Lately, I’ve been repeating the same sentence to anyone who asks me why I don’t do something: “It’s not my priority.” But the more I’ve said it, the more it echoes inside of me. Why am I living in survival mode? Why am I only taking care of “priorities”? Then…
My journey with myasthenia gravis (MG) began when I was only 13 years old. At first, I experienced weakness in my arms and legs, which I thought was just normal tiredness from being active in school and playing a lot. I ignored it, but as the months passed, more…
Living with myasthenia gravis (MG) has taught me that words are as important as medicine. The language we use to describe illness can shape how others perceive us and how we view ourselves. Doctors have a vocabulary developed through years of education and experience, while our loved ones…
A European Medicines Agency (EMA) committee recommended that the agency approve nipocalimab as an add-on treatment for generalized myasthenia gravis (gMG) patients aged 12 and older who have antibodies against acetylcholine receptor (AChR) or muscle-specific kinase (MuSK). The Committee for Medicinal Products for Human Use (CHMP) recommendation comes a…
As I enter my 50s, I find myself living alone as an expatriate in Asia, and I constantly worry about accidentally injuring myself. I’m particularly concerned about slipping and falling. I’ve realized that as we age, it’s essential to prioritize safety. Recently, I had a conversation with my twin brother,…
People who begin experiencing symptoms of generalized myasthenia gravis (gMG) at the age of 65 or older tend to have a more aggressive initial disease course — but a more favorable prognosis over the following two years. That’s according to a new study from Greece that investigated the short-term…
I went through a long phase in which I proudly followed a minimalist lifestyle. I was totally against gadgets, especially the small ones that seem unnecessary. Garlic crushers in the kitchen? Useless. Those mini massage tools advertised all over social media? Just clutter, or so I thought.
For Albert, life has always been a balancing act. Managing his family farm and a portfolio of real estate investments—often with his five grandchildren by his side—not only requires the right strategy but also a deep understanding of the value of hard work and family. Whether managing a herd of…
Six years ago, before my myasthenia gravis (MG) diagnosis, I decided that I wanted to be more focused and intentional. To assist with this, I bought an app for my Apple Watch that reminds me every two hours to pause and spend a minute focusing on my breath. During…
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