American writer William Arthur Ward is believed to have said, “Feeling gratitude and not expressing it is like wrapping a gift and not giving it.” I’m not grateful enough for my relatively good health. I’m overweight, don’t exercise enough, and use the stress of my freelancer life…
A man with a 16-year history of hard-to-treat generalized myasthenia gravis finally saw his disease successfully managed with Soliris (eculizumab) and then with Ultomiris (ravulizumab) — highlighting the efficacy of these newer treatments for myasthenia gravis (MG) — according to a new case study. Indeed, its author called…
Last year, I woke up to terrible news: One of my colleagues had passed away. Although I didn’t know her personally, I knew she’d lived with a chronic illness and was an advocate for those with her condition. Her death was sudden and unpredictable, and I felt numb and choked.
Treatment with Vyvgart (efgartigimod) may rapidly and safely ease symptoms during an impending myasthenic crisis in people with myasthenia gravis (MG), according to a study in China. Impending myasthenic crisis, or IMC, refers to symptoms rapidly worsening within a short time that may lead to a myasthenic crisis,…
The prefilled syringe used to administer Zilbrysq (zilucoplan) under the skin, or subcutaneously, can be safely and effectively used by generalized myasthenia gravis (gMG) patients, caregivers, and healthcare providers, a usability study in the U.S. shows. Most participants were able to use the syringe, which contained a placebo…
Six months can feel like forever. Using an elimination diet to detect food sensitivities can seem to last forever. Many such diets are restrictive at the start, which makes them difficult to stick with for long periods of time. But that’s sort of the point. In May, I started…
A quote attributed to Siddhartha Gautama, known as the Buddha, says, “You will not be punished for your anger; you will be punished by your anger.” In other words, no matter how much we feed it, anger never has a full belly. The more we feed it, the more we…
A maintenance regimen using an intravenous immunoglobulin (IVIG) therapy may reduce disease severity and improve function in people with generalized myasthenia gravis, according to data from a Phase 2 clinical trial. IVIG is commonly used to treat acute symptom worsening in people with myasthenia gravis (MG). The …
If you’ve read my diagnosis story, you know it took me a decade to find out I have myasthenia gravis (MG). But why? Didn’t I see professionals? I did. Weren’t they familiar with MG? They were. Were my symptoms unclear? Absolutely, or this journey wouldn’t have been so…
Long-term use of the immunosuppressant tacrolimus was found to be safe and effective in myasthenia gravis (MG) patients with self-reactive antibodies targeting muscle-specific kinase, or MuSK — a protein important in nerve-muscle communication — according to the findings of a new study by researchers in China. Treatment with tacrolimus significantly…
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