Mornings and I have an understanding: If I allow myself the time I need to ease into the day, things go relatively smoothly. If I don’t? Let’s just say it’s a recipe for disaster. I know myself well enough to acknowledge that because of my myasthenia gravis (MG), I…
This column describes the experiences of the author’s brother with side effects to several MG medications. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Comedian Chris Rock was at the peak of his creative powers in 1999, when he…
Like many others, being diagnosed with myasthenia gravis was a turning point in my life. Before my diagnosis, school sports were a nightmare. Running, basketball, and other physical activities left me exhausted and discouraged while everyone else seemed to thrive. After my diagnosis,…
Most people with very late-onset myasthenia gravis (MG) — patients in whom symptoms start to manifest at age 65 or older — who are positive for self-reactive antibodies against acetylcholine receptors, or AChRs, show significant clinical improvements within two years of disease onset, according to a new study…
Cartesian Therapeutics has aligned with the U.S. Food and Drug Administration (FDA) on the design of the planned Phase 3 AURORA trial that will test its investigational cell therapy Descartes-08 in people with myasthenia gravis (MG). The FDA, under its special protocol assessment process, provided written agreement…
Nipocalimab outperformed a placebo at easing the severity of generalized myasthenia gravis (gMG) in a Phase 3 clinical trial called Vivacity-MG3. Full results from the trial were detailed in the study, “Safety and efficacy of nipocalimab in adults with generalised myasthenia gravis (Vivacity-MG3): a phase 3,…
This week, I turn 41. Some days, I’ll catch my reflection in the mirror and feel a deep sense of pride in the person looking back at me. I’ll see the strength I’ve built, the lessons I’ve learned, and the resilience that has carried me through these 41 years. Then…
Dr. Seuss once said, “Sometimes you will never know the value of a moment until it becomes a memory.” That’s another way of saying you never know what you have until it’s gone, whether it’s a relationship, a material item, or a mindset (such as innocence). It’s nice to remember…
I often talk about strength and resilience because I feel a deep need to share these traits with others who are navigating chronic illnesses or invisible disabilities. Motivating and inspiring others is a blessing that gives my own struggles with myasthenia gravis (MG) a purpose. But let’s turn the…
People who are genetically predisposed to myasthenia gravis (MG) are more likely to develop Graves’ disease and Hashimoto’s thyroiditis, two autoimmune diseases of the thyroid gland, according to a study in China. Researchers also found a genetic link in the opposite direction, where being genetically predisposed to Graves’ disease…
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