[Wayne Eisen]

Thank you very much for the functional fueling seminar! I would have liked hearing about collagen supplementation to support bone density. Excellent seminar!

[Wayne Eisen]

I hope you’re seeing an experienced neurologist. I’ve had years of prednisone and my neurologist does very slow titration, but maybe it’s different with your short-term prescription.

I always tell folks to get a lot of collagen. My bone density improved over 2 years despite the prednisone and being age 75.

Best wishes, Wayne

[Wayne Eisen]

I hope you’re seeing an experienced neurologist. I’ve had years of prednisone and my neurologist does very slow titration, but maybe it’s different with your short-term prescription.

I always tell folks to get a lot of collagen. My bone density improved over 2 years despite the prednisone and being age 75.

Best wishes, Wayne

[Wayne Eisen]

To Tina and any who have concerns regarding osteoporosis and prednisone. Collagen is the remedy. I’m age 75. Over a 2 year period of a lot of prednisone, adding pure powder Collagen (a great deal) to soups, stews and smoothies, my bone density improved significantly!

It’s the glue of life and thickens bones?, organ linings and is essential. Best wishes. Wayne

[Wayne Eisen]

Yes. What I’d like to know … has anyone had experience with Cellcept?

Thank you, Wayne

[Wayne Eisen]

As I’ve posted before, for those who take prednisone and suffer bone density loss, collagen will increase bone density òf taken in large amounts. It can be added to smoothies, soups and stews. I use a pure powder form. It impacts all parts of the body. Best wishes, Wayne

[Wayne Eisen]

I understand that there is lymphedema too. Hs anyone had experience with tht prognosis and/or treatment?

[Wayne Eisen]

I urge all who are suffering from loss of bone density to take lots of collagen. I’ve been taking prednisone for a long time, which is notorious for weakening bones, and my bone density has improved significantly. Add pure collagen to smoothies, soups and stews. Best wishes, Wayne

[Wayne Eisen]

Reverse bone density issues by taking a great deal of collagen despite the prednisone!

[Wayne Eisen]

I had 2 series of Vyvgart infusions recently

The infusions had no effects… no improvements from them. I’ve been getting weaker lately.

I’m on 50 mg of prednisone daily now. The large amounts of collagen I add to smoothies, soups and cereals hve improved my bone density over the past few years!

[Wayne Eisen]

You’re very welcome, Paul. Best wishes, Wayne

[Wayne Eisen]

I just want to say that anyone taking prednisone should tk collagen supplements. I have been taking a lot of prednisone for long. I had a bone density scan a couple years ago and another a couple months ago. Prednisone weakens bone density. So does getting older. My bone density has improved because of the collagen, glue of life. In fact, everyone should have plenty of collagen, which I put in my super charged smoothies.

Best wishes folks, Wayne

[Wayne Eisen]

As you say, neurologists nd doctors in general, will disapprove non-prescribed treatments. And pharmaceutical companies will not spend a lot of money on R&D on vitamins. 🤣 If you do self-study like I’m doing, be very careful. Restrict calcium intake. I’m doing 80,000 IU daily. I’m not suggesting that for anyone. I’m taking 50 mg prednisone and a huge amount of collagen. Best wishes, Wayne

[Wayne Eisen]

Has noone else heard or read about Vitamin D acting as a treatment for autoimmune diseases? I just started taking massive doses. There are serious concerns, of course. You MUST restrict calcium intake if you do this, to avoid Hypercalcemia. I’m hoping I get a better result than from my 1st 4 week round of Vyvgart infusions. I get my second round in February. I’ll keep you folks updated next month. Best wishes, Wayne

[Wayne Eisen]

Hi, Folks –

I know that you’ve been discussing the effects of Mestinon (Pyridostigmine). However, RobertS included in a post a link to am NIH study report on mega doses of Vitamin D and its impact on MG. Nobody, including Robert, had anything to say about this study, which I found surprising.

I’ve decided to do my own study and just ordered a lot of Vitamin D.

Also, I’m going to discontinue taking calcium pills and take a look at my multi-vitamins to restrict my calium intake, to avoid Hypercalcemia. I’ll let y’all know how this works out. Btw, check out that link and let me know what you think. Best wishes, Wayne

[Wayne Eisen]

I think this is all from some 3rd party Belgian organization.

[Wayne Eisen]

I contacted the makers of Zilucoplan.

First they emailed me:

We are sorry to inform you we do not currently have access to the medicine you requested. We apologise for the inconvenience and wish you the best of luck. If anything changes we will reach out to you by email.

Kind regards,

TheSocialMedwork Team
____________________

Then they emailed me:

Thank you for submitting an enquiry and for letting us know that you can get a prescription. Our Patient Support Team will be in touch with you shortly.

In the meantime, here’s what you need to know to make this process faster:

That was followed by a bunch of instructions, including how they don’t accept insurance, but how maybe they will. 🤣 I’ve asked how much it will cost for pi r 23 mg a day. No response yet.

Wayne

[Wayne Eisen]

Hi, folks –<div>

I’m posting again because the previous post got distorted.

I’m about to have my 2nd cycle of Vyvgart in February. I’m not very happy with the results so far. I’m very interested in hearing about results from using Zilucoplan. Can anyone share experience with Zilucoplan? Thank you! Wayne

</div>

[Wayne Eisen]

Hi, folks –

I’m about to have my 2nd cycle of Vyvgart in February. I’m not very happy with the results so far. I’m very interested in hearing about results from using <b style=”font-family: inherit; font-size: inherit; color: var(–bb-body-text-color);”>Zilucoplan. Can anyone share experience with <b style=”font-family: inherit; font-size: inherit; color: var(–bb-body-text-color);”>Zilucoplan? Thank you! Wayne

[Wayne Eisen]

Hi, Paul –

Of course you should get competent doctors. I also want to encourage anyone on prednisone to take lots if collagen in their food to counteract pred’s side effect of weakening bone density.. Collagen is good for everyone. I load my very healthy smoothies with pure powder collagen every day and my bone density scans have shown improvement in the last 2 years. I’m 74 years of age, so my bones are supposed to get less dense.

Best wishes, Wayne

[Wayne Eisen]

Hi Folks,

I can’t over-emphasize this…

Load up on collagen!

Cleveland Clinic says “Collagen accounts for 30% of your body’s protein. It provides structure, support or strength to your skin, muscles, bones and connective tissues.”

I’ve taken a lot of prednisone for my MG, which weakens bone density. And because I put a lot of pure, powdered collagen in my smoothies, my bone density has IMPROVED!

Best wishes! Wayne

[Wayne Eisen]

I’ll be starting Vyvgart infusions after next week’s flu shot and blood tests. Best wishes, Folks! Wayne

[Wayne Eisen]

First, I want to urge anyone concerned about bone density to seriously load up on collagen. I put a lot of pure powder collagen in my daily smoothies and have statistically significant improvement in my bone density while taking large doses of prednisone (the enemy of good bone density).

My neurologist has finally agreed to prescribe Vyvgart. I’m very encouraged by several reports in the chat room. Thanks, Folks!

[Wayne Eisen]

I can’t overemphasized the significance I place on consuming a lot of collagen. And I’m pleased report the my neurologist had finally agreed to prescribe Vyvgart. 😅