Author Archives: Jodi Enders

Making Progress With Mental Health After Diagnosis

Lately, with the help of a new therapist, I’ve been making significant progress with my mental health. Looking forward to activities and planning for the future seems a little easier for me now, a year after my myasthenia gravis (MG) diagnosis. Still, as others with MG might understand, our minds…

Coping With the Loss of My Beloved Career Path

The most devastating blow since my myasthenia gravis diagnosis a year ago has been the loss of my career path, which was my passion. My symptoms began a month before the last semester of my undergraduate degree. Although I am eternally grateful that I received a rapid diagnosis, with that…

Preventing Others From Taking Advantage of Our Spoons

Kindness is not a pass for people to take advantage of us or treat us poorly. We can be compassionate and still say no to being treated inadequately. Those of us with myasthenia gravis (MG) are not responsible for other people’s reactions or their inability to adjust to our boundaries…

Living in a World Where Many Undermine Public Health

Living amid a pandemic can and should be alarming to everyone. However, not everyone understands how individual actions can affect others. Therefore, people with compromised immune systems, such as those of us with myasthenia gravis, may be more susceptible to heightened levels of anxiety and frustration toward those not…

Resting and Resetting With Positive Intention

There is no shame in spending time on something that didn’t work out the way we had planned, regardless of how long we spent on it. At some point, those of us with myasthenia gravis (MG) will probably endure periods of forced rest, our plans won’t play out as…

Healthy Caregiver Relationships Can Be Imperfect

Throughout my thymectomy recovery, I am learning that we need to accept help when we need it, even if our lives aren’t precisely what we’d imagined. Consider that we want to keep growing into the most whole version of our potential selves. In that case, we have to…

Releasing Harsh Self-judgment and Embracing My Scars

It’s a lot more difficult agreeing to a scar than receiving one by accident. We often become comfortable with ourselves over time, and not knowing what we will look like post-surgery can be scary. We may worry how the physical changes will impact our lives and our interactions with…

If You Are Scared but Act Anyway, You Are Courageous

I am currently composing this column six hours out from my transsternal thymectomy. Five mishaps leading up to the surgery have gone wrong on the scheduling side, and then the COVID-19 office lost my test. I have been relatively happy leading up to this, but it seems everything…

2021 Myasthenia Gravis Survey Results

BioNews Survey Infographic

Myasthenia Gravis News conducted a survey from Feb. 11-March 28 to gain greater insight into the characteristics of the MG community and disease management. Results of the survey have now been published. Click on the image to view the infographic, and click here to read the story.