The Myasthenia Gravis Foundation of America (MGFA) is introducing a helpline to assist those living with myasthenia gravis (MG) and their caregivers understand and cope with the autoimmune neuromuscular disorder. The helpline — 1-833-647-8764 (1-833-MGSTRNG) — is initially open from 9 a.m. to 8 p.m. EST Monday through…
NMD Pharma announced the dosing of the first patient in a Phase 2b clinical trial of NMD670, its investigational oral therapy for generalized myasthenia gravis (gMG). The SYNAPSE-MG trial (NCT06414954), recently cleared by the U.S. Food and Drug Administration (FDA), is assessing the treatment’s safety and…
Every year, I reflect on my diagnosis of myasthenia gravis (MG) on June 24, 2020. As I look back on the past year, I see that MG forced me to reconsider my understanding of certainty. I like predictability. Schedules and timetables are comforting, providing an order that appeals to…
A greater reduction in disease severity a month after surgery to remove the thymus gland in myasthenia gravis (MG) patients without a thymus tumor is linked with lower disease recurrence, a study in China suggests. Patients with a reduction of at least 36.7% in the Quantitative Myasthenia Gravis score…
“Is there anything I need to know to help you in an emergency situation? What does an emergency look like for you?” A client of mine recently asked me those questions as we chatted before getting to work. She had come into The Nook, a shared workspace I run,…
Blood levels of interleukin-41 (IL-41) — a signaling molecule involved in immune responses — are found to be significantly elevated in people with myasthenia gravis (MG), and associated with disease severity and inflammatory markers, a study from China reports. These findings indicate “IL-41 may be essential to the [disease]…
Immunovant plans to prioritize development of its newer treatment candidate, IMVT-1402, over its Phase 3 candidate, batoclimab, for people with myasthenia gravis (MG), with tentative plans to launch a registrational clinical trial program of IMVT-1402 within the next year. Registrational studies are those that can back a…
It’s crazy to think that I’m approaching my 30th month of writing my column, “The Whispered Roar,” for Myasthenia Gravis News, as well as my seventh year of raising awareness for myasthenia gravis (MG). Over the years, I’ve grown quite comfortable sharing my story, so I thought…
Spreading awareness about myasthenia gravis (MG) during the month of June can be as simple as talking about the disease in your neighborhood and community. Hosting awareness events locally not only fosters engagement and relevance, but also helps people cope with the rarity of this autoimmune disease. MG is…
The case of a pregnant woman with myasthenia gravis (MG) who saw her disease worsen and who developed hydramnios — an abnormal buildup of fluid around the fetus during pregnancy — was described in a new report that researchers say highlights how variable the condition can be. Despite the…
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