What friends may not understand about living with myasthenia gravis

Ahead of every family reunion, plan, and event, I fear saying the famous “I’m tired, I can’t” — not because of how it might affect me, but because of how others might react. Normally, I’d be “selfish” and preserve my energy, but in these moments, I feel like I’m in…

A machine learning model taking into account markers of inflammation and clinical data may accurately predict whether people with generalized myasthenia gravis (gMG) are likely to see their disease symptoms ease after six months of standard treatment. Researchers described the new tool in the study, “Interpretable…

When I attended a college staffed by Augustinians, five theology courses were required for an undergraduate diploma. Those classes helped me develop a mature understanding of religion and spirituality. Back then, I couldn’t know that one day I’d find a valuable lesson in the work of the four Evangelists, other…

Myasthenia gravis (MG) patients who are women or have a tumor in the thymus gland are more likely to require intensive care due to disease exacerbation, a retrospective study in Finland suggests. Patients with late-onset disease in whom disease symptoms become apparent after the age of 50 were also…

The first patient has been dosed in a proof-of-concept clinical trial evaluating CNP-106, an immune-modifying nanoparticle that’s designed to reprogram the immune system in people with generalized myasthenia gravis (gMG). The Phase 1b/2a trial NCT06106672), sponsored by CNP-106’s developer Cour Pharmaceuticals, will assess the safety, tolerability, efficacy,…

Inside every person we know is another part of them we don’t know anything about. As adults, we often hide our pain, either out of pride or to spare others from worrying. My twin brother, Aaron, was diagnosed with myasthenia gravis (MG) in 1999. But I didn’t realize until…

The China National Food and Drug Administration has accepted and placed under priority review an application from Remegen seeking approval of telitacicept as a treatment for generalized myasthenia gravis (gMG). That’s according to a press release from Remegen, a commercial-stage biotechnology company that’s developing the treatment…

It’s been five years since I was diagnosed with myasthenia gravis (MG), an autoimmune neuromuscular disease. MG makes me feel tired and short of breath, and sometimes I struggle to speak clearly. It feels like yesterday when I was diagnosed, and I believe I still need to know more…

In the Sept. 24 article “Y’all Vs. Ya’ll: Here’s How To Spell It” in Southern Living, the author Grace Haynes writes, “The South is known for its laundry list of unique, quirky, cultural sayings, like ‘Bless your heart,’ ‘Too big for his britches,’ and ‘Well, I s’wanee,’ to name…

The healthcare costs of myasthenia gravis (MG) are high, according to a study from Denmark, Finland, and Sweden, and even higher for women and patients with very severe symptoms or coexisting conditions such as mental health problems or severe infections. A large portion of direct costs in all three…