Free webinar on June 30 explores life with MG beyond the clinic
Patient advocates will share personal tips on managing everyday challenges
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A webinar will explore daily life with myasthenia gravis (MG) beyond clinical aspects.
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MG causes muscle weakness, fatigue, and issues with vision, speech, and breathing, with fluctuating symptoms.
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Patient advocates will share tips on managing unpredictable symptoms and recognizing flare-up signs.
A free webinar on June 30 will bring members of the myasthenia gravis (MG) community together to discuss the daily realities of life with the chronic condition, from managing unpredictable workplace symptoms to recognizing the early warning signs of a flare.
The event, titled “Navigating MG Day,” will take place at 1 p.m. ET as part of the Rarely Speaking webinar series hosted by Myasthenia Gravis News and its publisher, BioNews. Registration is currently open for the event, which is sponsored by argenx, the marketer of the MG-approved therapies Vyvgart (efgartigimod alfa-fcab) and Vyvgart Hytrulo (efgartigimod alfa and hyaluronidase-qvfc).
The event will feature a peer-led conversation about what living with MG looks like beyond the clinic. Rather than focusing on medical presentations or technical discussions, members of the MG community will share personal experiences about what they’ve learned, what they wish they’d known, and how they navigate daily life with MG.
“Hearing from others going through similar situations can be one of the most healing experiences, especially when MG becomes a part of your life,” said Meridith O’Connor, a licensed master social worker and patient advocate who lives with MG and will moderate the discussion.
“Whether you are living with or caring for someone with MG, tune in to hear from my fellow community members [who] have walked the MG journey. Different individuals, [one] shared diagnosis: join us for an organic conversation that speaks to the realities of life with MG,” O’Connor added.
The lived experience of MG
The roundtable is open to people living with MG, caregivers and family members, patient advocates, and anyone interested in learning more about the lived experience of the disease.
MG is an autoimmune disease that disrupts communication between nerves and muscles, leading to weakness and fatigue. Depending on the MG type, people may experience problems with vision, speech, swallowing, mobility, and breathing. MG symptoms can fluctuate over time and may worsen during periods of increased disease activity known as flare-ups or relapses.
According to the program’s registration webpage, “Managing Myasthenia Gravis extends far beyond the walls of a doctor’s office. Standard clinical metrics, lab results, and symptom checklists are essential for tracking the disease, but they don’t capture what it actually feels like to live with it every day. The truest insights about daily life with MG live within the community itself.”
The webinar aims to bring those community perspectives to the forefront. During the 35- to 40-minute discussion, panelists will talk about navigating visual symptoms, maintaining balance at work when MG is unpredictable, recognizing the early warning signs of a flare, and other challenges they face in everyday life. Attendees will also have an opportunity to ask questions during a live Q&A session.
Meet the webinar panelists
Three people living with MG will join O’Connor in the discussion:
- Glenn Cutler, who was diagnosed with MG in 2002, holds a master’s degree in rehabilitation studies and uses social media to raise awareness about the disease while sharing his experiences managing complex health complications.
- Jasmine Nathan, a U.S. Department of Veterans Affairs program specialist with a master’s degree in psychology. Diagnosed with generalized MG in 2018, she manages her disease by prioritizing rest and advocates for people living with chronic illnesses to live unapologetically on their own terms.
- Morgan Greene, who was diagnosed with MG in 2016, is a health influencer, speaker, and host of the Spoonieful Podcast. Drawing on her background in mass communication, she works to break down stigmas surrounding MG and other chronic diseases and provide patients with resources and support.
The webinar will be available for on-demand viewing on the Myasthenia Gravis News site soon after the event.
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