@rossno
-
Norman Ross replied to the topic Pyridostigmine Side effect or allergic reaction? in the forum Healthcare and Myasthenia Gravis 2 weeks, 2 days ago
So sorry to hear of your negative reaction to Pyridostigmine. I have had gMG for over six years. For the first four years I was taking 60mg Pyridostigmine @ 3 to 4 per day. The nighttime leg cramps were horrible. I modified my medication to 2 Pyridostigmine per day (morning and noon), and 500mg Mycophenolate @ 1 per day (5:00pm). The leg cr…[Read more]
-
Norman Ross replied to the topic Pain and Myasthenia Gravis in the forum Healthcare and Myasthenia Gravis 10 months, 4 weeks ago
I have had gMG since 2017. The first year or so I was taking 60mg pyridostigmine 4 times per day. The frequent night time leg and foot cramps were horrible, and I had to stand up to relieve the tension in my muscles. Then, I read a post on this forum that was written by a fellow who converted to cellcept. Now, I take 2 pyridostigmine bef…[Read more]
-
Norman Ross replied to the topic Chemical exposures and MG in the forum Myasthenia Gravis Research, Scientific News, & Clinical Trials 1 year, 3 months ago
In 1984 I accidently treated myself with chlordane by brief gusty winds that caused the chemical to contact my skin. I soon realized that the chemical was damaging my nervous system, and took an extensive cool shower to alleviate the pain, but to no avail. A trip to the emergency room was necessary. The treatment was cool compresses over the af…[Read more]
-
Norman Ross posted a new activity comment 1 year, 5 months ago
I spoke with my doctor and started 250mg mycophenolate (generic for cellcept) twice a day, and the leg cramps stopped, but I was not as strong as with pyridostigmine. We upped the dosage to 500mg tablets twice a day, and that helped somewhat. Still lacking the results that I was hoping for, I now take 500mg mycophenolate twice a day alternating…[Read more]
-
Norman Ross posted an update 1 year, 5 months ago
Bionano Genomics Inc has developed the Saphyr System to quickly analyse chromosomes.
Now, they have used the Saphyr System for opticla ge;nome m,apping (OGM) to accurately identify and analyse the cause of faciocapulohumer muscular distrophy (FSHD). Reference: https://finance.yahoo.com/news/largest-clinical-research-study-date-120000506.html.…[Read more] -
Norman Ross posted an update 1 year, 7 months ago
@rfedermann I found cellcept via GoodRX.com at Kroger pharmacy (ie. Smith’s in Nevada) for $52.64 for 180 500mg tablets. I will be discussing a try of this with my Dr. this month.
Thanx. -
Norman Ross became a registered member 1 year, 8 months ago
-
Hello, Norman! We are thrilled to have you as part of our inclusive and judgment-free community of MG patients, caregivers, and families! Within the Myasthenia Gravis News Forums, we implement a safe space to share and discuss experiences, information, and news and offer guidance and support.
What is your favorite recommendation for Nevada?! For…[Read more]
-
Hi, Norman. Let us know how the cellcept goes. My Neuro was going to try it last yr. But with COVID on the rise, he said wait on it. I’m thinking about bringing it up again too.
-
I spoke with my doctor and started 250mg mycophenolate (generic for cellcept) twice a day, and the leg cramps stopped, but I was not as strong as with pyridostigmine. We upped the dosage to 500mg tablets twice a day, and that helped somewhat. Still lacking the results that I was hoping for, I now take 500mg mycophenolate twice a day alternating…[Read more]
-
-
-
