Michael and Carmel. (Photos courtesy of Michael Adam Weinberg) This is Michael Adam Weinberg’s story: I might’ve found myself solo, still meandering lost on this winding, never-beaten path of life, without my myasthenia gravis diagnosis and the consequential medical challenges I’ve faced over the past 17 years.
With MG, Siobhán Mattison says she looks well and can walk — until she can’t. Her kids never mind the ride, though. (Photo courtesy of Siobhán Mattison) This is Siobhán Mattison’s story: I’ve had autoimmune symptoms for much of my life, but I never thought much about it.
I’ve learned many lessons about living a happy life. Among the most valuable is the ability to recognize the absurdities daily life can toss our way. I believe we can choose to laugh at these absurdities and prevent them from gaining power over us. We can model the queen in…
Pearl Moffett had a myasthenia crisis at age 48, following a diagnosis of chronic lymphocytic leukemia. (Courtesy of Pearl Moffett) This is Pearl Moffett’s story: My experience with myasthenia gravis (MG) opened my eyes to the suffering that a chronic illness can bring. …
People with myasthenia gravis (MG) benefit from thymectomy — surgery to remove the thymus gland — regardless of whether they have early- or late-onset disease or a tumor in the thymus, a study from Germany has found. The study, “The impact of thymectomy in subgroups of Myasthenia…
Note: This story was updated June 28, 2023, to correct the time frame of the ADAPT-SC+ clinical trial, in which patients will be treated for up to 3.5 years. The U.S. Food and Drug Administration (FDA) has approved Argenx’s under-the-skin formulation of efgartigimod, now called Vyvgart Hytrulo,…
(Photos courtesy of Alice Wangui Wambugu) This is Alice Wangui Wambugu’s story: My name is Alice Wangui Wambugu. I was born in Kenya on July 4, 1989. I grew up as a normal child and did not have a lot of major medical issues. When I was in high…
Barriers posed by social determinants of health can lead to a complex set of challenges — most centered on financial worry and mental health — for people with generalized myasthenia gravis (gMG), according to a small study done in the U.S. Researchers found that these challenges had an impact…
AmiCietta in July 2020. (Photos courtesy of AmiCietta Duche Clarke) This is AmiCietta Duche Clarke’s story: Working in corporate law is not for the fainthearted, especially when you’re fresh out of law school. I didn’t let a myasthenia gravis (MG) diagnosis during my third year of law…
The sloth and a snowflake. Why in the world would a person, community, or organization choose those two symbols to represent myasthenia gravis (MG)? Surely there must have been better critters or weather phenomena to represent the one-of-a-kind rare disease that makes us … move … slowly. Huh. Then…
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