Top-line findings in Phase 3 batoclimab trial likely by late March

High healthcare costs for myasthenia gravis patients, carers

People with myasthenia gravis (MG) face a mean annual healthcare cost of nearly $16,000, according to a survey of MG patients and their caregivers. Medications and treatments accounted for most out-of-pocket expenses (27%), followed by insurance premiums (20%), diagnosis (15%), and caregiving assistance (14%). “Disseminating the findings of this…

3 ways to practice self-love with myasthenia gravis

Living with myasthenia gravis (MG) can feel like riding an unpredictable roller coaster. Some days, we coast along smoothly, while on others, it’s like the track was built by a mischievous toddler with a love for loops. With fluctuating muscle strength and fatigue, learning to love and care for…

In England, disease burden is high for newly diagnosed MG patients

People newly diagnosed with myasthenia gravis (MG) in England experience a high disease burden, with about two-thirds having at least one exacerbation, or an episode of disease worsening, and approximately half having one MG-related hospitalization. That’s according to a new study led by researchers from the pharmaceutical company…

Because of myasthenia gravis, I don’t drive anymore

For the longest time, I thought the biggest obstacle to driving would be my foot pain. I never considered that myasthenia gravis (MG) would affect my ability to drive. My foot pain — unrelated to MG — would come and go, so for a while, I avoided driving because…

Even with myasthenia gravis, all shall be well

Julian of Norwich’s “Revelations of Divine Love” — which she’d originally recorded in 1373 — was first published in 1670. Still in print, this classic of Christian mysticism has influenced unknowable numbers of readers, myself included. I’d like to share how this book has affected my personal philosophy and…

Guest Voice: My journey with ocular MG and ketogenic metabolic therapy

Hannah Kaye is a nutritional therapist based in Cape Town, South Africa. She has been supporting clients with autoimmune diseases and mental health issues using functional nutrition and lifestyle interventions for the past 15 years. She was diagnosed with ocular myasthenia gravis (MG) in September after a long battle…