The seronegative roar: A battle cry for the invisible warriors

Listen up, my fellow seronegative warriors. This is your wake-up call.

I know the fight you’re in with myasthenia gravis (MG) because I’m in it, too. You’ve been poked, prodded, and told, “But your tests are normal.” You’ve seen the raised eyebrows, felt the silent doubts, and wondered if maybe, just maybe, you’re imagining it. Let me tell you right now: You are not.

You are not weak. You are not lazy. You are not making it up.

You are a warrior. A battle-worn, bone-deep exhausted, sometimes-need-to-sit-on-the-floor warrior. And I need you to stop tearing yourself down like you’re the enemy. The world does enough of that for us.

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We may not have the lab results that scream “disease” to the world, but we have the truth written in every breathless step, every dropped fork, and every moment we push through the fog and fatigue. Our battle isn’t less real just because it’s harder to see.

And yet, I know how easy it is to doubt yourself. When doctors shrug or tests come back “normal,” the seed of self-doubt plants itself deep. You start questioning if you’re overreacting, if you’re just out of shape, if maybe you’re just broken in some way you can’t explain.

But hear me: You are not broken.

You’re carrying an invisible weight that most people will never understand. And instead of letting it crush you, you still show up. Maybe you show up differently than you used to. Maybe some days, showing up looks like getting out of bed, brushing your hair, and making it to the couch. Maybe other days, you take on the world and then pay for it later.

Both of those are victories.

You know your body

Do not let a faulty test define you. Do not let a doctor’s doubt write your story. You know your body. You know your struggle. And if no one else is listening, then fine; we’ll listen to each other.

So here’s what we do: We get up when we can. We rest when we must. We fight with everything we’ve got.

We advocate for ourselves. We educate those who don’t understand. We push for answers, for treatments, for the recognition we deserve. And in the meantime, we refuse to shrink under the weight of this illness.

I won’t sugarcoat it; this fight can be brutal. The exhaustion is relentless, the muscle weakness unpredictable, and the frustration of being dismissed is a wound that never quite heals. But you’re not alone in this battle. We stand together, an army of the unseen, refusing to be ignored. (If you need support, please join us over in the forums.)

So stop the self-loathing. Stop the guilt. Stop waiting for someone else to validate your pain before you allow yourself to take up space in this world.

You are enough. Right now. As you are.

MG may be strong, but so are we.

Now pick yourself up, warrior. You’ve got a battle to fight.

Note: Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Myasthenia Gravis News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to myasthenia gravis.