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Bill Wheeler replied to the topic Intimacy, Sexual Relations, and Myasthenia Gravis in the forum Relationships & Social Life with Myasthenia Gravis 5 months, 2 weeks ago
Thanks, Jodi, for approaching a topic that is often avoided but of significant importance to many of us. There was an article recently in Forum and it mentioned adapting to what your situation requires. My wife is a lot younger than I but was diagnosed 14 years ago with Chronic Fatigue and Sjogrens Disease; Chronic causes tiredness just like MG…[Read more]
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Bill Wheeler replied to the topic The Holiday Season, Alcohol, and How to Say No in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 8 months, 1 week ago
I just simply say “no thanks, my strict wife says no alcohol allowed” and people laugh but stop offering. I don
t want to share my MG or meds with anyone...too personal. I may ask for a soft drink if I think it is an option. Many people do not drink alcohol these days; I do have a glass of wine often at home but are very careful about its
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Bill Wheeler replied to the topic COVID-19 Vaccine Booster Shot and Myasthenia Gravis in the forum Coronavirus (COVID-19) and Myasthenia Gravis 8 months, 3 weeks ago
Third Pfizer shot, no problems, also received quadravalent high dose Flu shot, felt a bit “off” for a day or so. Very thankful.
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Bill Wheeler replied to the topic Can You Tolerate Alcohol? in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 10 months, 4 weeks ago
I have been on meds for 13 months, Pred and Mestonin I can tolerate a wine or two but my eye muscles “jump” within minutes of drinking a glass and occasionally my sight clarity is slower to respond for just a few minutes. As I have a strict disciplinary wife regarding my behavior, I am careful about my consumption. I am limited to one glass on…[Read more]
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Bill Wheeler replied to the topic The Threat MG May Stop the Fun in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 11 months, 2 weeks ago
Jodi,
Best of luck to you on your first post surgical trip! You will do fine I am sure; stop when necessary for a break and refreshments as well as to look for something interesting, even at a highway rest stop!
I am only 1 year in with my MG but don
t dwell on what ifs because I fully expect any flare ups will be only a minor inconvenience, a…
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Bill Wheeler replied to the topic The Vaccine: Experience & Side Effects in the forum Coronavirus (COVID-19) and Myasthenia Gravis 11 months, 2 weeks ago
I received 2 shots, Pfizer, no reaction other than sore arm for 2 days.
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Bill Wheeler replied to the topic Hot Baths/Showers and Myasthenia Gravis in the forum Hacks, Suggestions, and Tips for Living with Myasthenia Gravis 11 months, 2 weeks ago
I have used a Hot Tub for 8 months post-diagnosis as I was never told heat could cause problems; I never had any negative effects that I recall. We sold that property and moved about 4 months ago and don
t have aa Hot Tub at our new house. Hot showers seem to ease my muscle and joint pains as well as the overall malaise that sometimes accompanies…
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Bill Wheeler replied to the topic Preventing Others From Taking Advantage of Our Spoons in the forum Relationships & Social Life with Myasthenia Gravis 11 months, 3 weeks ago
My biggest spoons detractor is myself; it has taken me a year to understand I can`t push myself to the limit with regards to my work or self imposed responsibilities and schedules. If I overdue, I pay the price with more night time leg cramps and general malaise the next day. Maybe I have been trying to prove to myself that I am back to pre-MG…[Read more]
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Bill Wheeler posted a new activity comment 1 year, 1 month ago
Thank you, Jodi, for your supportive reply! I look forward to interaction with other MG people and learning from their stories. Hope you are recovering well from your surgery.
Bill
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Bill Wheeler replied to the topic Abnormal Fatigue Impacting Your Quality of Life? in the forum Mental Health, Self-Care, and Support 1 year, 1 month ago
Hi All! I was a high activity man, age 72, when diagnosed July 2020…just a year ago. Hiking, swimming, water skiing, boating, maintaining a couple of homes and a lot of acreage. Got up July 4th after a week of extreme heat and working on redoing a long driveway for 5-6 hours a day, digging and shoveling and hauling dirt and gravel, and was…[Read more]
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Bill Wheeler posted a new activity comment 1 year, 1 month ago
Welcome, Susan, I just became a member a couple of hours ago, too!
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Bill Wheeler became a registered member 1 year, 1 month ago
Hello, Bill! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
Please familiarize yourself with our forum rules in the…[Read more]
Thank you, Jodi, for your supportive reply! I look forward to interaction with other MG people and learning from their stories. Hope you are recovering well from your surgery.
Bill