The most devastating blow since my myasthenia gravis diagnosis a year ago has been the loss of my career path, which was my passion. My symptoms began a month before the last semester of my undergraduate degree. Although I am eternally grateful that I received a rapid diagnosis, with that…
One year of rituximab therapy was effective in people with myasthenia gravis (MG) ages 65 or older, with no significant differences in response or safety seen in this older patient group relative to younger patients, an analysis of medical records found. “Rituximab should be considered in the treatment…
I was diagnosed with myasthenia gravis (MG) at the self-centered age of 19. Ah, 19, that beautiful age when we think no one else in the world has worse problems than we do. While I wasn’t a total monster at that age, I was handling my problems in unnecessarily dramatic…
Registration is now open for Global Genes‘ 2021 RARE Patient Advocacy Summit. This year’s hybrid event will be livestreamed from California Sept. 27-29, and some seats also are available for attending the event in person in San Diego. “Here you’ll have the opportunity to connect and engage with others…
Altered production of circular RNA impaired the process of muscle cell growth and regeneration in people with myasthenia gravis (MG), a study has suggested. More studies investigating the role of circular RNA in MG may identify new molecular markers to monitor disease progression and reveal therapeutic targets, the researchers…
Kindness is not a pass for people to take advantage of us or treat us poorly. We can be compassionate and still say no to being treated inadequately. Those of us with myasthenia gravis (MG) are not responsible for other people’s reactions or their inability to adjust to our boundaries…
Life with chronic illness is a constant game of comparison. I either compare myself with my healthy peers, or with other medically complex young people. Recently, I’ve found someone new to compare myself with: the healthy version of me that lives in a parallel universe. I’m currently responding well to…
Therapeutic plasma exchange improved symptoms related to hard-to-treat myasthenia gravis, resulted in reduced use of immunosuppressants, and was well-tolerated by patients, according to a new study. That study, “Clinical experience with maintenance therapeutic plasma exchange in refractory generalized myasthenia gravis,” was published in the Journal of…
For the past three years of my life, August has been one of the most stressful months of the year. For others, August often is the beginning of that weird time between summer and fall. But for teachers like me, it’s the start of a new school year. From…
Registration is now open for the 2021 Rare Diseases and Orphan Products Breakthrough Summit, which will be held virtually Oct. 18–19. The event, also known as the National Organization for Rare Disorders (NORD) Summit, brings the rare disease community together to network and discuss developments in treatments and research into…
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