Sandra Davis

I’ve had those shoulder and neck pains since my diagnosis 4 years ago. My MG Dr. also said it was unrelated.Then I saw a spinal surgeon, who sent me for neck injections, which gave me relief.The next neuro. visit the did their routine muscle tests, and pushed my head around
(to check strength), and the pain returned, and has been with me…[Read more]

I aam treated with plasma exchanges, only right now. I was doing well enough to start aquatherapy, until the vaccine. I had 2 doses of Moderna, and the booster, with no pain,
but now have severe dysphagia and double vision. However, have been spared the covid illness. I guess it’s a trade-off. I would do it again, though.

I developed breast cancer 18 mos. ago. At first I thought it was going to be my way out of life with MG. Was that discouraged by my lack of relief from the symptoms. I was fortunate to have a great oncologist, and she put me in touch with a neurologist that eventually got me into an aphoresis program, and this has helped my mood, as I am now able…[Read more]

Edward, I think you will find that one of the common side effects of prednisone is swollen cheeks. Sometimes there is redness along with it. I am surprised that your MD didn’t know or disclose this to you.

Yes, my exposure was to drugs injected into my body. Don’t forget that these are Chemicals, too.

My double vision and spasms in my 4th and 6th cranial nerves started the day after I had a complicated root canal. I was given extra doses of lidocaine during the dental procedure, because it took longer than expected. After 10 days of double vision,…[Read more]

I didn’t fully address your question, Michelle. I hold onto a stable piece of furniture or a counter or anything immobile with one hand while reaching down to the floor to pick something up inside the house. My depth perception is off, so I may miss the end of something I am placing things upon. I frequently drop things in the kitchen while…[Read more]

I fell on a sidewalk twice,  one of my legs just gave way under me. I started using a cane after that. I always use it outdoors, now and have had no more falls. Indoors I walk carefully, and have eliminated throw rugs, and am very cautious on the stairs, and also use both side hand rails. My bedroom is upstairs. On a bad day, I make 1 round t…[Read more]