Retha De Wet: Meeting myasthenia gravis fatigue halfway
Retha De Wet, who lives in Germany, was diagnosed with myasthenia gravis in 2013. She tells a story about adapting to fatigue at an unfortunate moment.
Transcript
So going back to my days at university, I had a written exam that I had to write and I wasn’t extremely well prepared for because I think most people know that at the end of a semester, you kind of crash.
And my hand just couldn’t write anymore. I had previously refused to have a scribe, which was just the pride thing, and I really just should have accepted that.
But what I ended up doing is I answered the questions that I knew I would score well on first, and spaced them out, and then eventually went in to go fill in the ones that I wasn’t so sure about, that I needed a bit more mental energy, and I thought would be a waste of my muscle power.
But I did pass with like 50 on the dot. So.
Recent Posts
- Living with myasthenia gravis, I invented a job to be able to work
- Soliris eases AChR+ refractory myasthenia gravis disease severity
- Intensive treatment most needed early in MG course: Study
- Phase 3 trial of Descartes-08 in treating MG may launch in 2025
- How to pick the best seat on a plane when you live with MG