I might be the most curious worker on the planet. I love learning new things, discovering novel industries, and exploring what makes people tick through their work. That’s one of the things I enjoy most about working in social media. Depending on the client, I get to dive into different…
People with myasthenia gravis (MG) have higher levels of a protein called neurofilament light chain (NfL) in their blood, especially if their symptoms are severe or start later in life, a recent study found. This means that NfL could help doctors track how the disease develops and decide on…
“What you aim at determines what you see.” — Psychologist and author Jordan B. Peterson For centuries, this deceptively simple truth has echoed through philosophy, faith, and medicine. For those of us living with myasthenia gravis (MG), it resonates with force. MG can feel like a thief. It may…
Neurologists consider the degree of clinical efficacy and the onset of action as the most important factors when making treatment decisions for their patients with generalized myasthenia gravis (gMG), according to a study. Still, there is variability, with some physicians considering the mode of treatment administration a more important…
Let’s be honest right out of the gate: Grief stinks. It’s messy, exhausting, and sneaky. And if you live with a chronic illness like myasthenia gravis (MG), grief isn’t just about losing people you love; it’s about losing versions of yourself you never thought you’d have to say goodbye…
A live, virtual panel at 6 p.m. EST on Oct. 23 will explore how people with myasthenia gravis (MG) can make lifestyle changes to reduce flares, have a more supportive relationship with their healthcare team, and find reliable information about the neuromuscular disorder. The free webinar, “Pushing Back…
The U.S. Food and Drug Administration (FDA) has granted orphan drug designation to CNP-106, an experimental treatment that Cour Pharmaceuticals is developing to reprogram the immune system in generalized myasthenia gravis (gMG). “Receiving orphan drug designation for CNP-106 is an important development and regulatory milestone for our…
The very first “code” my mom and I cracked together came long before I even had a diagnosis. Back when I was just a kid with mysterious symptoms no one could explain, we noticed that one thing always seemed to help: sleep. No matter how much pain, weakness,…
Life with myasthenia gravis (MG) often feels unpredictable. One day, my legs are steady enough to walk Pablo, my French bulldog, around the block. The next day, weakness makes standing at the kitchen counter a challenge. Some of the muscles MG attacks control breathing, swallowing, lifting, and keeping one’s head…
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