Lou Venema

Hello folks. Thanks for the responses so far. I will be studying what you shared with official documents to see what they promise. I will be getting my first infusion next week so I better start studying up. I will share my progress until I get up to speed. I  am very run down right now so any change ought to be apparent.

Lou

What is a NEXUS letter?

Another step done and probably another check mark on  the disability list.

Hello Randy. I was at the Newport chemical facility from 2003-2008 when they finished VX neutralizations. It was there that I figured out something was wrong because I tripped so much walking around the plant. My eye doctor suspected mg and the opthamologist confirmed it. I was working on a claim anyway with VA so was referred to a neurologist…[Read more]

That’s great! Good Luck.

Lou

Fantastic, Guys!

For those who may be interested in getting a Veteran Service Officer to help file a VA claim, or appeal, here is some information to get you started. Amvets are not the only service group to offer assistance and will work much like this article. There services are free.

Lou

https://www.amvets.org/free-help-filing-va-claims

Kirsten,

Try talking to a Veteran’s Service Officer as noted in my previous message.

Good Luck.

Good luck, David. Remember the special words  the VA is looking for. Read the docket if you can, quite interesting. Also be sure to get with a VSO from one of the veteran’s organizations. You will need someone to handle the appeal.

I have ebbn doing IVIG for about 8 years and so far no infections. That may be about to change.

I was recently in the hospital for chest pain that was identified as pericarditis. I am working with a doctor to find out why my blood counts are going up and down. I get a chill when he is talking as I hear things like IVIG can cause infection,…[Read more]

I have found a very interesting case that will probably interest our members.

Citation Nr: 1539119
Decision Date: 09/14/15 Archive Date: 09/24/15

DOCKET NO. 11-05 846 ) DATE
)
)

On appeal from the Department of Veterans Affairs Regional Office in Cleveland, Ohio.

This appeal is a case that answers how to get myasthenia gravis as service…[Read more]

Having a port blocked is necessarily a reason for replacement. I have had my port for 8 years. I was having blockage problems for a while.

The practice at the VA is to remove the infusion tube, then do a push/pull and then finish the flush using saline. That is followed by a flush with heparin.

Sometimes during a blockage they could use a…[Read more]

I recently purchased a new monitor with blue light blocker. My double vision is not affected by the blue light. However, the reduction of blue light does decrease the strain on the eyes, which causes  the double vision. Anything that will decrease the eye strain will help the double vision, to varying degrees.

Lou

Getting a port was the best thing I did! Getting an IV started was beginning to be a real problem.The veins usually used became weakened. Very few IVs started and worked for the whole infusion. Either the vein could not be accessed of the vein would blow and we had to start over again.

I have only had one problem with the port. The end of the…[Read more]

You have to keep the doctor in the loop if you are having problems with the treatment. When I started the journey in 2009 I was was put on all the different medications. Luckily I was switched to another nuero team and that made a big difference.

After only problems with the medications was IVIG tested. I had no problems with the first infusion…[Read more]

I was in VietNam 67-68. I was in the Central Highlands from the coast to Cambodia. The majority of my time was spent with the forward battalion headquarters. We travelled a lot via ground or air. We did a lot and saw a lot. I saw a lot of white stuff being sprayed by fixed wing aircraft  and helicopter. I don’t know if I was exposed or not. I…[Read more]

Now, on to what I have done and now do.

One trick I was told was to do some rapid eye movements, in a circle. That is a short term “cure”.

Don’t stare at anything. It strains the eye and makes matters worse.

To reduce eye strain, and tilt, while working I have different glasses. I have one for computer or model building. I have another for…[Read more]