I am 49 years old. I have had myasthenia gravis for 23 years and I am disgusted with my life. Yes, but the last year was going pretty good! I have other medical problems also including brain tumors, but the real reason I’m here is because of going from great bones 23 years ago to a T score of -3.9!!! Like I said, I’m only 49 no I am not on anything, I am afraid to take anything because my MG is doing so good and my neurologist is going to help me talk to the bone specialist because she doesn’t want to flare my MG either?
Basically, my question here is if you all are any of you have osteoporosis, and I know we’re all different with medication’s. Is there anything that works best for you and that has not caused any problems with your MG?
I know for sure my neurologist said absolutely not to Prolia.
Any advice would be greatly appreciated and tired of crying and feeling like I’m dying between weak muscles, weak bones, tumor in my head? I wonder why I have anxiety out of control???
Thanks for listening! Thanks in Advance for any answers or replies!
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