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David S replied to the topic Hey all! in the forum Additional Resources 35 minutes ago
I fear you have not connected with the right Doc yet. When is your nexp appointment? Is the new Neuro performing the tests her self?
The EMG test, I believe, is the determining factor, to many Neuros in diagnosing MG. My Neuro put me on Prednisdone and Mestinon before I had my EMG. Prednisdone, 20 mg/day solved my double vision for the mos…[Read more]
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David S replied to the topic Have You Had Eye Surgery to Help Your Vision? in the forum Healthcare and Myasthenia Gravis 6 hours, 11 minutes ago
Had cataract surgery in my right eye last Thursday. What a difference. After just a few days my right eye vision is much clearer and brighter than the left. Most of the bluriness and what I called double vision, is clearly from cataracts.
Left eye in two weeks.
Scott
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Kaye Allen changed their profile picture 8 hours, 25 minutes ago
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Kim Kashmerick replied to the topic Hey all! in the forum Additional Resources 11 hours, 24 minutes ago
Hello, I have to agree! You have a positive antibody test for MG. Go to a different neurologist. One of them will get you started on a treatment plan.
best of luck
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Thomas Lee Clark replied to the topic Thymectomy-Above Age 50 in the forum Healthcare and Myasthenia Gravis 11 hours, 57 minutes ago
I am now 77 almost 78 and had my thymo operation years back, I struggle to remember age! However, I had a wonderful Neuro and she was insistent on only one surgeon to do it. He used the long hand method and went after every speck of the thymus, when I awoke, I was healed. Sight was good and my extreme weaknesses except for the surgery, which was…[Read more]
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Patricia Pauley started the topic Bite problems and myasthenia gravis in the forum Healthcare and Myasthenia Gravis 1 day, 3 hours ago
I started having bite problems last summer that came on rather suddenly, maybe not too long after I had COVID (although I have no reason to think that this is a weird COVID aftereffect). I was wondering if anyone else with MG has developed bite problems and what solution they found? My bite has shifted to the right such that my molars no l…[Read more]
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Paul H Conrad posted an update 1 day, 5 hours ago
Went on OLTOMIRIS
WILL let All know if it works in me -
Gaylee lacorte replied to the topic Eyesight Causing Driving Difficulties in the forum Healthcare and Myasthenia Gravis 1 day, 6 hours ago
I was driving then all of a sudden my one eye was giving me a problem needed the patch but mestion helped me and prednisone
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Gaylee lacorte replied to the topic Thymectomy-Above Age 50 in the forum Healthcare and Myasthenia Gravis 1 day, 6 hours ago
I had my thymona removed due to cancerous in 2008 I only had the antibodies never had any symptoms but then in 2022 I slipped out of bed. And couldn’t yell for help . I didn’t understand wat was going on ended in hosp had a mg crisis. Had 10 treatments of plasma aphersis was good for 1 yr! Had another plasma aphersis didn’t help now I’m hav…[Read more]
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Gaylee lacorte posted an update 1 day, 6 hours ago
@paulhconrad I would run to another Dr.! I have all your symptoms ihad2 mg crisis
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Wyatt M became a registered member 1 day, 12 hours ago
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Becky became a registered member 1 day, 12 hours ago
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Paul P Ellsworth replied to the topic Hey all! in the forum Additional Resources 2 days, 6 hours ago
So, it’s March 30th finally and I had my appointment with another Neuro today. I certainly left with mixed feelings. I will start by saying that I worked with a woman who had worked in a doctor’s office for 28 years. She said every Neurologist there had a God complex. I can kind of see that. This new doctor had a bit of an attitude when I…[Read more]
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Scott White changed their profile picture 2 days, 11 hours ago
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Scott White replied to the topic Thymectomy-Above Age 50 in the forum Healthcare and Myasthenia Gravis 2 days, 11 hours ago
Current Age 57, Male – had Thymectomy at 53 May 2019, type of surgery VATS (Davinci robotic assisted) treatments before surgery was (Mestinon/Prednisone/IVIG) symptoms were weak extremities, difficulty chewing/swallowing/speaking and eyes – had surgery in the early evening, kept overnight for observation, left the following day with increased…[Read more]
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Barbara A. replied to the topic Thymectomy-Above Age 50 in the forum Healthcare and Myasthenia Gravis 2 days, 13 hours ago
A mediastinal mass was detected at age 65. I had no symptoms from it other than arrhythmias that came and went. I had a robotic thymectomy three years ago followed by radiation since it was invasive. I thought I was out of the woods since I had no symptoms of MG. Five months after surgery I began experiencing double vision and ptosis, saw a…[Read more]
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Jonathon became a registered member 2 days, 13 hours ago
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Bob became a registered member 2 days, 13 hours ago
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Barry C replied to the topic Thymectomy-Above Age 50 in the forum Healthcare and Myasthenia Gravis 3 days, 3 hours ago
I’m 53 yo male, will be having surgery this spring. Scan showed nothing “abnormal” with thymus but neurologist feels strongly that removal at my age should be standard, regardless if “normal”; she said “you have something there and we’re getting it out!”. 18-20 months since first symptoms (immediately after Covid vaccine). My symptoms are…[Read more]
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Carol Mitchell replied to the topic Thymectomy-Above Age 50 in the forum Healthcare and Myasthenia Gravis 3 days, 4 hours ago
I turned 50 years old 2 days after my thymectomy, and that was in 1989. At that time, the doctors in Austin would not perform the surgery. I went to Houston to have the tymectomy, and the doctors there performed the open chest surgery. I was in the hospital for 10 days, and when returning home, I went on IVIG for several years. I am happy to sa…[Read more]
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