I’m a New York City native now living in Manila, Philippines. I enjoy living here, but the infrastructure is lacking, and the streets aren’t always physically safe. Once I went on a long-distance walk and badly twisted my ankle. It took about two weeks before I could comfortably walk on…
Living with gMG As a nurse supervisor and father with a passion for building furniture, William was used to being on his feet for hours on end. But after years of long hospital shifts assisting patients, time dedicated to his woodworking craft and chasing after an active 12-year-old, he began…
Nine-time tennis Grand Slam champion Monica Seles, who has myasthenia gravis (MG), is teaming up with pharmaceutical company Argenx on a campaign aimed at raising awareness — and increasing understanding — of the rare neuromuscular disease. “I am excited to partner with the Argenx team — to inspire…
Despite being a key figure in early American history, his story isn’t taught in most American history classes. His name was Chief Opechancanough and he played a pivotal role in the struggle between the Native Americans and English colonists. Even without his military and political accomplishments, he still deserves a…
Ultomiris (ravulizumab-cwvz) is now closer to being covered by public Canadian healthcare systems when used to treat adults with generalized myasthenia gravis (gMG) who are positive for antibodies targeting the acetylcholine receptor (AChR) — one of its approved indications in the country. That’s according to its developer…
Heat and cold are some of the most common triggers for flare-ups in people living with chronic illnesses. For me and my myasthenia gravis (MG), summer has always been the toughest season. Almost all of my breathing difficulties have happened during hot months. Over time, I realized I couldn’t…
Certain inflammatory molecules known as cytokines may play a role in a person’s risk of developing myasthenia gravis (MG), according to a recent genetic study. The research suggests some of these immune-system signaling molecules could increase the risk of the autoimmune disease, while others might offer protection. The findings, which…
Author and essayist Anne Lamott once wrote that “faith includes noticing the mess, the emptiness and discomfort, and letting it be there until some light returns.” In the five years since I was diagnosed with myasthenia gravis (MG), uncertainty has become a mess that calls for daily accommodation. My…
Two genes that help to control the human body’s biological clock are dysregulated in myasthenia gravis (MG) — a disease marked by symptoms that often grow worse throughout the day — according to the findings of a new study from China. Study data indicated that dysregulation of these genes,…
Dear myasthenia gravis (MG), This note isn’t easy for me to write, but I think it’s time we break up. I could be cliché and say it’s not you, it’s me. But let’s be real, you’re the star of the show, my dear myasthenia gravis. So it is, unfortunately…
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