Author Archives: Jodi Enders

MG Distracts Me From Healing From Trauma

Trauma can result from scary, emotionally disturbing, or threatening events. Any event can be traumatic, depending on how the person perceives it. The effects of trauma Trauma can have harmful effects on health, functioning, and overall well-being. The Trauma-Informed Care Implementation Resource Center website notes that exposure to…

We Need to Stop Feeling Like a Nuisance

I believe it’s common for those with chronic illness to dwell on the fact that we can feel like a burden to others. Life with a disease, especially right after diagnosis, can make us susceptible to self-condemnation and feeling like a nuisance. Because we suddenly have more needs than we…

Traveling With MG for the First Time

Going on road trips is one of my passions. I love it because it is better for the environment than flying, and traveling in a car allows for a healthy mix of adventure and never knowing what you might come upon. Life is short, but road trips were how I…

3 Months After Surgery, the Healing Still Hurts

I don’t recoil at the sight of a scar left by a transsternal thymectomy — the surgical removal of my thymus gland — three months ago. I’d prefer it wasn’t there, of course, but I’m starting to embrace it. The scar reveals a little about who I am, like…

Making Progress With Mental Health After Diagnosis

Lately, with the help of a new therapist, I’ve been making significant progress with my mental health. Looking forward to activities and planning for the future seems a little easier for me now, a year after my myasthenia gravis (MG) diagnosis. Still, as others with MG might understand, our minds…

Coping With the Loss of My Beloved Career Path

The most devastating blow since my myasthenia gravis diagnosis a year ago has been the loss of my career path, which was my passion. My symptoms began a month before the last semester of my undergraduate degree. Although I am eternally grateful that I received a rapid diagnosis, with that…

Preventing Others From Taking Advantage of Our Spoons

Kindness is not a pass for people to take advantage of us or treat us poorly. We can be compassionate and still say no to being treated inadequately. Those of us with myasthenia gravis (MG) are not responsible for other people’s reactions or their inability to adjust to our boundaries…

Living in a World Where Many Undermine Public Health

Living amid a pandemic can and should be alarming to everyone. However, not everyone understands how individual actions can affect others. Therefore, people with compromised immune systems, such as those of us with myasthenia gravis, may be more susceptible to heightened levels of anxiety and frustration toward those not…

2021 Myasthenia Gravis Survey Results

BioNews Survey Infographic

Myasthenia Gravis News conducted a survey from Feb. 11-March 28 to gain greater insight into the characteristics of the MG community and disease management. Results of the survey have now been published. Click on the image to view the infographic, and click here to read the story.