“It’s the things that are left unsaid that take up the most space in our hearts.” I don’t know who wrote that, but it reminded me about how much has been left unsaid between my twin brother, Aaron, and me. Aaron’s myasthenia gravis (MG) diagnosis in 1999, at the…
Here we are again: I have new symptoms. And no, I am not excited about seeing more doctors. After spending 10 years searching for a diagnosis before finally finding out I have myasthenia gravis, I now limit my medical appointments to only the most urgent and important ones.
Myasthenia gravis (MG) may be more likely to begin manifesting in the summer, with the onset of symptoms more common in hotter weather, according to a new study by researchers in Italy. The team theorized that the increased incidence of MG may occur because temperatures at that time of…
A 39-year-old woman with severe myasthenia gravis (MG) associated with a thymoma, a thymus tumor, responded favorably to treatment with Ultomiris (ravulizumab), according to a case study from clinicians in Greece. The treatment successfully managed the woman’s rapidly evolving symptoms in the acute setting. The patient later underwent…
The COVID-19 pandemic caused emotional challenges for many people with myasthenia gravis (MG) in Australia, but how well their disease was treated or how well their symptoms were kept under control weren’t affected, a survey study finds. “As we continue to live with COVID-19, clinicians should consider its various…
Listen up, my fellow seronegative warriors. This is your wake-up call. I know the fight you’re in with myasthenia gravis (MG) because I’m in it, too. You’ve been poked, prodded, and told, “But your tests are normal.” You’ve seen the raised eyebrows, felt the silent doubts, and…
In the Irish writer Oscar Wilde’s play “The Importance of Being Earnest” (1895), he writes that memory “is the diary that we all carry about with us.” Still, our memories can’t always be trusted; some scientific research even suggests that our memories can be unreliable. Emotions, voluntary…
Tofacitinib, an approved medication for some types of inflammatory arthritis and inflammatory bowel disease, may also help treat myasthenia gravis (MG), a new study done in an animal model and cell samples suggests. Treatment with tofacitinib was found to ease muscle weakness and weight loss in a rat model…
Whether it’s a work meeting, family gathering, or friendly meetup, I always feel the need to mention that I might have to cancel due to my chronic illness. But most people don’t seem to fully understand this. I remember watching a discussion on French TV where a woman said something…
1 Kings 19 tells the story of the prophet Elijah’s search to encounter God. Elijah looks for God in a great and powerful wind, an earthquake, and a fire, but has no success until he hears a “gentle whisper.” It turns out that God’s presence is quiet and…
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