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Fosamax issues anyone?
Well, my prednisone, age, and sedentary lifestyle have moved me into osteopenia and my PCP moving me to osteoporosis medication. I did two once-a-week doses of Fosamax and within a couple hours of each my gastritis was triggered horribly and I had two days of misery. so, I’ve stopped taking it.
Before Fosamax, I’d weaned down to 1mg of prednisone a day. But double vision, a droopy right eye, and increased fatigue moved me up to 2mg and then 3mg of pred. And my Mestanon went from 60mg every 4 hours to 90 every four hours. After 6 weeks of this, I consulted my neurologist and we upped over 2 weeks to 40mg a day and Mestanon to 120mg every 4 hours. There have been no good changes from this. Now I have slurring in my speech several times a day and I am tiring much quicker.
My neuro says my MG must be getting worse so we are doubling my mycophenolate over two weeks, but that won’t kick in for 6 months, and getting ready to start Vygart.
I researched Fosamax before we started it, and there was no indication it was a problem for MG, so I’m thinking it’s not the drug as much as it was the side-effects of the drug that did me in.
As anyone else had problems with Fosamax OR with a “safe drug” they reacted to and flared because of the reaction? thank you for being such a supportive community. It’s a blessing to have you available.
Love and Light,
Frank
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