The house is quiet past midnight, yet I’m fully awake as usual, thanks to my many health issues. Nighttime is when everything comes alive for me — chiefly my pain and other symptoms, but also my creativity and visions for the MG community, my plans for the next day, and…
Few activities send endorphins rushing through my body like jogging. Exercise has many benefits, both mental and physical. This fact became apparent to me when I could no longer exercise due to weak and fatigable muscles caused by myasthenia gravis (MG). Before the onset of my symptoms, I…
A microRNA called miR-143, which blocks a molecule involved in the development and severity of myasthenia gravis, may be a new therapeutic target, according to a mouse study. The study, “MicroRNA-143 inhibits proliferation and promotes apoptosis of thymocyte by targeting CXCL13 in myasthenia gravis mice models,” was…
Having a rare disease opens the door to many questions. It also presents the opportunity for well-meant advice that doesn’t always help the way it’s intended. I get it — when you hear about someone’s struggles, you want to jump in and help fix them any way you can.
Struggling with physical and mental health is challenging. In my case, myasthenia gravis shined a light on underlying anxiety, and now I am in a relationship with both. I battle both muscle weakness and my own mind. Often, it’s difficult to determine which of the two is causing my problems.
Changes in the ratio of dendritic cells (DCs), a subtype of immune cells, may reflect immune system function and could help predict treatment effectiveness in patients with myasthenia gravis (MG), according to a new study. The study, “Imbalance of two main circulating dendritic cell subsets in…
Lately, I have been pushing myself beyond my limits. While I’m aware of this, I don’t want to miss out on anything. We recently moved, confronted major life events, and have been crazy busy at work. I haven’t been prioritizing my health, and yesterday, it all came to a head. I…
Intolerable adverse events related to the use of prednisone, typically used to treat myasthenia gravis (MG), were more frequently reported by women than men, a study finds. The study, “Gender differences in prednisone adverse effects,” was published in the journal Neurology Neuroimmunology & Neuroinflammation. Prednisone is…
Having a sense of purpose is innate to the human experience. It gives us direction, satisfaction, and motivation in the present as we build for our future. Purpose drives innovation, invigorates passion, and stirs the embers of better days ahead. Just as it breathes life into every day, a lack of purpose…
The emergency room has never been a particularly amicable place. It is an assembly point for people in discomfort searching for assistance with varying degrees of medical problems, from broken bones to food poisoning. However, if you have a rare disease like myasthenia gravis (MG) or a complicated medical…
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