How I maintain independence in my personal hygiene, despite MG
Asking for help with tasks like showering can benefit those living with MG
People tend to take certain abilities for granted, refusing help even if the need arises. Call it pride, embarrassment, stubbornness, or denial, but the result is the same: Some tasks may not get done if the person doesn’t request assistance.
That includes activities of personal hygiene, such as bathing or showering, brushing teeth, styling hair, applying makeup, or shaving. Most people assume they’ll never need help with these things — at least, not until they reach a more advanced age. Yet myasthenia gravis (MG) can take these abilities from us, even at an early stage of the disease.
Until recently, I’d often avoid bathing. I didn’t want to burden my husband, Justin, by asking for help during the day, so I’d wait until the evening to shower. But by the time evening rolled around, I was too tired to sit on my shower chair. So I wouldn’t shower. Days would go by, and I’d reassure myself that I wasn’t a nasty slob of a person because I was using wipes to clean up the necessary delicate areas.
On the days when I did shower, I wouldn’t wash my hair because my arms and hands were too weak and tired for the job. Many times, I’d just sit under the hot water and trick myself into believing it was rinsing away the filth well enough.
I’d go weeks without brushing my teeth because toothbrushes with a large oval or rectangular head would cause mouth weakness and my arms would be too heavy or tired to hold it. My hubby hasn’t had to help me with this task, though, as we’ve found ways to work around the issues.
In previous columns, I’ve mentioned how I never admitted to anyone that I needed help with showering and maintaining my hygiene until Justin asked me about it. I was depressed and angry that MG had taken my ability to perform these intimate tasks. And I was embarrassed to request assistance.
The importance of asking for help
But by asking for (and accepting) help, I finally had someone to talk to about my struggles. Justin encouraged me to discuss the issues with my care team, and they recommended an electric toothbrush with a small head that makes brushing my teeth on my own much easier.
My husband also helped me brainstorm ways that I could maintain independence with personal hygiene. He told me he didn’t care about my hairy legs, but if shaving them made me feel better, he’d help me to do it. I haven’t shaved my legs in over a year. I stopped caring what society thinks; plus, I’d rather expend my energy elsewhere.
While Justin sometimes helps me wash my hair, I still don’t like asking for assistance with both the washing and the conditioning. Call it stubbornness if you want. But that stubbornness led me to discover that while sitting on my shower chair, leaning forward with my elbows tucked at my side, I can reach my head and condition my hair on my own.
Showering still fatigues me, though. Because I recently switched from evening to morning showers, I now need three hours before I’m ready for the day. I wake up, take my medications, wait 20 minutes for them to start kicking in, and then I shower. If I think I’ll need help, I let my husband know so he can prepare.
I use the shower chair whether I feel I need it or not so that I can conserve my strength and energy. While sitting there, I remind myself that I’m not in a race to see how quickly I can finish my shower. I take my time and take a break between tasks.
Wash hair and face. Take a break. Apply conditioner. Take a break. Wash upper body. Take a break. Rinse conditioner out of my hair while washing lower body. Take a break.
After I’m done showering, I get dressed with my hair wrapped in a towel and take another break for at least 20 minutes. If I’m feeling up to it, I’ll then style my hair and apply makeup.
I’ve had a lot of trial and error to find a routine and work-rest cycle that work for me, but I was able to do so with the help of my husband and care team.
Remember, you can keep living your best life while managing myasthenia gravis. You might just have to get creative.
Note: Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Myasthenia Gravis News or its parent company, BioNews, and are intended to spark discussion about issues pertaining to myasthenia gravis.