Jennifer Crow, who lives with MG, says she no longer silences herself. (Courtesy of Jennifer Crow) This is Jennifer Crow’s story: When I was first diagnosed with myasthenia gravis (MG), I thought having a name for my condition would unlock care and put me on the path to…
A few years into medical school, Ronak was experiencing severe fatigue. He could barely keep his eyes open as he studied for his board exams. At first, he assumed that he was just tired and stressed from his long days of tests, lectures, rotations, and labs. Medical school was known…
Algerian people are known for their oversized pride and ego. Asking for help — whether it’s about health or financial struggles — is often seen as shameful in our country, or at least it’s frowned upon. But the truth is, how can anyone survive with neither health nor help? I’ve…
Living with myasthenia gravis (MG) means living with a body that doesn’t always cooperate. Muscle weakness, fatigue, and frustration can be daily companions. The support and love of family and friends are crucial. Since my diagnosis, I’ve met people from many backgrounds who’ve become my friends. The strange…
Telitacicept, a B-cell-targeting therapy for myasthenia gravis (MG), has been granted orphan drug status in the European Union, according to its developer Remegen. Orphan drug designation, or ODD, is awarded to medications that treat conditions affecting fewer than 5 in 10,000 people in the EU. The designation’s…
Mohammed Hanafi and Sarah Bendiff, seen here at a shooting range in Algeria, where they live, have together learned how to adapt to life with MG. (Photo courtesy of Sarah Bendiff) Note: Mohammed Hanafi’s girlfriend Sarah Bendiff is a Myasthenia Gravis News columnist who writes about her journey…
Tina Bruning was looking forward to retiring after 30 years of working at her local school district in Ellsworth, Kansas. She had plans to travel with her husband, spend time with her five grandkids, and continue her healthy lifestyle of exercise and clean eating. Shortly after she celebrated her retirement,…
Yvette Bernal, left, with her daughter Eliza Roman as Eliza prepares to graduate high school. (Photo courtesy of Yvette Bernal) This is Yvette Bernal’s story: During my senior year of high school, I found out I was pregnant with a girl. I promised myself I was going to work…
Charlotte Laycock receives a plasma exchange to help control her myasthenia gravis. (Photos courtesy of Charlotte Laycock) This is Charlotte Laycock’s story: Being diagnosed with generalized myasthenia gravis (MG) in my early 30s was something I never expected. At the time, I was living a fast-paced single life…
Every parent, partner, and friend wants the best for their loved ones. We hold high expectations for them, wanting to see them become president of the world! But I’ve often felt like I’ve failed to meet those expectations — especially as the oldest daughter, the go-to best friend, and of…
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