With Myasthenia Gravis, It’s Important to Be Aware of Your Voice

Retha De Wet avatar

by Retha De Wet |

Share this article:

Share article via email

We express ourselves in many ways: through our hairstyle, our clothing, our facial gestures, our voice, and how we choose to articulate our thoughts. One symptom of myasthenia gravis is dysphonia, which results in an unreliable and fading quality of voice. Another symptom is having difficulty with speech, which can sound like drunken slurring.

Before my diagnosis, I wanted to pursue a career in speech therapy. I didn’t know how myasthenia gravis could be affecting my voice, because I only developed noticeable bulbar symptoms after starting university. Initially, my main concerns were my difficulty with breathing and weak arms and legs. I did not even think about the quality of my voice until we discussed the effect of myasthenia gravis on voice in our academic modules.

Suddenly, I became very aware of my voice, and I realized that my symptoms were not isolated to my larger extremities. At first, this realization left me feeling angsty about how effective I was at monitoring my symptoms. I felt that my health was completely out of my control.

Eventually, I abandoned the self-pity and anxiety-driven thoughts that were preventing me from thinking logically about the situation. The varying quality of my voice was not a new symptom. I found that being aware of the change in the quality of my voice and articulation was a way to monitor my symptoms. After all, these are not new symptoms; they are merely clues that my body gives me to solve the ongoing mystery of “how much can my body do today?”

I learned that when I was feeling short of breath, I could avoid speaking in long sentences. When I was able to speak in longer sentences, I would know that my breathing had improved. If I could not speak at a normal loudness and people had difficulty understanding me against background noise, I knew that I would have to take it easy that day. I realized my voice symptoms could be used as tools to help me to stay in control of my health. I saw an opportunity to empower myself and become an educated patient.

It is important never to lose your inner voice, even when you are not physically able to speak. Never stop fighting. Life is too beautiful.


Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.




How can I become a speaker about Myasthenia Gravis.this is like a silence Disease noone know or talk about.

Darrell Pickett avatar

Darrell Pickett

I'm no expert on MG but I believe my experience appears to be text book except for the Shadow Beings! 😮

Max avatar


I play the guitar and sing... now I can’t sing the high notes anymore after being diagnosed with Myasthenia Gravis? I had 3 days of IV/IG THERAPY and now I’m on Prednisone, will I be able to sing again? It’s been 3 weeks and I’m still struggling with my voice... but feel better!


Leave a comment

Fill in the required fields to post. Your email address will not be published.

2021 Myasthenia Gravis Survey Results

BioNews Survey Infographic

Myasthenia Gravis News conducted a survey from Feb. 11-March 28 to gain greater insight into the characteristics of the MG community and disease management. Results of the survey have now been published. Click on the image to view the infographic, and click here to read the story.