In the novel “The Lightning Thief,” Rick Riordan writes that “knowing too much of your future is never a good thing.” Five years ago this month, I was diagnosed with myasthenia gravis (MG). Back then, if I could’ve seen the emotional, physical, and psychological toll this illness would have…
Barry Stalker works out at the gym, his favorite place to challenge himself mentally and physically. (Courtesy of Barry Stalker) This is Barry Stalker’s story: I was always an active teenager. I played a variety of sports in school, which led me to discover the gym and, eventually, competitive…
The U.S. Food and Drug Administration (FDA) has cleared the launch of a Phase 2 clinical trial testing IM-101, ImmunAbs’ investigational therapy for myasthenia gravis (MG). The multicenter, placebo-controlled trial is expected to enroll up to 90 people with MG who will receive IM-101 or a placebo once monthly.
Jodi Enders reflects on her favorite place for creative inspiration and relaxation: the Everglades in Florida. (Courtesy of Jodi Enders) This is Jodi Enders’ story: I was diagnosed with myasthenia gravis (MG) just before the final semester of my undergraduate degree in anthropology, with an emphasis on…
Kristina Kelly holds her dog Noah. (Courtesy of Kristina Kelly) This is Kristina Kelly’s story: It took five neurologists, five years, and a lot of being told “but your labs are normal” before I was finally diagnosed with seronegative myasthenia gravis (MG). Like so many others, my journey…
This spring has been brutal. The allergy season hit me harder than ever, and it felt like my body was being torn apart from the inside. I always wonder if other people with myasthenia gravis (MG) experience the same kind of flare-up triggers as I do. Last week, I…
The first patient has joined a Phase 3 clinical trial assessing the safety and efficacy of Descartes-08, an investigational cell therapy for myasthenia gravis (MG) being developed by Cartesian Therapeutics. Called AURORA (NCT06799247), the trial is expected to enroll 100 adults with generalized MG (gMG), a more…
Living with a rare disease is difficult enough, but in the United States, patients fight not only their illness, but also the healthcare system that’s supposed to help them. I was diagnosed with myasthenia gravis (MG) five years ago this month. Managing it requires specialized care, regular…
Mike Stabile holds his grandson, Alex Stabile, while in between myasthenia gravis flare-ups. (Courtesy of Mike Stabile) This is Mike Stabile’s story: There are no physical signs that I have myasthenia gravis (MG). My last flare-up ended in July, 11 months ago. Previous flare-ups would last two to…
This is a letter to all those who read and appreciate the work of Bionews, the parent company of this website. Like you, I am a member of the rare disease community, and writing a column about myasthenia gravis (MG) has lightened some of the darker moments of…
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