Bill Wheeler

Thanks, Jodi, for approaching a topic that is often avoided but of significant importance to many of us. There was an article recently in Forum and it mentioned adapting to what your situation requires. My wife is a lot younger than I but was diagnosed 14 years ago with Chronic Fatigue and Sjogrens Disease; Chronic causes tiredness just like MG…[Read more]

I just simply say “no thanks, my strict wife says no alcohol allowed” and people laugh but stop offering. I dont want to share my MG or meds with anyone...too personal. I may ask for a soft drink if I think it is an option. Many people do not drink alcohol these days; I do have a glass of wine often at home but are very careful about its affects.

Third Pfizer shot, no problems, also received quadravalent high dose Flu shot, felt a bit “off” for a day or so. Very thankful.

I have been on meds for 13 months, Pred and Mestonin I can tolerate a wine or two but my eye muscles “jump” within minutes of drinking a glass and occasionally my sight clarity is slower to respond for just a few minutes. As I have a strict disciplinary wife regarding my behavior, I am careful about my consumption. I am limited to one glass on…[Read more]

Jodi,

Best of luck to you on your first post surgical trip! You will do fine I am sure; stop when necessary for a break and refreshments as well as to look for something interesting, even at a highway rest stop!

I am only 1 year in with my MG but dont dwell on what ifs because I fully expect any flare ups will be only a minor inconvenience, a…[Read more]

I received 2 shots, Pfizer, no reaction other than sore arm for 2 days.

I have used a Hot Tub for 8 months post-diagnosis as I was never told heat could cause problems; I never had any negative effects that I recall. We sold that property and moved about 4 months ago and dont have aa Hot Tub at our new house. Hot showers seem to ease my muscle and joint pains as well as the overall malaise that sometimes accompanies…[Read more]

My biggest spoons detractor is myself; it has taken me a year to understand I can`t push myself to the limit with regards to my work or self imposed responsibilities and schedules. If I overdue, I pay the price with more night time leg cramps and general malaise the next day. Maybe I have been trying to prove to myself that I am back to pre-MG…[Read more]

Hi All! I was a high activity man, age 72, when diagnosed July 2020…just a year ago. Hiking, swimming, water skiing, boating, maintaining a couple of homes and a lot of acreage. Got up July 4th after a week of extreme heat and working on redoing a long driveway for 5-6 hours a day, digging and shoveling and hauling dirt and gravel, and was…[Read more]