A recent case report describes an elderly woman who was first diagnosed with myasthenia gravis (MG) after experiencing a myasthenic crisis while being sedated for a surgical procedure. “This case reports a form of discovery of [a] myasthenic crisis outside the usual circumstance,” its authors wrote. “The prognosis depends…
On my side of the world, we are beginning to see temperatures drop. I’ve never been a big fan of summer. I don’t enjoy sweating, and I like mosquitoes even less. For someone like me, who lives with myasthenia gravis (MG), summer also means heat exhaustion. So, I’ve…
The first participant has been dosed in a Phase 3 clinical trial testing the efficacy and safety of batoclimab (HBM9161) in people with generalized myasthenia gravis (gMG) in China. “The first patient first dosing in the phase III study brings us one step closer to deliver the novel therapeutic…
I don’t recoil at the sight of a scar left by a transsternal thymectomy — the surgical removal of my thymus gland — three months ago. I’d prefer it wasn’t there, of course, but I’m starting to embrace it. The scar reveals a little about who I am, like…
Around three years ago, I welcomed home an Italian greyhound puppy named Pablo. He changed my life for the better. Now, my boyfriend, Tom, and I have adopted another 1-year-old Italian greyhound. Blitz with a goofy grin. (Photo by Retha de Wet) His name is Blitz, which means…
Football and science seem to be disparate fields of play at first glance, but the nonprofit Uplifting Athletes is finding common ground by leveraging the popularity of college gridiron games to fund research for rare diseases. Its nearly two dozen chapters — representing college football teams across the nation…
Zytux, a biosimilar of rituximab, may be effective and safe for patients with hard-to-treat myasthenia gravis (MG), a small study suggests. In the study, adding Zytux to prednisolone — a corticosteroid — eased MG symptoms, and improved patients’ quality of life, as well as their ability…
Many years ago, my grandfather ended up in the hospital due to a bad fall. Luckily, he didn’t break any bones and was released after a brief stay. I don’t have strong memories from this experience, but one thing I do recall is the bright yellow “FALL RISK” wristband…
Muscle and physical function improved in patients with clinically stable myasthenia gravis (MG) who participated in an individually tailored six-month exercise program, a small study has found. The exercise program, which combined aerobic and resistance training with stretches, was well-tolerated by all participants. “Physical exercise is safe, effective, and…
Those of us with myasthenia gravis (MG) sometimes blame the disease for causing negative emotional responses. But this can be an unhealthy and misguided approach. Sure, our adverse reactions to problems associated with MG may reflect our grief in response to…
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