Maria

I’ve been diagnosed for 30 years. Some doctors said/say I don’t have it because I’m antibody negative. But the doctors I trust the most, say if it walks like a duck and quacks like a duck, it is a duck. Unfortunately, I’ve been on prednisone most of that time. Anywhere from 20 mg to 100 mg. I don’t think I can survive without it, as much as I…[Read more]

I agree Marlene. I’ve had MG for 30 years. I hate the way it invades every part of my life, but I can’t dwell on it. I try to think about what I can do. I miss the sex life we did have, but we try to make the best of it. My husband jokes that all I have to do is lie there, which is the way it usually ends up. But if we get to have that clo…[Read more]

Hi everyone. I too am antiobody negative.  I’ve been tested so many ways. It has been difficult to find a neurologist that actually believes me.

BBernatte, your diagnosis sounds a lot like mine. The tesilon test is the only test that had positive result.  But clinically I present with MG.  (If it looks like a duck and quacks like a duck, it…[Read more]

I, too, have shortness of breath with any excertion.  When I lie down and still continues, I know I’m in trouble.

Don’t you love it when doctors give up on you?  Good luck at Mayo!

I lived not far from a tannery for 18+ years.  The building was later demolished but nothing could be built on the land because of the contamination.  There was also a gasoline refinery that produced a huge orange glow nightly.  I was told it was very possible that it caused my myasthenia.

I, too, find myself resenting those that can do.  It is very difficult when your independence is taken away.  Most days, I can’t drive.  (Some days, I can’t walk.) I don’t like myself when I feel jealous, but I tell myself it is normal to some degree.  I really hate when it is my husband I find myself resenting and being jealous of.  He does so m…[Read more]

They are amazing! It allowed us to stay in our home for years. My husband retired last year and we moved to Florida to a single story home. I didn’t realize how much the stairs were draining me because I only used the chair if I felt I needed it, so most mornings, I didn’t. Boy was that stupid! I could do so much more here and the only thing I can…[Read more]