings. I will start by saying that I worked with a woman who had worked in a doctor’s office for 28 years. She said every Neurologist there had a God complex. I can kind of see that. This new doctor had a bit of an attitude when I…[Read more]

Current Age 57, Male – had Thymectomy at 53 May 2019, type of surgery VATS (Davinci robotic assisted) treatments before surgery was (Mestinon/Prednisone/IVIG) symptoms were weak extremities, difficulty chewing/swallowing/speaking and eyes – had surgery in the early evening, kept overnight for observation, left the following day with increased…[Read more]

A mediastinal mass was detected at age 65. I had no symptoms from it other than arrhythmias that came and went. I had a robotic thymectomy three years ago followed by radiation since it was invasive. I thought I was out of the woods  since I had no symptoms of MG. Five months after surgery I began experiencing double vision and ptosis, saw a…[Read more]

I’m 53 yo male, will be having surgery this spring.  Scan showed nothing “abnormal” with thymus but neurologist feels strongly that removal at my age should be standard, regardless if “normal”; she said “you have something there and we’re getting it out!”.   18-20 months since first symptoms (immediately after Covid vaccine).  My symptoms are…[Read more]

I turned 50 years old 2 days after my thymectomy, and that was in 1989.  At that time, the doctors in Austin would not perform the surgery. I went to Houston to have the tymectomy, and the doctors there performed the open chest surgery.  I was in the hospital for 10 days, and when returning home, I went on IVIG for several years.  I am happy to sa…[Read more]