People with myasthenia gravis (MG) experience a lower health-related quality-of-life impact, face a higher medical burden, and require more assistance from caregivers compared with the general population, according to data pulled from two international studies. MG patients also were more likely to take sick leave from work and to…
A new therapy that combines plasmapheresis, or plasma exchange, with the removal of certain immune cells from a person’s blood was seen to result in better outcomes among people with severe myasthenia gravis (MG) than were…
Daisies and strawberry shortcake. Blue tartan and outdoor seating. Home and a new name. On Aug. 10, my husband, Justin, and I will celebrate 10 years of marriage. Our wedding day was amazing, thanks to the many careful decisions we made. Although some viewed our choices as selfish, they…
As a historian and teacher, I often make connections between current events and the past. Because I also live with myasthenia gravis (MG), recent events called to mind a connection between the past and MG. In June, the Titan submersible imploded, resulting in the deaths of all five…
The home infusion company KabaFusion has announced that UCB has tapped it as a limited U.S. distribution partner for Rystiggo (rozanolixizumab-noli), the first therapy approved for adults with the two most common subtypes of generalized myasthenia gravis (gMG). Following its June approval by the U.S. Food…
The approval of Soliris (eculizumab) in the European Union now extends to children and adolescents, ages 6 to 17, with generalized myasthenia gravis (gMG). The European Commission decision covers Soliris’ use in children who have refractory disease, meaning they have failed to respond to standard treatments, and are…
Grief comes to me more often than I care to admit. It doesn’t just come when a loved one passes away. When a person acquires a rare disease like myasthenia gravis (MG) later in life, as I did, grief seems to come in cycles. Usually I try to…
If I’m not careful, myasthenia gravis (MG) will take control of areas of my life I don’t want it to. I’m not referring to the daily exercise regimens or the employment challenges, but rather my interactions with others. In phone conversations with family and friends, I sometimes catch myself…
Most people with childhood-onset myasthenia gravis (CMG) experience milder clinical symptoms and a better prognosis than those with adult forms of the disease, according to a recent study in China. For most CMG patients, their disease could be safely controlled with prednisone and other immunosuppressive agents. Researchers also found…
The targeted generalized myasthenia gravis (gMG) treatment Rystiggo (rozanolixizumab-noli) is now commercially available by prescription in the U.S. for eligible adults with gMG, including individuals with antibodies against either the acetylcholine receptor (AChR) or muscle-specific kinase (MuSK), according to its developer. In late June, the therapy from…
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