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Overview
Managing Myasthenia Gravis extends far beyond the walls of a doctor’s office. Standard clinical metrics, lab results, and symptom checklists are essential for tracking the disease, but they don’t capture what it actually feels like to live with it every day.
The truest insights about daily life with MG live within the community itself, found in the practical hacks patients share, the unspoken adjustments made at work, and the silent ways families learn to navigate unpredictable symptom shifts.
This panel cuts through the clinical lectures to bring you an authentic conversation between peers who understand the daily reality of MG. We will dive into the lived realities of navigating the visual world, maintaining professional balance, and accurately identifying the early warning signs of an upcoming flare.
Speakers
Moderator
Meridith O’Connor
Meridith O’Connor, MSW, LMSW, is a patient advocate, speaker, and consultant with over a decade of experience. She specializes in patient engagement and amplifying the lived chronic illness journey.
Panelist
Glenn Cutler
Diagnosed with MG in 2002, Glenn holds an MS in Rehabilitation Studies. He uses social media to raise disease awareness and share his journey managing complex health complications.
Panelist
Jasmine Nathan
A VA Program Specialist with an MA in Psychology, Jasmine manages MG by prioritizing rest. She advocates for the chronic illness community to live life unapologetically on their own terms.
Panelist
Morgan Greene
Morgan is a health influencer, speaker, and host of the Spoonieful Podcast. She uses her mass communication background to break chronic disease stigmas and provide patient resources.
Panelist
Kathleen Timothy
Kathi joins the MGFA as a volunteer and advocate with a healthcare administration background. Diagnosed with MG herself, she co-leads two support groups and has chaired key MGFA Tampa Bay events.