We May Have the Same Diagnosis, but We Are Vastly Different
When people are diagnosed with a specific condition, they might be able to read about it on the internet or from information provided by a doctor. For the most part, they might know what…
Positively MG – Megan Hunter
Megan Hunter is a Myasthenia Gravis Warrior, wife, friend, and fur-mum. She loves to read, crochet, sleep and find the good in every day. Megan always tries to find the silver lining!
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A Recent Medication Lapse Has Refocused My Attention on Self-care
On a recent day, I popped out to the shops to pick up a few items when I realized I had left my Mestinon (pyridostigmine) medication at home. It was time to take…
I Was Honored to Receive an Award for My Rare Disease Advocacy
I recently attended the South Africa’s Women Givers Awards. I had been invited to the awards ceremony as a nominee for my work with the Rare Bear Project. Bontlebame, a nonprofit focused…
Reassessing What’s Important After Relapse
I have started this column many times, but I have had trouble putting my emotions into words. I am trying to digest and cope with how my body is slowly failing me, and I…
Exhaustion Means Being More Than Just a Little Bit Tired
When you are diagnosed with a rare disease, you may think that your life is over. You read all of the different outcomes on the internet and begin to fear that the worst is…
After Seven Years of Marriage, We’re Finding Our Groove
This year, my husband and I will have been married for seven years. They say there is a thing called the “seven-year-itch,” and that absolutely terrifies me. We are just now finding our new…
The Importance of Looking After Your Gut Health
On Saturday, I attended an autoimmune disease seminar, where I listened to speakers talk about the importance of good gut health and how it affects the entire body. Experts told the audience that the…
Supporting a Friend with a Rare Disease
It can be difficult being friends with someone who is chronically ill. They often have to cancel on you, or they might be exhausted at the start of an event and practically have…
Following Stem Cell Transplant, I’m Living My Best Life
When I underwent a stem cell transplant at the beginning of the year, I was given a 40 percent chance of survival — not just for the procedure to work, but for me…
Why This Year’s Birthday Is Extra Special
It is my birthday this month, and I could not be more excited. I am one of those people who cannot sleep the night before their birthday and will wake up excitedly at 4…
Why Ask, ‘Why Me?’ Don’t Play The Blame Game with Yourself
I don’t know about you, but whenever something bad happens in my life, I ask, “Why me?” I don’t want to accept what has happened, so I think it must be the result of something…
Tell Me Why We Need to Talk About Organ Donation
Recently, I attended an event that reminded me of the importance of speaking up, letting others into your world, and starting a conversation to create awareness. The event was organized by the South African…
