There are not many perks to living with myasthenia gravis, especially since it can be difficult for others to understand the fatigability and variation in our symptoms. However, there are also not many things that do not benefit from a having a good sense of humor. The symptoms of…
Concentric needle-jitter is more accurate in diagnosing myasthenia gravis (MG) than repetitive nerve stimulation or acetylcholine receptor antibody positivity, a study reports. The study, “Repetitive nerve stimulation and jitter measurement with disposable concentric needle electrode in newly diagnosed myasthenia gravis patients,” was published in the journal…
Careful patient assessment and planning prior to surgery was needed to successfully remove a tumor from the thymus of a myasthenia gravis patient with a recent history of adult respiratory distress syndrome, researchers in Greece reported. Their case study, “Thymectomy in a patient with thymoma -related myasthenia Gravis and recent…
Surgeons in China have developed a new way of removing the thymus — a procedure called a thymectomy — in myasthenia gravis patients that may be both easier on the doctors operating and likely to improve post-operative outcomes in patients. The method was described and validated in the study, “…
There are few things as complicated and challenging as interpersonal relationships. The older I get, the more difficult it is to stay in touch with those I once considered to be friends. Supporting someone with a chronic illness will never be an easy task, just as living with one is…
Patients with myasthenia gravis (MG) have higher levels of a chemical modification — known as DNA methylation — on the CTLA-4 gene, which is linked to higher levels of autoantibodies and inflammatory molecules, according to researchers. The study, “CTLA-4 methylation regulates the pathogenesis of myasthenia gravis and the…
The National Organization for Rare Disorders (NORD) will celebrate the 35th anniversary of both the 1983 Orphan Drug Act and NORD’s founding at a dinner tonight in Washington, D.C. The 2018 Rare Impact Awards, to be held at the Andrew W. Mellon Auditorium, will be webcast via Facebook for those…
The European Union isn’t doing enough to protect the 30 million or so people with rare diseases who live in its 28 member countries, officials meeting last week in Vienna said. More than 900 people from 58 nations attended the 9th European Conference on Rare Diseases & Orphan Drugs (ECRD),…
The therapeutic effects of Prograf (tacrolimus) in myasthenia gravis (MG) patients are influenced not only by dosage, but also by patients’ genetic profiles and other medications they may be taking for the disease, according to a study from China. The findings point…
We express ourselves in many ways: through our hairstyle, our clothing, our facial gestures, our voice, and how we choose to articulate our thoughts. One symptom of myasthenia gravis is dysphonia, which results in an unreliable and fading quality of voice. Another symptom is having difficulty with speech, which…
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