MG Distracts Me From Healing From Trauma

Trauma can result from scary, emotionally disturbing, or threatening events. Any event can be traumatic, depending on how the person perceives it. The effects of trauma Trauma can have harmful effects on health, functioning, and overall well-being. The Trauma-Informed Care Implementation Resource Center website notes that exposure to…

More adults with generalized myasthenia gravis (gMG) who were treated with efgartigimod in a Phase 3 trial experienced minimal or no symptoms than did those given a placebo, an analysis of new study data reported. Other analyses from the ADAPT trial highlighted the potential benefits of efgartigimod for people who are…

The Rare Disease Diversity Coalition (RDDC) awarded $600,000 in grants to ease the disparities faced by rare disease patients of color. These Impact Rare Disease Solution grants will go five RDDC steering committee working groups, which aim to identify problems for rare disease communities and advocate for solutions. The five…

I have a love-hate relationship with the corticosteroid prednisone. After I was diagnosed with myasthenia gravis (MG) in 2011,  prednisone gave me back my strength almost instantly. It was like a miracle, and I was extremely grateful. But I never expected the side effects that came with it.

A 60-year-old man with dysphonia — voice issues when trying to speak — was found to have late-onset myasthenia gravis (MG), according to a recent report. Voice changes often come with aging, and this may lead to a delayed or even missed diagnosis of the neuromuscular condition, the researchers…

I believe it’s common for those with chronic illness to dwell on the fact that we can feel like a burden to others. Life with a disease, especially right after diagnosis, can make us susceptible to self-condemnation and feeling like a nuisance. Because we suddenly have more needs than we…

Robot-assisted thymectomy surgery — a procedure to remove the thymus gland, here done using a robotic system console — eased the disease symptoms of a Colorado man diagnosed with myasthenia gravis (MG). For Mike Oster, a Fort Collins retiree and avid fisherman, the procedure — performed by a cardiothoracic…

It took almost a year to be diagnosed with myasthenia gravis (MG), after months of suffering from weird symptoms and speaking to numerous medical professionals. It was such a disorienting experience for me, but I felt complete relief at finally being able to…

A crowdfunding campaign aims to raise $45,000 to support “Rare,” a documentary film featuring the struggles and achievements of people living with rare diseases and their families. Sweis Entertainment and Digital Cave Media launched the campaign — allowing filmmakers to finish producing and to release the documentary — on Kickstarter.

Bladder problems like urinary incontinence, urgency, and nocturia — waking up frequently to urinate — are common in people with myasthenia gravis (MG), particularly those with late-onset disease, a study found. Late-onset MG, or LOMG, is defined as disease symptoms that begin after age 50, while symptoms in early-onset…