Author Archives: Retha De Wet

My Pain Is Just as Real as My Myasthenia Gravis

Pain is a big part of my life. I have been in daily pain for the last 10 years. The only medical reason I have for it is myasthenia gravis (MG). I highly value science. When I was diagnosed in 2013, there was still little evidence online that pain was…

How I Discovered My Inner Superhero

I started working as a speech therapist at a large academic hospital in January 2020. I was excited to start, and my passion for the job was coming out of my ears. But lurking behind the joy of getting such a thrilling job was a buildup of anxiety, shame, guilt,…

My Transsternal Thymectomy Was a Positive Experience

Shortly after I was diagnosed with myasthenia gravis (MG), the neurologist suggested I have a contrast CT scan of my chest. This would determine whether or not a thymectomy was necessary. My only memory of the CT scan was that the contrast made me feel like I’d peed my…

Laughter Helps Me Cope With Myasthenia Gravis

I tend to laugh a lot, which can serve many different functions. A nervous giggle can indicate anxiety, a belly laugh may follow a moment of hilarity, and sometimes laughing is the only way to deal with an overwhelming or uncomfortable situation. My name, Retha, is derived from Margaretha, which…

Simple Ways I Make My Life Easier at Home

My boyfriend, Tom, and I are finally moving back in together after 15 months of being in a long-distance relationship. While that in itself is amazing, it involves one terrible part: the physical act of moving. Although moving is a myasthenic’s nightmare, packing up my whole life again has…

A New Treatment Combination Brings Me Hope for My Future

My health seems to follow a pattern: I’ll start a treatment plan, it’ll go well for a little while, and then I’ll suddenly experience an uncontrollable flare. I’ll stubbornly suffer until my body decides that I should stop. I’m currently at the beginning of that cycle once again after recently…

2021 Myasthenia Gravis Survey Results

BioNews Survey Infographic

Myasthenia Gravis News conducted a survey from Feb. 11-March 28 to gain greater insight into the characteristics of the MG community and disease management. Results of the survey have now been published. Click on the image to view the infographic, and click here to read the story.