There are days when I feel like every day is Halloween because of the way I must live my life while navigating myasthenia gravis (MG). Is it a trick or a treat? Sometimes it’s hard to tell. Stability Now that I’ve been on a solid treatment plan that…
Cour Pharmaceuticals is launching a Phase 1b/2a proof-of-concept study to evaluate the safety and preliminary effectiveness of its investigational therapy CNP-106, an immune-modifying nanoparticle that’s designed to reprogram the immune system in adults with myasthenia gravis (MG). The announcement follows the U.S. Food and Drug Administration’s (FDA) approval of…
The high blood sugar levels that characterize diabetes may prompt immune cells to be activated that can drive and worsen myasthenia gravis (MG), a recent study suggests. These findings indicate that tightly controlling blood sugar levels may benefit MG patients who also have diabetes. The study, “Diabetes mellitus aggravates…
“I haven’t showered in a week. Can you come over and hang out so I can safely take one?” At 38 years old, these were not words I had anticipated having to string together for someone I’ve known for only six months. With my spouse as my…
“Sometimes you will be in control of your illness and other times you’ll sink into despair, and that’s OK! Freak out, forgive yourself, and try again tomorrow.” — Kelly Hemingway I remember when I first read the myth of Sisyphus. I thought it’d be awful to work diligently at…
Virtis Health has opened two ambulatory centers in Alabama for people with myasthenia gravis (MG) and other disorders that call for infusion therapies. The new Alabama centers in Mobile and Birmingham are available to patients statewide, in addition to residents of those cities. Their openings follow that of…
Telitacicept (RC18), an anti-inflammatory therapy developed by RemeGen, has been granted orphan drug designation by the U.S. Food and Drug Administration (FDA) as a potential treatment for myasthenia gravis (MG). Orphan drug designation, or ODD, is given to therapies that have the potential to treat rare diseases, defined…
“I wish I could stay home all day and take naps.” Does anyone else want to reach through your screen and give me a knuckle sandwich when you see that statement? Does it bring up an immediate negative reaction like anger? It used to for me, as well. Until I…
NMD670 safely improved muscle function and strength in a small clinical trial of people with myasthenia gravis (MG), the therapy’s developer, NMD Pharma, announced. “These trial results represent an important milestone for NMD Pharma as they provide the first clinical proof of mechanism for our novel ClC-1 inhibitor…
A new ambulatory center, operated by Virtis Health, has opened its doors in the Atlanta, Georgia, area for myasthenia gravis patients (MG) and others who require infusion treatments. Virtis is a division of Soleo Health, a pharmacy that specializes in the provision of infusion therapies to homes…
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